HealingWell
Search Close Search
☰

Cause of UC hypothesis RANT

Support Forums
>
Ulcerative Colitis
✚ New Topic locked
1 2
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 8/13/2008 8:17 PM (GMT 0)
Genetics causes UC (IBD).

:)
Posted 8/13/2008 8:34 PM (GMT 0)
I am also in the lucky pool with doctors. Mine is the fourth i've had since i was 7. He calls me personally when he can and when i didn't have insurance made sure that he talked to me on the phone as much as possible and made me only come in when absolutely neccessary (not to mention all of the free meds over the years) He is very active in research and trials and has never told me diet doesn't matter.

I wish that pentasa or asacol alone was enought to get me into remission. That, however, has never been the case for me.

ucwarrior- Question for you. Do you have a theory about why some people dx'd with uc have sudden onset symptoms while others seem to have problems from birth?
Posted 8/13/2008 11:18 PM (GMT 0)
Kelly, I haven't read anything about dx'd children from birth. I have heard about children as young as 3. The only separation b/w sudden onset symptoms and birth problems that I can surmise are one of two things. First possible vaccination complications where the body rejects agents or carriers within the vaccine itself and harbors within the body in a sort of incubation period. Second goes to the viral cause where, much like H.Pylori causing ulceration, the offending virus attaches to the host cell, injects its DNA strand and changes the genetic structure of the invaded cell to work as a virus factory.

Sometimes the virus can lay dormant kept in check by the body's form of DNA spell check. At periods of stress or lowered immune function the virus takes an opportunistic leap and begins to multiply rapidly altering the DNA of many surrounding cells. The immune system kicks in at a certain point and begins to attack itself realizing something is wrong with its cells. Thats where it gets a little fuzzy. Does the immune system have a predisposition to express certain genes that continue the onslaught despite the killing of healthy viable cells? Does the immune system become confused while attacking itself leaving open woulds ripe for bacterial and yeast infections? If I had all the answers I would be making significantly better money than I am now... :)

For now I can only speculate and make educated guesses. I do think, however, the cure is most likely going to be found within the genetic mapping and the addition of certain knockout genes to limit expression of certain undesirable encoding of predisposed DNA carriers. I like the way medicine is advancing in this field and, at the very least, magnificent immunosupressors may be the byproduct that can benefit not just UC sufferers but many diseases linked within the human genome that were originally thought untreatable.

I am very lucky to be able to remiss myself without the need for harder medicine. It has been a trial and error process that in my earlier years has left me scared and very afraid of the risks I take. I consider it a blessing that I probably would not still be alive today were I to live in a third world country where I did not have the access to the information I dig up to assist in remission. I'm not talking about running to the local vitamin world in search of ten bottles of standardized extracts and herbs for my remission. I've been fortunate to be able to recognize dietary restrictions and additions that assist in my own personal remission by treating every flare like the dangerous intrusion that it has the capablility to become. Not everyone will benefit from what I do, every body is unique and responds/reacts to therapies in numerous ways.

These are my opinions only and based on educated guesses mixed with hard science. I am no doctor and please take what I have to say as my opinion only, not fact.
Posted 8/13/2008 11:39 PM (GMT 0)

 

ucwarrior~

You speak my language hon...

I have had my share of s**t and the more I know the more cynical I become...

I am permanently damaged from an overzealous GI who just had to diagnose me with Crohn's so he could justify to the insurance company while he was stressing me beyond belief recommending Remicade...He then caused me an infection, then poisoned me with Levaquin and Solumedrol and then if near death wasn't enough, he failed to recognize that my leg was full of clots (due to the levaquin destroying my body and not the Crohn's excuse)

PLEASE NOONE COME ON AND DEBATE THIS WITH ME...I have been tortured by these ba****ds and they are under investigation as I write this...

Someone mentioned STANDARD OF CARE...This is another common saying to imply that they know what they are doing...They do not!!! At least not in my neck of the woods...

The more drugs they have you 'try', the more money that is made all around...The more illnesses they diagnose you with, the quicker the insurance cos succumb to the game...

Recently, the FDA put a black box warning on the quinolone family of abx but not until years later, after many lives damaged and many dead!!! I was very close...I fought back and the one thing I took upon myself was to contact the proper people and tell my full story...What they did to me was horrifying and I now add severe PTSD to my list of what ails me...

The word Remicade sends me into a panic because of what they did to me...My current doc reminds me that I would have never come back from the 'cade...He had been the head of a study with human beings and it went awry...No further details needed...He wouldn't hesitate to prescribe me LDN (also very experienced in that med) but he agreed to never discuss the 'cade again...

I have met people like myself who choose 'alternative' methods and are ALWAYS healthier than the acquaintances that go full boat conventional...

How long do we expect our livers to filter this crap???

I have researched everything from frog dung to the 'cade for our conditions and have not come up with THE answer either but I hold the majority of this capitalistic society responsible...

Funny, the govt announced some months ago that come January it will no longer reimburse for blood clots and infections obtained in hospital...Someone got caught with their hand in the cookie monsters jar smilewinkgrin   Again, something that I brought to the attention of the Maine Licensing Board and they chalked it up to the STANDARD OF CARE, another way of saying **** Y** ( sorry for the nasty language but this was told to me soon after my near death experience at the hands of these people)

I was witness to an obese person complaining for hours about their diabetes and then ordering ice cream and pepsi for a midnight snack in the hospital and then the nurses rushing in at 3am cause this 'poor woman is crashing'...Sickening display...She got the empathy, I got no rest...Meantime she went home the next day with yodels in hand and I stayed suffering for 18 more days...Likely cause they were too busy padding our bills...

Okay, I have now gotten far too worked up and we know that is terrible for our conditions...

I am so happy for people who ACCEPT their diagnosis, go on with their lives and tell others to do the same...I did that...Once I accepted it and bowed to the experts, they started winning the battle...I didn't improve til I ditched the poisons like Asacol...On it for years, having more problems yet the GI keeps telling me its my disease...LIAR!!! He was proven wrong bigtime when I took my last dose in the hospital bed with him watching me...After I vomited blood all over myself and his shoes, he noted my chart...Reaction to Asacol, discontinue...You suck Dr. S!!!

Inflammation always comes from a source yet they exclaim "no cause, no cure", 'dietary changes won't help', etc. etc.

Have you ever been waiting in the waiting room and the drug rep walks in and gets taken first and then the excuse for the delay is 'the doc had an emergency'? Been there, done that...

Also, very common is the reminder from the new docs how high their student loans are and how they are attempting to pay them off in this economy...That's what I need to hear when I am ill, their problems...Yet, they go on vacation and do the s**t they want to...

So much for your rant ucwarrior, I guess I have my own... roll

When you have seen what I've seen, the trust disappears!!!!! I have tried to 'forgive and forget' but I value MY life too much to allow THEM to do it again...

I have gone completely alternative and for the most part been healthier but the damage was done...My body poisoned by levaquin cause of the doc and nurse, the heparin treatment, the liver damage and so on and so on...I am lucky to be alive...I wouldn't be if my husband wasn't next to me and stopped that nurse in her tracks...Guess the coroner was slow that day, they tried to contribute to his bottom line too tongue Not funny...

So in a nutshell, I am with you...It is people like you who don't settle for a diagnosis because THEY say so and I am hoping that you are still on our side when you come up with some answers...If we ACCEPT this, we ultimately gain nothing...Some believe meds are giving them quality of life...How? Ask your liver and other organs what they think...

I have many more thoughts on this but I have said more than enough...

Please, noone attack me for my 'opinion'...My opinion comes from MY EXPERIENCE and noone can take that away...Also, if anyone starts in on me I will get my husband after you...tehe...The poor man lost 20 years of his life watching me die from 'UC'...

On a good note, my niece's life was saved by an oncologist who wouldn't give up on her but that is the only good experience in my 41 years on this planet with a family of sick people and too many friends to list...People are being treated like cattle, which is suspected in these illnesses also...Nuff said blush

Thanks for your 'opinion' ucwarrior...Don't take no crap from anyone and put your energy toward that mindset and save many from the suffering that we have all had to endure from dis-eases with NO KNOWN CAUSE, NO KNOWN CURE...But plenty of high priced medications to help you 'live your life'...Oh brother shakehead I also envy those that still trust their doctors, I remember that feeling...I don't wish my experience on anyone, but I must say I doubt many else would have survived what I did and I feel I contributed to making things better for others by telling my story to those in higher places...We are seeing results allready in the two cases I mentioned above...

Peace to all~MamaDove

May we find the truth sooner than later...

Posted 8/13/2008 11:48 PM (GMT 0)

ucwarrior said...
were I to live in a third world country ....

UC is predominately found only in first world countries.

there really are no cases (or hardly any) of IBD in third world countries.

this is where the hygeine hypothesis comes in to play.

in our first world areas, everything is clean and antibacterial etc...  and the immune system is bored with nothing to do, so when one tiny little thing goes awry, the immune systems sends in the whole army to destroy even when its not necessary.

this is why introducing parasites/worms into the body work cuz the immune system has something to do and go fight and leaves the innocent colon alone.

...............

in regards to diet... im of the opinion, the only thing diet has to do with UC is the fact that its food and liquid and it goes through the digestive system and the colon, which is affected and inflammed, and then exits.   the fact that it passes through the area in question is the only thing that it has to do with. (did that make sense?)

some foods bother people and not others with or without UC...  trigger food this trigger food that... its all just food and it goes through the colon.  thats why the same food bothers someone sometimes and not all the time.  and those who cant have dairy.. you probably couldnt have dairy anyway, with or without UC.  a lot more goes on in the body in regards to food and we just have UC on top of it.

 

Posted 8/13/2008 11:53 PM (GMT 0)

MamaDove said...
[color=red></FONT>

I have met people like myself who choose 'alternative' methods and are ALWAYS healthier than the acquaintances that go full boat conventional...

The two may go together, but perhaps not in the way that you imply. I was able to mess around with "alternative" therapies until I got really sick (and until then, you could have counted me as someone who chose some "alternative" methods and was "healthier." But they didn't keep me that way.).
Posted 8/14/2008 1:58 AM (GMT 0)
Herbal supplements can have nasty side effects, too. And they aren't regulated whatsoever. I would rather take something that has been through testing and has been FDA-approved (even though the FDA doesn't always do the best job) than a "natural" supplement that has not been through any testing and really hasn't been proven to work at all.

Oh yeah - I ate a very healthy vegetarian diet for years before I got UC. I also had only taken antibiotics maybe twice my whole life before getting UC and hadn't taken any for at least a couple years prior to getting UC symptoms.

The reason they have to list all those possible side effects at the end of pharma drug commercials is because so many people are sue-happy. They list them to cover their butts from litigation. Many side effects listed rarely occur.

And I think most GIs (and doctors in general) really do care about the wellbeing of their patients. That's why most of them became doctors in the first place -- to help people. Of course, they aren't randomly calling every single one of their patients to ask them how they're doing. The modern medical system doesn't allow time for this because they have so many patients they see everyday. What exactly are you saying the GIs "don't want us to know"?? They don't want us to know the unproven, untested hypotheses of the cause and treatment of UC that came from someone with a bachelor's degree? It's not their job to tell us things that haven't been scientifically proven...in fact, it would be unethical and probably illegal if they did.

Lastly, if you're saying most pharmaceutical meds are derived from natural sources anyway, then why are you so against the use of them?

Sincerely,
A puppet of pills and anal cremes
Posted 8/14/2008 2:01 AM (GMT 0)
I would be sans colon or dead were it not for Remicade. And that's a fact.
Posted 8/14/2008 4:07 AM (GMT 0)
Ucwarrior, cool it. Everyone on this forum has an opinion and everyone needs to respect others right to have their own. No one has personally attacked you, and we would appreciate it if you would show the same courtesy to other members. Your opinions are just that - opinions. No more right or wrong than any of our unproven opinions. The strategies you use to control your disease are what works for you - not what works for everyone. You have no monopoly on being right any more than on being wrong.

Let's keep it civil and supportive or this thread can be locked. Thanks to all.
Posted 8/14/2008 12:38 PM (GMT 0)
Ah, youth. . . .  I wish I could get so fired up.

It's always a helpful check for me to remember that my doctors are businesspeople.  I don't begrudge them that, and they help lots and lots of people, but the bottom line is that most medicine is business, not charity.

I'm my own best advocate and I'm not afraid to put my foot down. 

 

Posted 8/14/2008 1:08 PM (GMT 0)
Let's also try to remember that this is not just a chat room but a support group.
Posted 8/14/2008 1:25 PM (GMT 0)
My mistake.  In addition to offering a shoulder to lean on, I thought we could also discuss ulcerative colitis and its treatments.  I think quite a lot of interesting info. has taken place on this thread.
Posted 8/14/2008 1:28 PM (GMT 0)
I skimmed thru most of this thread..... personally, I don't care what the "cause" of UC is... it's like asking why the sky is blue. The "answer" really has no effect on what/how an individual treats their disease. Once you have it, you can't get rid of it, so why bother doing much digging into the how & why? It's unfortunate so many seem to have had bad experiences with their GI's...I am one of the lucky ones, I guess. I have only had one doctor since diagnosis, & we are very happy with each other! I don't really like to read the rants against the doctors/medical profession, when people lay blame on others for nearly killing them with meds, etc. There is definitely personal accountability involved- when a doctor suggests a treatment or med, it is imperative that YOU look into that option- get all the info, good & bad, that you can, & then make YOUR informed choice. I don't expect my doctor to hold my hand thru the entire process- I expect him to make suggestions based on his experience, & I either agree to them or not. Simple as that. There are many things I have not done that my GI strongly suggests, & there are also many things I have done that my GI disagrees with- example- he wishes I would have surgery, I have not. I have put myself back on pred at times, & increased my remicade dosing schedule prior to talking it over with him. I did this based on a 2nd opinion consult with a highly regarded head of GI at a major Boston hospital. I guess my point is #1- the cause of UC/IBD is neither here nor there, you've got it so put up & shut up. (just using that phrase, I don't mean that as a flame!) and #2- anytime a doctor suggests a new treatment option,it is up to you to agree or disagree. Once you agree to it, you cannot lay blame on the doctors if something goes awry. I have personally been very, very ill due to med complications- a 5 day stay in ICU knocked me on my butt for literally months- I never once blamed my GI for that! It was just a bad situation. Also, for us "laypeople"- you can do all the research in the world re. causes of UC & med effects, and really....no one cares. Unless you're a researcher, it's all just personal info- what, do you plan to present your findingsto a GI & revolutionize the world of IBD treatments?

PS- and oh yeah, I believe it is genetically caused.
Posted 8/14/2008 1:42 PM (GMT 0)
Jeez. 

The thread is clearly marked "rant."  It's no different than any other rant on this board, and I'm sure there are at least a handful in the first couple of pages here.  They pop up every day.

The guy needs to vent.  He's interested in the causes of uc.  There's no harm in that. 

What's interesting is that almost every post contradicts itself:  "I love my doctor, but I do things without his knowledge."  Those two ideas don't really go together.  There's definitley something in the uc profile that makes people sooo adamant that they are right.  Now, that's interesting. . . .

 

Posted 8/14/2008 1:49 PM (GMT 0)
Eva lou I agree. I stopped looking for the cause years ago because it got me nowhere but frustrated. Now I look at how to keep myself as healthy as possible using whatever means (alternatives, meds, diet) that work for me.

I understand that others need answers and I find their theories interesting as long as we remember that they are just theories. Most of the theories I hear I dont' agree with becuase it seems that no one theory constitutes the majority of experiences. heck, I'm not even sure that when they dx UC that it really is UC. There seems to be such differences in how the disease began in people as well as how reacts to treatments. Some may have bacterial inbalances, others viral infections, and some of us just have all around bad digestive systems. It's hard for me to see that there is just one cause for all of us.

I absolutely agree that the patient needs to have as much info as possilbe. And doctors are not always the best ones to give it to us. When I was dx'd at 18 I did so much research, read hundreds of books and articles. But i am a big dork who loves research. I've never gone into an appointment without a notebook full of research, questions, and ideas. I knew all the drugs out there years before i tried any of them. This disease is so unpredictable that having that knowledge has made me feel a bit in control.

I don't think it matters how long one has dealth with doctors, diseases ect...it's the journey itself. Some who are newly dx'd are much worse off than some veterans. or vice versa. My experience with gi's started at 7. Some good, some bad. And no insurance for many years.

I for one am very happy to have this outlet to talk about my disease. We all have different opinions and experiences and i know that I have learned form so many here.
Posted 8/14/2008 2:07 PM (GMT 0)

Ucwarrior,

Your response to Sara14 is a classic example of "One-who-can-dish-it-out-but-can't-take-it.

It was also mean spirited. 

It almost makes me sorry I supported you earlier.

Why are you weary of defending your position when no is attacking it, but are simply giving you dissenting opionions in the same direct, committed tone you give your own opionions? 

We are all victims the same disease here.  Why the disdain for people who are doing whatever they can to ease their own suffering??? 

I fear you have forgotten what it is that you set out to do here.

Posted 8/14/2008 4:02 PM (GMT 0)
I've been to 4 different GIs (and a string of PCPs), so don't suggest I'm some naive youngster who doesn't have a clue about dealing with incompetent/uncaring doctors. You're bashing me for not having a compassionate and understanding tone with you? Please re-read all of your posts. I'm all for giving opinions, but not when it means belittling someone else's points of view.

Please don't ever address me on this forum again.
Posted 8/14/2008 4:26 PM (GMT 0)
 

ucwarrior and seconder~may I come hang out with you???

 

The initial thread advised this was a RANT, don't like it, don't read it and don't respond and make it uglier than the poster meant it...

 

ucwarrior is looking for answers, so am I!!! If you are satisfied with your diagnosis and the stuff the GIs tell you, goodie for you...I am not, was never since I was dx and have been looking for answers ever since...I get frustrated too, but do I GIVE UP AND GIVE IN?...absolutely NOT!!! When I did, I got worse, not better...

 

I have met only a scant few people who 'think' the way we do...Does everyone think we came about this 'theory' while sitting on the toilet or waiting in our GIs office to find out what he is going to suggest next?...We came about this way of thinking due to our suffering and what we actually KNOW...

 

Eva Lou, I hope you were not referring to me when you mentioned about what a GI suggests we don't have to do and while he may make suggestions you don't have to take them and we should look into the meds first and can't blame them for reactions to meds, etc....Again, we are all different, you have thankfully not been where I have just by the simplistic tone of your post...I won't fault you, please don't fault me or suggest that I should have done things differently...

 

Many have been helped by the SCD diet, whether you believe it, the woman challenged the docs and science to help her daughter heal her body...Food plays a major role in many ways, can we fix it all, likely no...But can we make sensible choices and refrain from fast food and processed junk, absolutely, yet more than likely the people that accept are enjoying indulgences...Watch how many people get ugly with that statement tongue

 

How come all of usshare this illness, for whatever reason, yet we have different ways of 'dealing' with it but when someone talks about MAP bacteria and the dangers of drugs they get chewed up...Hitting some nerves there it seems...I don't need to know the reason why but I do know it inhibits the possible results of an exchange of information that could benefit just one of us...

 

We can all agree that we all know someone who takes a ton of meds for whatever reason...this same person usually spews the same nonsense about "living my life', 'we are not here long, I am going to eat what I want', yet they have a firm belief that they can continually add a pill for what ails them...That's not sensible...Is it?

 

My Mom had congestive heart failure from rheaumatic fever as a child...Her docs back then played the game of lowfat and no sugar so what did they recommend, margarine and saccharin. OMG!!! POISON!!! I no longer wonder why she was FULL of cancer...

That is just one example of why I think the way I do...

 

Science doesn't seem to making things easier or better for our illnesses, just more profitable...If you see it differently, keep on looking...I have had two beliefs instilled in me that have served me well in life...Believe none of what you hear and half of what you see AND there are three sides to every story, his, hers and the truth...Think about it...

 

I no longer trust and I no longer care what anyone else thinks about anything anymore...this comes from a lack of respect for anyone in a white coat or white shoes...I have seen their true colors and the cover-up that follows when they mistreat their patients for profit...Did I ask for that? NO Should I have ever trusted them? NO That's where I fault myself...My husband thought differently (he has a keen sense of who everyone actually is, he is always correct on his assessment) However, I defended my GI because I was raised to trust these goons with a diploma on the wall...

 

Well, nuff of this nonsense...Anyone who is waiting for a cure or think there isn't one...Bless you, you have less stress than those like us, who while frustrated, we continue to search for answers...One of us will let you know what we find out...Your GI will likely not be keeping up on his JAMA journals to update you, cause he's just too busy ya know...Meeting with pharma reps for samples and such...

 

So allow those 'investigators' to keep questioning the status quo and the 'standard of care' (myself included) and keep checking in, for you may just find something that will help you that is not in pill/creme form...I have survived my ordeal WITHOUT MDs and am overall blessed to have gone through near death...It opened my eyes REAL wide so I can now see right through them...

 

 

seconder~I liked what you said about those that trust their GIs but admit they don't always listen...What in the world are we playing with our lives for??? They talk out of both sides of their mouth, don't they?

 

ucwarrior~you are likely just that...keep up the rants even if its on paper on your desk at home...It's those like you that will help us end the suffering...I'm with you!!!

 

Peaceful days ahead~MamaDove

 

 

Posted 8/14/2008 4:38 PM (GMT 0)
Sara14- I didn't mean for the reply to be so edgy it was not my objective to burn. I apologize. I do remarkable amounts of research post-grad in efforts to become more understanding of chronic illnesses ephasizing digestive disorders. I share my ideas and opinions freely with the motive of helping as many as I can. I have no interest in presenting my findings to a medical journal to 'revolutionize the world of IBD' stated earlier, but I do plan on possibly going to med school armed with as much street and book knowledge as possible.

Its easier to reawaken knowledge than it is to learn it from scratch. It's easier to build on an idea than to intially brainstorm it. I think some doctors out there have at one time or another been where I am, empassioned and ready to make an impact. Why would I pursue a career in this profession having a lethargic outlook on what I'm about to embark on? You don't think pre-med future specialists out there share my same fire and desire to make a difference on the diseases and people who suffer from them, why would it be worth it to enter the field then? One doesn't think post grad cancer researchers are ready to cure cancer? One doesn't think an olympian is ready to win the gold at every opportunity? These undergrads are the good friends of mine who are in the same boat as me, share my same desires, and are going to be the next wave of specialists in this world. Would you rather not have a tidal wave of intelligent young minds ready to have a go at these illnesses for the advancement of all humanity, or a small ripple of half-hearted future professionals ready to make some big money off common Bob?

These are the people, my classmates, I'm talking about, who are genuine and are not doing it for the money or the prestige, they do it because they love it and they are making it a personal mission to be the best through hard work. We are not getting paid by the hour to do our personal research, spend our own money on incredibly expensive books, work for FREE as interns, going to our jobs exhausted and sleepy after late nights of churning through some wacky idea. We are doing it because when we converse with each other on our own time its nice to know that there is a brilliance amoung our youth with its melting pot of free-thinking, present and past trials, and solid science.

So people forgive me if some of my opinions and responses are rather sharp. They are not meant to insult or degrade anyone is any form. They are simple opinions and observations that certain members interested in the medical field, including me, notice everyday. There is something wrong with healthcare (the MO of most of this rant) but if we aren't the ones to ask the questions, point out the flaws, form our own opinions, how is it going to get better? The next generation is taking a long look at how things are- good and bad, and taking notice of our observations of the ethics- good and bad, that we see every day. You think I get fired up here, listen to some of the next-gen specialist/researcher conversations that some of my classmates and I engage in- scary, but I believe all in the interest of science. We want our own brains and outlooks not some regurgitated and stale outlook we are sometimes told to percieve.
Mike
Posted 8/14/2008 5:07 PM (GMT 0)
 

BRAVO MIKE!!!

 

Well said and likely well understood by EVERYONE here...

 

Keep up the good work and I would put my hard earned money on this generation coming up, to ask questions and demand answers and FIX this broken down greedy system it has become...

 

You have stated in this last post EXACTLY 'who' you are, too bad that others didn't notice from the first post...

 

I did tongue

 

Thank you for your tireless effort to help those with GI disorders...It's those like you that will surely make a difference...

 

Sending you Peace, Love & Light to help you on your mission~MamaDove

Posted 8/14/2008 5:13 PM (GMT 0)
Most everyone in the U.S. gets fed up with the current state of health care at one time or another, but that's no reason to sign on here & verbally attack or insult individual members who simply try to share/compare info thru this forum. There is some truth to just about every argument expressed so far in this thread; however, and alas, none of us possesses the Ultimate Truth about IBD! 100 years ago TB patients suffered/died because few could be cured by the faulty treatments then available. That's the way life on earth goes. Not every problem has an easy-to-find, one-size-fits-all solution. / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 Colazal daily for maintenance of remission)

Posted 8/14/2008 5:40 PM (GMT 0)

seconder said...

  There's definitley something in the uc profile that makes people sooo adamant that they are right.  Now, that's interesting. . . .

   LOL!
Posted 8/14/2008 5:43 PM (GMT 0)
There's a lot of interesting information in this thread...and it's good that we can create a thread for the sole purpose of ranting.

ucwarrior has already apologized and his apology is accepted by me...

Now, if we look at what he's written I think we will realize that he has made some very, very good points about the disease and the healthcare system. He really is a UC Warrior and we need more people like him to ask hard questions, research the condition and look for a cure. Most of us know that diet can impact many conditions for example diabetes is affected by sugar, underactive thyroid (which has connections to candida overgrowth) is affected by sugar and it has the same symptoms as UC and many websites say that sugar should be avoided by UC sufferers. Yet, if you ask a GI about diet affecting UC sympoms they will say "no way" but we know better. Why is this? Could it be because most doctors, GI's, etc. are trained the same way and so think the same way and because they have very little, if any training where diet is concerned?

ucwarrior has raised of lot of interesting points and he has challenged us to do research and to look into other options.

ucwarrior, I think we have a lot in common and I would love to share my recent findings with you in regards to candida. If you're interested, send me an email (click on my username).

ps.

I received a warning in an email about LEVAQUIN and CIPRO causing ligament damage...anyone else get this?

NBT

✚ New Topic locked
12