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Anyone out there taking meds and have no side effects and are in remission

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Ulcerative Colitis
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Posted 3/27/2008 7:11 PM (GMT 0)
I'm taking a poll...

Anyone on meds and are not having any side effects and are in remission? If so, what worked for you as far as meds and how long have you taken them for?

Posted 3/27/2008 7:28 PM (GMT 0)
I *think* I'm in remission. I just had a minor blip the other day but now I seem to be fine again. I am on Colazal and 6mp but since I've been on them for so long, I no longer have side effects. Sure I had them when I first started but once my body became accustomed to them, they went away. I have been on Colazal for 3 1/2 years and 6mp for 1 1/2 years.
Posted 3/27/2008 10:08 PM (GMT 0)
I've been in remission for two years on Colazal and Remicade. No bleeding, no mucous, no pains, no ulcers in my colon.

Posted 3/27/2008 10:12 PM (GMT 0)
I'm currently taking 9 asacols per day (tapering down). I had a month long flare up in August. I've been in remission since then. Prior to August, I was in remission since my intitial diagnosis.
Posted 3/27/2008 10:38 PM (GMT 0)
I've had side effects from the Prednisone and whenI was on Imuran for two weeks it was hideous, but the rest of the meds have been fine. I take 4 Lialda every morning and have had no side effects. I have a Remicade infusion every six weeks, again, no side effects.
Posted 3/27/2008 10:53 PM (GMT 0)
I was in remission for 8 months last year with no side effects. I was on 50 mg of 6mp.

Ah, the good old days... I remember them fondly.
Posted 3/28/2008 1:19 AM (GMT 0)
I am on 4 tablets of Asacol and 2 tablets Mecaptopurine per day and have been in remission since 2003 so 5 years...........
Posted 3/28/2008 1:26 AM (GMT 0)
I'm back in remission now, and have been for about 6 weeks. My meds are in my signature and should be pretty current. I can't think of any side-effects, either. I'm even back to drinking my daily coffee with no problems. Hooray!
Posted 3/28/2008 1:42 AM (GMT 0)
Does true remission mean you can eat anything you want? I guess with or without medication.
Posted 3/28/2008 6:12 AM (GMT 0)
Dx last January - been in remission since July/August - was on prednisone for 2 months, then 6MP for 5 months - now only 4 Asacol 2x a day. Feel great, no side effects, can eat whatever, no major abnormal reactions to foods.
(until last week, had heartburn-like symptoms possibly from Asacol, currently testing that theory)
Posted 3/28/2008 11:07 AM (GMT 0)
Yep, I do 4gm oral 5ASA daily and two 5ASA foam enemas a week. Last flare was April last year. I have never noticed any side effects from the 5ASA drugs.

The oral 5ASA did a lot of the work but adding two enemas a week seems to have really kept me in remission (I started those last June/July). I love rectal meds!

I can pretty well eat what I want, although I do keep to a balanced healthy diet and eat lots of fibre rich food. That seems to keep my stomach settled and happy (I have never been able to connect food to flares, fibre just gives me better bms).
Posted 3/28/2008 12:01 PM (GMT 0)
I'm in remission on Azathrioprine and have been (with a "bump in the night" now and again, controlled by rectal med additions) for about six years.

Mitz
Posted 3/28/2008 1:27 PM (GMT 0)
I am in remission and have been since July 2007 when I had a minor flare during the first trimester of my pregnancy. Prior to that, I was in remission for almost two years.

I have always taken only the medications listed in my signature line. I have never experienced any side effects from these meds. During a flare, I typically use an 8 week taper of Prednisone. I experience very few side effects from the Pred either - usually just some insomnia and a hot flash here and there.
Posted 3/28/2008 3:41 PM (GMT 0)
Yes I'm on Remicade and have been in remission for 3 years. No side effects!
Posted 3/28/2008 5:51 PM (GMT 0)
Im in remission with no side effects from drugs or colitis at this point.  Imuran is what worked for me.  I had taken prednisone for a long time before that and tried to maintain remission with Asacol or Rowasa. 

I've taken Imuran for a few years now FAITHFULLY. 

Michele

Posted 3/28/2008 11:37 PM (GMT 0)
Hi, THEREAREMIRACLES! I'm in remission since Oct. on 3 Colazal daily after catching a flare-up in descending colon quickly last July. Prior to that mini-flare I had been in remission for 20 months, a record for me-- thanks to reduced-dosage Colazal plus an occasional (generic) Rowasa. My gastro convinced me several yrs ago that it's safer to be on med than winging it. I cannot stay on full daily dose Colazal longer than 10 weeks, though, because my eyelids start to puff/itch. Julee70 recalled having a similar reaction at one point. The best course of action is to find a knowledgeable IBD gastro who will see you through the rough times/help you determine the safest & most effective med(s) to take longterm. How are you doing with the burning butt? / Old Hat
Posted 3/31/2008 9:42 PM (GMT 0)
My son is tapering off of Prednisone, down to 10 mg. per day.  He has also been on 6mp for about one month. HE IS DOING GREAT.  So great, I don't want to jinx it.  We just got off of a spring break cruise and he ate anything he wanted. Chicken caesar salads, pizza, lots of "good foods" like prime rib, grouper, and ice cream with butterscotch sauce at every meal. It was awesome.  He looks tan and handsome, instead of pale and skinny.  He is also taking tons of supplements from a PhD nutritionist that I have not listed in my signature.  I don't know which piece of the puzzle is doing the trick, but I will take the positive improvement.
Posted 4/1/2008 6:12 AM (GMT 0)
I have been in remission for 1 year almost to the day and I am only taking 250 mg of Imuran a day. I was also getting Remicade every 8 weeks or so, but have since stopped that as well. I am currently experiencing no side effects whatsoever.
Posted 4/1/2008 1:48 PM (GMT 0)
Yep, 3 Colazal a day and 1/2 Rowasa every other day. No side-effects
Posted 4/1/2008 5:03 PM (GMT 0)
I'm in remission. 2 Lialda/day. No side effects.

I do not eat what I want and am very careful about what I put in my mouth. (To avoid gas and cramps) I haven't had any of the big D (or constipation) in a while. The bleeding has stopped thanks to a month on prednisone.
Posted 4/1/2008 7:22 PM (GMT 0)
I'm in remission too, taking 6 azulfidine every day and rowesa enema every 4th day. No side effects......
Posted 4/2/2008 2:44 PM (GMT 0)
Yep, Imuran and Entocort
Posted 4/4/2008 2:13 AM (GMT 0)
4 colazal/day and probiotic, remission since last spring, occassional joint pain, anemia, minor headaches, i dont however tend to think they are side effects just secondary uc symptoms.
Posted 4/4/2008 3:49 AM (GMT 0)
Hi.  I haven't posted in about a year.  I'm thinking remission as well, I am on canasa supp., 4asacol a day, 6mp 75mg., probiotic, vitamin, fiber and prozac.  I haven't been this well in four years.

I was curious about your rocephin shot for bloating and digestion.  I am having trouble with horrible bloating and gas for about 2weeks and can't tie it to any one thing.  Can you tell me more?  thanks.

meandmycolon

asacol, mp6, canasa, fiber, probiotic

pancolitis 2004

middle section of colon never repairable

rectal section colitis dx2006

'

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