Eva Lou said...
Then by that logic, I'm going about 15-20 times a day! I hate those faux bm's, nothing but gas & mucous... that's why I've been wearing a pad 24/7 for the last few months. And with a fistula, the mucous just leaks out all the time. nice, huh! I count the times I get up off the toilet, wipe, then sit right back down as "one" too.... I don't mind the frequency so much as the urgency. But yes, getting up 3 times a night every night does take it's toll! Last night was particularly bad, must've been up 6 times, then the cat woke me up early anyway! Re. my 2nd thoughts on surgery- I'll be having them right up to the second they put me under, no doubt. During a "bad" flare, it's been up to 25 times a day, and the lowest it's ever been is probably around 3 a day, right in the beginning of my Remicade use. I believe my #'s will go up in the next month or so, since today I started seeing blood again & I have no infusions scheduled. Whatever.
How did you manage to get a fistula with having UC? Fistulas are prone to CD and almost never present with UC because the inflammation in UC remains surfacable unlike with CD where the inflammation can go through the many (all) layers of the intestinal tract leading to a fistula.
:)