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Posted 2/18/2008 8:25 PM (GMT 0)
 

  does anybody having , trouble with people or there spouse understanding how you feel, when you come home from work you feel wiped out  I only hear take my mds or call the doc. tou know you can only do so much, I hope that i am not complaing to much  do not no what to do.

                       

                          caduet 1 day,asacol  6x day low tabs 3x

                          fish oil, culturelle 1x day,remicade every

                            6weeks, ambien cr ,magnessium,zoloft

                             siberianeleuthero.multi vit

Posted 2/18/2008 8:37 PM (GMT 0)
Most of the time I think my husband understands but then he'll say something that makes me so mad. When i am wiped out he'll blame it on me being depressed (because of this year long flare) and I'll have to say No. Becuase I have UC and it takes a lot out of me. He placates me. I know he still doesn't understand. I think if you don't have a chronic illness there is no way to understand what we go through. I lovemy husband and i know he tries but he will never undersatnd, and I hope he never has too. But that's why we are here for each other.
Posted 2/18/2008 10:07 PM (GMT 0)
My husband understands, but he still gets frustrated sometimes when he wants to go run around and I just want to rest.
Posted 2/18/2008 10:18 PM (GMT 0)
he just thinks I am going to be ok, he is supportive but also has kind of a denial thing. His mother was a full blown alcoholic and passed away because of that, he and his family just never thought it was as bad as it was, well no one did, myself included. So what I am trying to say is that he just kind of thinks everything will just be ok.........well I know life is not like that. He makes me strong but at the same time, today I need him I am crying my eyes out (on 40mg of pred and 200mg of aza and just had blood in my bm today) and terrifed and I need him to understand that maybe it wont just all blow over, maybe it wont be ok, maybe we'll have to deal with stuff we don't want to.
Posted 2/18/2008 10:31 PM (GMT 0)
also my mother has a mental illness and when I went through that, my husband simply could not give me what I needed b/c he just did not understand what I was going through. I went to therapy about 10 times, it really helped me sort everything out and be able to handle it, and it was just about me.

I am considering going again and probably will, I just need to do it, I know I need help sorting out my feelings and everything, I know I need to be ok and feel lately like I am just putting on a front.

The thing with him that does help and he has told me, is I need to let him know what is going on, sometimes I try to deal w/it all on my own and I usually end up trying to pick a fight with him.
Posted 2/19/2008 1:00 AM (GMT 0)

 thank you for the responds, now maybe my wife will understand about what goes on because , sometimes my work goes when I get up at 3:30am then get home at 5:00 pm I am wipe pit

Posted 2/19/2008 1:07 AM (GMT 0)

  one of the people that get the remicade treatment when i am in there also said try tai chi so i am trying it I hope it helps it must be a stress reliever

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