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Carbohydrate Intolerance Test

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Posted 9/24/2008 11:25 PM (GMT 0)

To make a very long story short:  I have basically been flaring non-stop since July with only a let-up of the bleeding/diarrhea for a few days in a row, but never a total resolution of it.  I have been using Canasa, Rowasa, etc.  I cannot tolerate the Pred anymore as I get swollen ankles so bad I can't walk (among other delightful things).  Anyway, I had a CT of the abdomen last Monday which my Dr says was "essentially normal."  Yesterday I had an upper and lower endoscopy and he said things visually "looked good" but of course the biopsies are pending.  My main problem on top of the nonstop diarrhea/bleeding is intolerable left-sided pain whenever I eat (a few minutes after) and the number of "accidents" I have every day.  Today they scheduled me for a "carbohydrate intolerance test" next week.  They will be testing me for fructose intolerance first and lactose intolerance the next week.  I honestly don't think I have a lactose intolerance because sometimes when I am really sick all I eat is dairy (specifically ice cream, yogurt) and I actually get better in a couple of days.  Anyone had any experience with these tests??? 

Posted 9/25/2008 12:12 AM (GMT 0)
Hi,
they tested me and I came up positive for glucose intolerance. Which explained alot. I always felt sick after eating and since I'm not eating sugar anymore I'm feeling much better. When I do feel ill, I can trace it back to fruit that was too sweet (bananas especially). I've really cut back on my carbs too since my doctor said that would help too, and it has. They found out mine through a blood test, is that what they are doing for you?
Posted 9/25/2008 12:19 AM (GMT 0)
No, I have to drink some fructose-infused liquid and then I blow in a breathalyzer every 30 min for 3 hours total.  (I have to stay in the waiting area for three hours and they call me back for the testing.) This is how they measure the amount of fructose that is not absorbed.

Posted 9/25/2008 2:32 PM (GMT 0)

It's really good they are testing you for that I guess you are in the US I would love to be tested for that in the UK.

RE Lactose in cheese yoghurt etc the lactose is eaten up by the bacteria so none or little is left for you to react to milk however has loads which a lot of people react to.

I've never even heard of the carbohydrate intolerance test how does that work there are hundreds if not thousands of IBDers on a diet that specifically excludes carbohydrates however I guess it would be nice to have a test to see if you are not digesting or reacting to them...

Please keep us updated on how you get on and how they do the tests.

Posted 9/25/2008 2:46 PM (GMT 0)
I've been tested for celiac etc but not for carbs overall...a carb specific test never been mentioned to me..I'd be very curious to see how I did on that as I eat lots of carbs but also with a good balance of protiens etc
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