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Bentyl - I am just sooo tickled! :)

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Ulcerative Colitis
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Posted 11/9/2008 5:20 PM (GMT 0)
You know what?  In the whole 16 years I've had Uc, I have never ever tried an anti-spasmodic and I honestly don't know why I waited so long!  I am just tickled over the fact that it has been working so well these past few days.  I can now enjoy my morning coffee without that horrible liquid goo feeling in my gut!  My Uc has been eh, ok so so at the moment.  Not quite remission but not quite a flare and the only thing that was truly bothering me was the cramping.  So I am just so happy to have that awful icky gooey pain gone.  yeah    Anyway, just thought I would share! smilewinkgrin
Posted 11/9/2008 5:48 PM (GMT 0)
Good to hear it Sherry, I have never tried one either thinking I didnt want to add another med but I am thinking of asking my doctor about trying one. Im doing pretty good now but I have this jerky feeling in my tummy and some cramping will it help with that?
Posted 11/9/2008 8:10 PM (GMT 0)
It should Rona and I know what you mean about another med, maybe that is why I resisted for so long. This is the first time in I don't know how long that I can actually go about my day and not even KNOW that my colon is in there. It's sweet! :) Of course I can feel it again when the Bentyl wears off but at least I get 6 hours of reprieve - but I can always take another one if it gets bad enough.
Posted 11/9/2008 10:11 PM (GMT 0)
ok I think I will give it a try. did you have any trouble getting a script from your doctor
Posted 11/9/2008 11:08 PM (GMT 0)
Glad you are feeling better, Sherry.  So does this medicine help w/ pain?  I'm in the market for pain meds - tired of my bottom always hurting as well as my tummy and even my chest area sometimes I wonder if I am fixing to have a heart attack.  I know my cholestrol is good and we did a ct scan on my tummy and lungs and my lungs are good amazingly enough after 36 yrs of smoking.  So let me know you guys as far as pain meds if you don't mind!

Now, time to relax tonight  - had our 2 grandaughters over night, Brianna 3 and Makyla 2 - whew grandma is tired!

Gigi1227

Posted 11/9/2008 11:15 PM (GMT 0)
I always wondered about those anti-spasmodics too- do they relax the colon? I thought they sort of paralyzed it, stopping peristalsis, which would lead to constipation. No? So you take it & just don't feel your gut all day, but you still go to the bathroom as often? I've been thinking about talking to my GI about them- I don't have pain, & most of the time I'm not aware of my gut thruout the day. So I don't know if I'd be a good candidate for them.

Posted 11/9/2008 11:21 PM (GMT 0)
I tried it but it made me loopy for some reason
Posted 11/10/2008 12:11 AM (GMT 0)
I am still able to go to the bathroom but now instead of having 1 semi solid and 2 D in the mornings, I am now down to 1-2 semi-solids a day. Plus too, like I said, it has stopped the cramping and that horrible icky feeling. I believe they help relax the colon and according to my prescrition, I can take one every 6 hours and my GI's instructions were to take one - 10mg dose in the morning (which is the hardest on me) and if I feel the need to have another dose 6 hours later then that is fine too. I read the pamplet that comes with it and it says that if you should experience constipation to drink more water or start/up your fiber intake. So far I haven't had that problem. And no, I didn't have a problem with him writing the script - in fact he is the one that offered it to me. I believe that anti-spasmodics are fairly commonly presribed for Ibd'ers as well as Ibs'ers.

Gigi, I haven't had much pain in a while. My problem is mostly with the cramping so I don't know if it will help with the pain. If you are in a lot of pain, most GI's won't hesitate to prescribe you Darvocet if Tylonel doesn't work. Of course you don't want to take to many of them because narcotic pain meds can have an adverse reaction by slowing your colon down too much. I am in that cross road right now. Narcotic pain meds slow me down too much that they severely constipate me. But some people don't have any issues with them so it's one of those things.
Posted 11/10/2008 12:49 AM (GMT 0)
Red, does it help out with the mucus or watery movements at night....that is my biggest complaint....the watery clear fluid a couple of times during the day and once at night.....no stool...just cloudy mucus like fluid
Posted 11/10/2008 1:12 AM (GMT 0)
No idea :( I don't have that issue so I can't help you there.
Posted 11/10/2008 8:02 AM (GMT 0)
that's why a few of us suggest them. rolleyes

Happy you feel better Sherry!

The aren't like lomotil or imodium that can imobilise the colon...although a high dosage too often could do the same thing...

I would suggest you try them landcruiser....because antispasmodics can help IBS..which is what you might have as well.



q

Posted 11/10/2008 12:31 PM (GMT 0)
Lol I know you smacked our heads numerous times with the suggestion Q and truthfully, I had some issues in the past with cramping but I had other symptoms too. I always felt that if I could get the symptoms under control then the cramping would ease. And for the most part that is true. Except for some reason this time, I have very little symptoms but the cramping was getting intense. Which is why I decided to go ahead and give it a go. And yes, Heather - we DO listen to you believe it or not - well at least I do (sometimes)  turn   I'm kidding - we really do appreciate the good advice you give us.
Posted 11/10/2008 3:02 PM (GMT 0)

But Quincy, I got this from the patient info sheet on Bentyl:

Use with caution in patients with:

  1. Autonomic neuropathy
  2. Hepatic or renal disease
  3. Ulcerative colitis-large doses may suppress intestinal motility to the point of producing a paralytic ileus and the use of this drug may precipitate or aggravate the serious complication of toxic megacolon (see CONTRAINDICATIONS)

(there were other conditions listed, but I just selected up to UC) Anyway, so it must immobilize the colon somewhat. Truthfully I don't think I need one of these- I rarely get cramps, only during a bm, & thruout the day I'm not too aware of my colon. It's funny how each of us suffer from such different symptoms. 

Posted 11/10/2008 3:31 PM (GMT 0)
i swear by bentyl, take 20mg daily
Posted 11/10/2008 5:29 PM (GMT 0)
thanks for sharing sherry i guess i'll start taking mine since it seems to be helping you i was just scared to start it. but i still have bleeding and alot of mucus.
Posted 11/10/2008 5:34 PM (GMT 0)
Eva Lou...what constitutes large dosages??? some patients take meds without consideration of what's suggested...10mg or 20mg up to 3 or 4 times a day won't imobilise the colon...

But, for patients who are already on the way with megacolon...it'll definitely cause complications.

I'd suggest that way over lomotil.....although it has its place as well.

q
Posted 11/10/2008 7:51 PM (GMT 0)
Quincy, as I have said in other posts, my last scope ( end of August) showed only mild inflammation and the Gi said I shoul dbe feeling great.  Anyway, as I continue to complain about the watery, cloudy ( No stool) expulsions, he keeps telling me that so much of this is due to IBS.  I keep telling him that waking up in the middle of the night to let a fluid bomb go does not seem like IBS to me, but he says that it could be.  Now you are saying that this may be a cause of some of my issues.  I was a little loose last week and took some Pepto for the first time in forever.  I only took one dose as I was scared of doing somethin wrong.  You know what...I did not go for a whole day, and when I did it was formed...still has some fluid with it.  Is it possible that all of this is IBS?  I just can not think that it is, but first my doc and now you.....I am really not sure what to do.  He wants to start me on methotrexate on Wed, since my latest Remi produced the same results....It made me so much worse for one week.  IBS is so open for discussion....can it cause watery movements?  If what stool comes out is formed but there is mucus and some pink tinge is that from my internal heemies which are numerous.....can you just have light pink mucus from hemmies from straining and sitting while constipated?  it just drives me nuts....I dont want to go on another toxic med if all I have remaining is IBS.....maybe I should try the bentyl....do you or anyone else think this is plausible?  No pain...no D...some gas....occasional gurgling...no violent D or Violent bleeding at all.....just the nuisance watery expulsions....I have to say the last thre dyas have been the best I have felt....I have yet to have a

Posted 11/11/2008 9:21 AM (GMT 0)
Hi landcruiser....spasming in the colon can cause it to eliminate in a hurry. It's like it's out of control. But, you have no pain, which is interesting.

More interesting is that Pepto worked for you...it's a salicylate, as 5ASA meds are...but those with microscopic colitis do find relief when using Pepto.

Were you checked for microscopic colitis during your last c-scope and were biopsies taken? Can't remember.

Some who have microscopic colitis are relieved from changes in their diets.

Are you taking any fibre supplements?

You're right...IBS is so open for discussion...but it does not cause inflammation. I remember one important point my doc said about visual symptoms vs patient symptoms...sometimes they don't match. When you said you have mild inflammation...how high was it into the colon...throughout?

Light pink mucus around the stool would signify bleeding somewhere....is it all the time?
Definitely it could be from the hemmies...which are exacerbated from the straining/pressure/pushing. Are you using any rectal meds to help heal the hemmies?

Hey, it's worth the try for the Bentyl...low dosage, just to see if it helps.

Have you been checked for celiac disease?? Are your movements frothy?

Have you tried Kaopectate? It could help if you're salicylate sensitive.

the game's afoot!

q
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