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Ulcerative Colitis
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Posted 1/29/2009 3:18 AM (GMT 0)
I have had UC for almost 2 years. I find it so hard to deal with. My boyfriend has been great through this hole thing. But its still hard to talk to him about it. Or more like anyone. I cant talk to my dr's about it because i dont have the money to see them. My family have been really understanding about the hole thing. But its still hard. I go over there for dinner or something and whatever it was they made i cant have. I have never been the kind of person that has to have it their way or that they wanted to make a big deal about something. One of the worst parts is going to my boyfriends moms for dinner. Mostly whatever she makes i cant have. She trys and i always feel bad that i have to say i cant have it. But i really dont have a choice. Its that or when my bf and i are driving home im going to poop in my pants. I just dont know what to do about any of this. People act like they know what im going through. Or sometimes that they care. But they really dont. They dont know what its like to be 24 and be pooping their pants, or running to the bathroom all the time, or not be able to do so many things because you might have to go, or even being in pain when your going to the bathroom. Im always praying to God to help me deal with this. I know i need to except this but I dont know how. There are so many foods I love that I can no longer have. More than most are my favorite kinds of food. I really dont know how my bf handles all this all the time. All i know is that I need help with this. I need someone to talk to that can help me deal. Someone that knows what i am going through day after day.
Posted 1/29/2009 3:35 AM (GMT 0)

Yes, it is difficult especially if you are not seeing a doctor.  Is there some way you can go to a clinic or get help from your family.  Tell us a little more about what medications you take etc.  There is a lot of help here - very nice - young and old (like me).  We understand. 

ElaineNY

Posted 1/29/2009 3:42 AM (GMT 0)
I am almost 23 and I feel like you were speaking for me. Even down to the not being about to talk to a doctor about it... I dont have insurance :/ Life is hard and sometimes harder...we should be friends.
Posted 1/29/2009 4:06 AM (GMT 0)
I don't have insurance either but I had to suck it up and pay cash to see a GI. She gave me some meds that were helping but the past couple days have been rough. I feel like I am back at square one just on a lot of medication and losing hair. I know exactly how you feel. I was able to eat what I wanted a week ago when I was feeling good but now that I feel bad again, I have to be careful. If I were you, I would pay and go see a GI. If you can get this under control, you can stop worrying about pooing yourself. I was not at all worried about pooping myself a week ago but today I had some friends over for dinner and I Had to run to the toilet 3 or 4 times because I felt like I would crap myself. I guess I shouldn't entertain guests if I am flaring. At least I had a good time. I am happy I saw my friends, I am thankful we didn't go out and most thankful that I didn't poop my pants. I can't believe I worry about this stuff at my age, it is really backwards but I guess it is the cards I have been dealt so I have to deal with it and keep hoping I get better again soon. Appreciate each and every good day. Mine seem to be few and far between. 
Posted 1/29/2009 4:45 AM (GMT 0)
UC is bad enough with meds...God bless you guys and I would check into a county hospital for treatment and meds...please get some help
Posted 1/29/2009 12:36 PM (GMT 0)

I just wanted to let you know that you and all the others w/out insurance are in my thoughts and prayers.  This is a very difficult disease to live with and I am fortunate to have insurance right now.  Stay close to HW to learn and give and receive support.

gigi1227

Posted 1/29/2009 1:16 PM (GMT 0)

      I just cannot imagine having to go through this without insurance.  My daughter's boyfriend's brother just got diagnosed with Crohn's and was very sick last summer when he was between jobs with NO insurance.  This poor guy is married and the father of two.  He carried insurance on his daughters but none on his wife and himself, which I think was foolish, but anyway he now is paying $440 a month on a hospital bill which was over ten grand.

     Let's hope and pray this new administration will help people in your situation Sweetpea.  I think this new president has a LOT of great ideas.  Let's all pray that he is able to carry them through.

Posted 1/29/2009 1:20 PM (GMT 0)
Amen, Christine!

Gigi1227
Posted 1/29/2009 1:22 PM (GMT 0)
Hi and welcome to Healingwell :) Hey guess what?! You are NOT alone anymore because you found us! :) Yes we are the ones that can actually TRULY relate to what you are going thru.

Feel free to vent, share your frustrations, cry on our cyber shoulders or ask questions.

Posted 1/29/2009 3:38 PM (GMT 0)
I have been dealing with UC all my adult life. Diagnosed at 17 and im 35 now. This disease has no rhyme or reason. I have been exactly where you are at hundreds of time. My BF at the time , now my hubby of 15 years, dealt with it great. Probably better than I did and still do. Of course he isnt the one going through the symptom BUT I have crapped my pants in front of him, in his truck when we couldnt make it anywhere, had to interrupt lovemaking to run to the bathroom, and he has helped me clean up more times than I care to count. So I guess in a way, he does go thru the symptoms with me. If it wasnt for him letting me vent I dont know what I would do. But that is about where it ends. I cant talk to anyone else about all this. It is very humiliatling and unless someone is going thru it they cant possible understand. Thats why this forum is so great. Even if you dont post anything, just reading what others have to say is very helpful and comforting. I, and just about everyone else on here, have been thru just about anything that you can imagine so if you need any advice (I have found) this is the place to get it. Also, keep your faith! God listens. And remember, Character is built thru adversity.

Lisa
Posted 1/29/2009 3:47 PM (GMT 0)
Sweetpea, one of the things I learned during a really long flare was to make sure I was always near a bathroom 10 minutes after I ate. That was routinely when I began to feel the urge. As soon as that happened, I would excuse myself, go to the bathroom and go. You might see if you have a pattern, and plan to be there long enough to go before you leave. Then you may be able to make it home.

If this doesn't work, you might explain to family members that you really don't eat or don't eat much when you're away from home because of your health issues. Then eat a couple of hours before you go and limit how much you eat while out. It's a pain in the butt, but sometimes the option is to become a recluse and never go anywhere.
Posted 1/29/2009 4:30 PM (GMT 0)
Im on Asacol and I take Vitamins. I have tried getting some help but it dont really seem to work. When i was living in NC (where this all started) the dr i had out there i loved. She was willing to work with me. To help me see her and get help. But now that i have moved back to OR the dr. i see now is not to nice. I would rather go through all this than see her. But I do know one thing. that is everything works out in the end. Its just trying to get through thats the hard part.
Posted 1/29/2009 8:36 PM (GMT 0)
All doctor and hospital charges are negotiable.
See if you can pay what they usually get from insurance. The way insurance works, the insurance companies negotiate a smaller rate and then the doctors will try to "cost shift" it to those who don't have insurance. So an appointment might be $100, but they only get $40 from insurance, so see if they'll let you pay what they get from insurance. Be nice, show up in person to try to make an appointment, look pained, tell them you work but can't afford insurance. Ask to use the bathroom, use it, then a few minutes later ask to use it again. I'm serious, it's worth a try.
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