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Vitamin E Enema Update

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Ulcerative Colitis
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Posted 4/19/2008 8:05 PM (GMT 0)
eating all of these veggies seem to have made me worse over the past two days. Not more blood, just I am going much more frequently. Is this normal? I am going to give it at least a week.

I also seem to be passing about 30% of the veggies I eat, undigested, or barely digested.
Posted 4/20/2008 1:45 AM (GMT 0)
Yeah, I thought I could tolerate all the stuff pretty easily since I eat like this alot anyway. Last couple of days gut felt a little overdone. On day 4.
Breakfast is a little tough to dream something up, cutting out my fruit totally. I usually took fresh fresh berries/bananas/pineapple/mangos... etc.... and blended them into shakes with yogurt.
Posted 4/20/2008 8:59 PM (GMT 0)
For most of us, I think ideas are more helpful than anything. I have read that protocol 20 times. I can't do steamed broccoli/brussel sprouts/everything else listed in protocol as veggies for breakfast, so what do people use, lol. I know its not set in stone and it's a guide, but you also say if you can't follow the procedure don't bother, lol. I know others aren't eating this stuff at 6 am in the morning day after day. I can use spinach with the eggs throw in mushrooms as omelet. I have used the Kefir alone as breakfast. Mainly because I don't feel like stuffing myself with steamed veggies. Have eaten oats, but what vegetable am I gonna use with oats? I can see why people would fail the dietary portion of this. It really needs people to give ideas and creativity as to what to prepare at different times of the day. That would give more success imo. Still sticking with it, Day 5.
Posted 4/21/2008 12:33 AM (GMT 0)
In 6 years of posting do you not have any other suggestions for starting out the morning?
Posted 4/21/2008 12:41 PM (GMT 0)
I do appreciate the procedure..... but, I don't think you really listen at times. I don't eat processed foods, fruits nuts and berries consist of my breakfast before I started this. I already eat a healthy diet to start with. I am trying to following this protocol, but on asking you for help several times I get what seems like a copy and paste. Typically things don't bother me much, but when I don't feel good already it is really irritating. Don't assume that someone has a diet full of processed foods or a bad lifestyle because they are stuck with this disease. I teach people stay away from that stuff everyday in my office. I asked for examples for what people eat in the mornings. I don't really want a mixed diet at the start, and examples of what people are doing with procedural foods would help greatly. You CURED yourself 25 years ago, and haven't had to deal with this since so bear with us who are.
Posted 4/23/2008 6:23 PM (GMT 0)
what about psyllium fiber..is that ok?
Posted 4/26/2008 3:40 AM (GMT 0)
I have to share my experience.  I was diagnosed with UC at the age of 39 (August 2006).  After having 4 kids and just finished nursing the last one my UC symptoms started.  The doctor thought it was hemroids, but after a month it got worse.  I was diagnosed with UC on Sept. 1, 2006.  The GI dr. put me on Entocort, Dipentum, and Mesalamine enemas.  After a month I was feeling better, I thought I could quit the meds, but within a week the symptoms came back.  I didn't realize how bad this was.  I went back on the meds. The first of November 06, I realized I was pregnant.  Scared of the side effects I quit all the medications and decided to try a more natural approach. I read the Maker's Diet by Jordan Rubin.  Yes, I know not everyone believes in his products or his diet, but I have to give it some credit.  It helped me to change my diet and my thinking.  During this time I used his products, Garden of Life:   Primal Defense, Digestive Enzyme, and FYI.  I also took Glutamine Caps, DHEA, Slippery Elm ,  Capryl, Turmeric & Bromelain

multi vitamin, vitamin D, Omega 3- Fish oil, Colostrum Plus, Cal-Gel, and BioK-plus Probiotics. 

In November I found out I was having twins and in December I had a miscarriage, loosing both babies.  I attribute that to the UC.  My body just wasn't able to give enough nutrients to the babies.  I had a healthy baby at age 36 and 39.  So I knew it wasn't my age as my  OB/GYN  said.

 

I happened across Sheldon's information of the Vitamin E enema .  After getting the procedure from Sheldon I decided to give it a try, but I did not have time to squeeze vitamin E capsules.  I went to my Osteopath and discussed it with him.  He was very open to the idea.  I took it to the local compounding pharmacy and they created my vitamin E enema and put it in a bottle so all I had to do was use a syringe to measure it out.  Much easier.  They used the NOW Foods liquid Vitamin E, like this one.  http://www.affordablesupplements.com/vitamin_e_liquid_now_foods.asp?s=BY&m=pi&c=p_vitamin_e_liquid_now_foods      I started the enemas January 07 and every night until April did these enemas.  By the end of April I was having formed stool!  I was so excited.  I went to having an occasional enema.   As far as the diet, I did eat bananas and apple sauce. 

 

 I tried just the diet and supplements but couldn't quite get rid of all the blood in my stool so I started with 3 Asacol a day in July 07 and worked up to 9 (Dec 07) and quit all prescription meds after my December 07 colonoscopy.   The vitamin e enemas really helped  me.  Don't give up on the enemas, but I really believe you have to address some supplements and your diet.  I can tell the supplements help me.  My blood count said my Vitamin D was low so I started taking that.  My Osteopath has really helped me with diet, supplements and medications without putting me down.   Improvement was slow, but 16 months after diagnosis I felt  I was finally in remission.  My December  colonoscopy said about 12 inches are slightly red and the ulcers are healing.  Everything else looks good.  When I told him about how I have attacked UC  of course he said there is no research to to what I have used.  My theory, whatever works use it.  What works for one person might not work for another. 

 

Probiotics are very helpful.  The Primal Defense has probiotics in it, but not enough.  That is why I used  the BioK-Plus. It has 50 billion  especially if I get a pain in my gut. 

 

As far as diet- I eliminated bread, pasta, rice, milk and ice cream.  Soy milk and yogurt were fine with me, but I tried to stick with the GOOD yogurt without much sugar, like Brown Cow and Stony Field. 

 

My diet & supplement routine when I was really sick. 

1 hour before breakfast- take 1 Primal Defense, 1 Colostrum, 1 Glutamine, 3 Slippery Elm

breakfast-  365 Organic oatmeal with Raw honey added after the oatmeal has cooled and sometimes an Activia (Raw Honey is a probiotic)

after breakfast 1 FYI, 1 Omega 3and 1 Cal-Gel

mid morning snack- Activia and Organic American Cheese

11:30-  1 Primal Defense, 1 Colostrum, 1 Glutamine, 3 Slippery Elm, 1 Digestive Enzymes

12:00-Lunch-  Salmon (wild caught) Maranatha Creamy peanut butter and Raw Honey,  Activia, banana

Followed by 1 Omega 3, 1 FYI, and 1 Cal-Gel

2:30  Afternoon snack-  Stony Field yogurt-

 

4:30-  1 Primal Defense, 1 Omega 3, 3 Slippery Elm, 1 Digestive Enzyme

6:00- Dinner-  Crock pot chicken, (thigh and leg), mini carrots cooked with the chicken, cooked spinach or asparagus, Stony Field yogurt, Soy Milk

 Followed by 1 Multi-vitamin, 1 Cal-Gel, 1 Vitamin K, DHEA, 1 Turmeric & Bromelain, 1 Capryl, and 1 Biotin

 

10:00p.m.- 1 Primal Defense, 1 Omega 3, 3 Slippery Elm, and

(BioK-plus probiotics-twice a week)

AloeVera juice or gel mixed with Pomegranate juice

 

I am completely off medications.  I still take the supplements, eat healthy and drink lots of water.  I don't eat much bread or pasta. 

I have to say I believe in the vitamin E enemas. 

 

Feeling Great! 

Darlene

 

Posted 4/26/2008 8:46 PM (GMT 0)

Sheldon,

I haven't seen any symptoms since last fall.  I have had normal bm's and no pain.  So I feel I am in remission and cured.  I have to say I have been under a lot of stress the past month with putting my mom in the nursing home and dealing with the last month of school.  So we will see what happens.  I feel pretty good other than catching a spring cold and my eyes have been bothering me.  I know I need to get a few more hours of shut eye a night. 

The compounding pharmacy used the nonsynthetic vitamin E from NOW Foods and followed the original recipe that you sent me over a year ago.  I don't do the enemas now, because I don't need to.  I have formed stool and can not put an enema in at night.   I have a bm after my morning shower every day. So as far as the UC goes I'm fine.   

Posted 4/26/2008 10:45 PM (GMT 0)
Snookiebow,

I would prefer to say you're in remission...because the only way to be sure you're cured is to have a colonoscopy performed, if there's no inflammation then you're cured...anything outside of that is remission imho. I feel great, I'm not on meds...but...am I cured...no way...

at least, not yet;

but I will be soon...

I just have a gut feeling about it.

tongue  

NBT

Posted 4/27/2008 12:53 AM (GMT 0)
Yeah, remission and cured are not interchangeable words. I had a spout of a year and a half of remission before this last flare. No symptoms/visible blood/pain/urgency. Far from cured though. Probobly still inflammation in my colon that whole time, and a fecal occult test would have probably showed blood.

It's irritating but just the truth.
Posted 4/27/2008 3:08 PM (GMT 0)
I have been on the vitamin E enemas/diet for 5 days now. Heres what i have experienced so far.
note: I have followed the diet and cooking instructions very closely, use only distilled water and have not cheated or introduced any foods not suggested by the procedure. I am also using the correct vit e formula.


day1: nothing out of the ordinary..approx 5 or 6 BMs. symptoms same as usual..mucous, slight blood, urgency, straining, loose stools. approx 5 or 6 BMs.

day 2: about the same as day 1. maybe a slight improvement.

day 3: another day of slight improvement.

day 4: same as day 3 but feeling weak..I have lost noticeable weight. woke up in the middle of the night, had a BM with urgency and straining..then developed a fever. woke up drenched in sweat.

day 5:(today) feeling weak. noticed an increase in blood this am (very red blood..it's usually diluted and very slight)

not sure what to do at this point. I may give it one more day..but it will depend on how the rest of the day goes. If i continue to see bright red blood i may take a day or two break from the enemas and see what happens. I wasn't experiencing much bleeding before starting this.
Posted 4/27/2008 7:21 PM (GMT 0)
I had the same thing around day three of the diet. I wasnt doing the vitamin e enemas yet, so it must be the diet. I think its die off from the bad critters no longer being fed by poor diet.
Posted 4/27/2008 8:14 PM (GMT 0)
did your symptoms improve after that?
Posted 4/28/2008 2:47 AM (GMT 0)
Its hard to say because two days later my friend got married. I had to take immodium which pretty much makes my symptoms much worse for about a week. That was last sat, and I am better now than before, so I would have to say yes. Diet is the real key, I am trying my best, but I lack will power most of the time. What was your diet like before starting this one?
Posted 4/28/2008 1:27 PM (GMT 0)

Hi, just quick info to share my experience with Vitamin E Enemma. I live in Toronto, I have left sided  U.C, I took imuran and predinson helped a little but still BM rush and many times a day, when pred goes to 20mg I start bleeding again I have to go back to 30mg, hard diet still no improvment. I changed many doctors (careless you don't find them when you need them), last one I asked for appointment I got it after 6 month (4 months ago). I decided to go to Vitamine E Enema trial. noticed improvement, 1st 2 week I stopped Pred. 3rd week reduced Imuran to 1 pill from 2, I keept doing this for 3 months with 1 pill of Imuran, after 3 months I continued 1 time a week and Imuran every other day. During these 4 months lot's of improvement, tried many kind of foods no problems. I feel now like normal people I think it is remission, but still have fear. I will see the doctor in 2 months, even I am not expecting any news from him.

Posted 4/28/2008 5:36 PM (GMT 0)
i plan to keep with the diet and enemas.

i feel pretty good today. minimal blood. a little straining but not too bad.

before this diet i was pretty good about what i ate.
(not many processed foods) but i did eat a fair amount of breads and cheese. man..i love bread...and cheese..
Posted 4/30/2008 1:35 AM (GMT 0)
So i had been doing well for 6 weeks, and then bam, started bleeding again on sunday. so i decided to try this too. i have been doing the diet since sunday and did my first enema an hour ago. I will keep you posted on how it works for me. I was basically doing this diet anyway, with the occasional bit of sugar. maybe every 4 days or so i would eat something with sugar. oh yeah but i was eating nuts and peanut butter before.
so i just did the first enema, and it made me cramp up, and i held in in for about an hour before i had to go to the bathroom.
hope this gets rid of the bleeding!
Posted 5/5/2008 6:52 AM (GMT 0)
so i have been trying the enemas and the diet, with a little bit of cheating on the diet, and so far it has not really helped. Dr. said that i would have to go on 6-mp if i started bleeding again... which i have. does anyone have any other suggestions? i really dont want to get on 6 mp.... dont wanna be constantly flaring even more tho...
Posted 5/5/2008 6:54 AM (GMT 0)
oh! i forgot to ask, how do you do this enema without shooting a bunch of air up yer butt?!
Posted 5/5/2008 11:14 AM (GMT 0)
I squeeze out the air of the bulb and as it get towards the end and a little water comes up I quickly insert.

I'm getting totally gluten free and I can't begin to tell you how good my guts feel! I don't spend hours in the bathroom in pain. If I inhaled deeply my whole abdomen hurt and I was wondering what is wrong. I had the blood test and it was negitive for celiac, but that doesn't matter. I'm actually eating gluten free breads, cookies, bagels, english muffins, pancakes and I'm so much better! Anyone else gluten free and it's helped?

Posted 5/5/2008 7:41 PM (GMT 0)
I'm also curious why there are no other posts for this. I'm also curious why no naturopathic doctors recommend this and why there are no accredited universities or groups (like CCFA) that promote this or are involved in any type of testing. It can't just be about money, because there are tons of tests out there for various pro-biotics and even for some kind of worm.

If this works, then more power to you. And for those of you who deem this a success, please have you GI write up some sort of followup article. Also please write to your local universities, the CCFA, etc and have them create some case studies, etc. so there will be some type of documentation that can be followed up for additional studies.
Posted 5/6/2008 12:18 AM (GMT 0)
I have a really hard time keeping the enemas in, i usually have to go to the bathroom about 5 minutes after doing it. i have held it for an hour before, but usually i have to go immediately. am i getting any benefit from the enemas even if i go to the bathroom right after?
Posted 5/6/2008 11:29 AM (GMT 0)
Warm up some of the distilled water first and use just that for a couple of rounds. I'll use 2 60 ml bottles of water just to relax and clean out the lower portion of the colon. You don't want it to go up to far in the colon or retain the water very long... not a colonic here just the sigmoid colon. Then the vitamin E will go in there and stay very easily. If I don't do that the same thing happens and imo it is wasteful. No visible blood for me in 2 weeks.
Posted 5/6/2008 1:44 PM (GMT 0)
D_A do you take vitamin K along with vitamin E , vitamin C and selenium. If you do is it vitamin K1 or K2?? I am confused with it. Are you taking any other supplements with it??
Posted 5/6/2008 4:20 PM (GMT 0)
I don't take vitamin K. I eat a TON of spinach each day, which is loaded with good ole natural K. I take the selenium, 2000mg C, MSM, E, and my superDHA from carlsons. With the nuts I grind up I really don't even need the selenium, so once this bottle is gone I won't bother with it. I alter between several probiotics, Align, Primadophilus Reuterii, Digestive Advantage, and the Kefir. I also take Super Nutrition's women's multivitamin, lol. I accidently got those instead of the prenatals for my wife, and they are too good to let sit.
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