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Some questions for you guys...

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Ulcerative Colitis
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Posted 9/18/2008 8:32 PM (GMT 0)
I keep asking so may questions so thought I'd get them into this in email - sorry for troubling you but was wondering if you knew the answers to the following:

1. What is the significance of having mucous?

I get have it come out with lots of wind that feels almost like a bowel movement.

2. What is the significance of having Blood?

I get have it come out intermittently, maybe it's the food that causes it?

3. I have had wind in my stomach but why do I have so much rumbling noise and so much wind in my rectum?

How bizarre that I should have that, could it be he fibre supplements?

4. How long should I give the rectal meds? (one for for my fave Quincy)

It's been 10 days and I have only noticed slight improvement but no difference in mucous and wind. If the blood goes away and then comes back does it mean it is slowly working or has it just stopped working?

Many thanks and God bless.

LR

Posted 9/18/2008 8:57 PM (GMT 0)
1. it's the nature of the disease, excess mucus can also be a symptom for IBSers as well.

2. bleeding, also the nature of the disease, usually from ulcers or even internal hemheroides.

3. fibre supplements most definitely cause increased gas and even bloating, which is completely normal and this happens to healthy people as well, be patient and continue taking them daily, it took my system 3 months to adjust and then all my bloating went away and gas cut waaaaay down, and I still take them daily as directed by my GI to do so indefinitely, flaring or not.

4. 10 days would not likely be near enough time for one to notice great improvements, again, be patient...the worse the proctitis the longer it takes to heal so contiune with your rectal meds until things have improved AND THEN wean off of them.

:)
Posted 9/18/2008 9:00 PM (GMT 0)
Thanks pb4 - you are so very kind.
Posted 9/18/2008 9:10 PM (GMT 0)
I agree with pb.  If I might add....I have been in a flare since April.  The last two days I didn't notice ANY blood in the stool (hope I didn't just jinx myself).  I've been on Cort enemas alternate nights with Canasa since beginning of flare.  Down to 5 mgm of prednisone, 50 mgm of 6MP and six Colazal daily.  Also taking probiotic (powerdolphilus), daily vitamin, fish oil capsule, flaxseed oil capsule and calcium...gag.  OH...blood pressure meds too!
Posted 9/18/2008 10:04 PM (GMT 0)
You're welcome londonred and I ditto what christine says about probiotics, daily and indefinitely like with fibre supplements.

:)
Posted 9/18/2008 10:12 PM (GMT 0)
Rueteri didn't agree with me. And Natren are not vegetarian. What's a good powerful one a day probiotic for IBDers?
Posted 9/19/2008 12:57 AM (GMT 0)
What issues did you have with rueteri...and was it primadophilus reuteri made by natures way that you tried and had issues with?

VSL3 is suppose to be #1 for probiotics out there especially for IBD, trials on UCers and VSL3 have been done with great success for the majority, most even going into complete remission while the rest noted improvements of sorts.

:)
Posted 9/19/2008 4:07 AM (GMT 0)
I think you posted those questions in the past and I answered them then.

But, in case these are different,,,

1) inflammation or irritation caused by stress or spasming.

2) friability which is fragility. The tissue is fragile enough to bleed due to inflammation. Hemmies or a fissure can also cause bleeding as does other things, but they wouldn't pertain to you since your last c-scope was within the last month.

3) Yes, it could be fibre supplements, what you just ate, stress, rectal inflammation....

4) 10 days isn't near enough time....and I still think you should be on oral plus rectal.

hope this helps.
q
Posted 9/19/2008 4:33 AM (GMT 0)
I am going to push my doctor for me to restart on Asacol in the mornings and rectal at night. Will also try the VSL#3 but it is so expensive to have long term - maybe I can have a month's course of it? The Primadophilus Reuteri by Natures Way gave me stomach cramps but I would be interested to hear other people's view on it.

I am going to try Reiki today for the stress.

Posted 9/19/2008 4:43 AM (GMT 0)
Some people do experiance "die off" symptoms when first taking probiotics, this could be what your cramps are from.

:)
Posted 9/19/2008 5:44 AM (GMT 0)
I threw away the pack maybe I need to buy another one. The whole probiotic thing is so confusing...and so expensive.
Posted 9/19/2008 1:52 PM (GMT 0)
Maybe you should also consider culterelle, bearing in mind what pb4 said...and it's not that expensive.

NBT
Posted 9/19/2008 2:08 PM (GMT 0)
I am going to go for VSL3 for a month then settle for a cheaper probiotic.
Posted 9/19/2008 2:51 PM (GMT 0)
Have you tried ordering probiotics online?  I ordered mine from countrylife.
Posted 9/19/2008 7:29 PM (GMT 0)
I think I am, going to order the VSL#3 and have that for a month and then get something common like Natren or Culterelle.

I am having so much mucous it is unreal and the blood is pooling up and coming out with each BM but always seperate from the stool. I missed the suppository last night by mistake but will use it tonight.
Posted 9/20/2008 1:20 AM (GMT 0)
LondonRed your experience with the pooled mucus and blood is exactly what I get in a flare - gas, which then pushes mucus and blood out. Be patient - the rectal meds will squash that over time. It took almost a month last time for me, and almost 2 months of rectal meds total, but it worked and the problem hasn't come back, 9 months later.
Posted 9/20/2008 8:02 AM (GMT 0)
That's reassuring Mitzo and like my flares are always triggered but antibiotics and medicine. I get so much gas and then that gas pushes out mucous and blood. I don't get huge amounts of blood, but it's there. I have been on rectal meds for 12 days now and it's still the same. I have weaned off the steroids now and am at 1 every 4 days (5mg only).
Posted 9/20/2008 10:14 AM (GMT 0)

Hi Londonred,

Sounds like we're in similar boats.....

I had to hound my consultant to let me try rectal meds. Firstly he gave me the predfoam a long time ago, but that stuff is a nightmare to keep in!

Eventually, he let me try Pentasa suppositories.  Despite the oral pred being less and less effective each flare, and the Asacol, in my opinion, doing absolutely nothing for me. The best result I have had for a long time came after using the suppositories, but it did take about 14-20 days for significant improvement.

Stick with it - they'll kick in soon.  I'm also just trying VSL#3. Been on it for about 10 days now, along with JarroDophillus E/C coated capsules.  noticed some die off, but I do genuinely think they are doing some good in there - i'll let you know!

Good luck

Craig

Posted 9/20/2008 10:59 AM (GMT 0)
I am desperate for the VSL#3 - I have asked my doctors to prescribe it and if they don't then I will buy it.

Thanks guys, looks like I need to give the rectal meds a month and then take it from there.
Posted 9/21/2008 4:49 PM (GMT 0)
Is there a factual or pathological reason for mucous discharge on it's own? Or is it like blood just a sign of something wrong?

Posted 9/21/2008 6:15 PM (GMT 0)
http://symptoms.wrongdiagnosis.com/cosymptoms/mucus-symptoms/rectal-discharge.htm

See what you come up with if you go through the process...interesting, but possibilities don't mean that's what it is.

q

Posted 9/21/2008 7:16 PM (GMT 0)
It say Hemmorroids or Proctitis - both of which I have!
Posted 9/22/2008 12:40 AM (GMT 0)
heres one reason why there is mucous from the ccfa website; The disease is marked by inflammation and ulceration of the colon mucosa, or innermost lining. Tiny open sores, or ulcers, form on the surface of the lining, where they bleed and produce pus and mucus. Because the inflammation makes the colon empty frequently, symptoms typically include diarrhea (sometimes bloody) and often crampy abdominal pain.
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