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Posted 2/16/2009 12:57 PM (GMT 0)
ok..this may sound a little crazy, but i have been thinking about writing to Oprah about this awful disease and maybe she would do a show about it. she seems to have a huge influence on the world today and maybe she could help get the word out there for people like us. maybe even give us some direction. can you imagine us all on stage telling our stories? i think it's a great idea. anyone on board? who knows...maybe she would give some of her millions to help find a cure idea

rowana

Posted 2/16/2009 1:34 PM (GMT 0)
I've been writing her for a couple years now. So far, no go. I've even written to Montel Williams, but his show is off the air now.
Posted 2/16/2009 1:38 PM (GMT 0)
well that sux! so much for that idea! i still think it would be a great show. guess she doesn't have enough bathrooms for us all;)
Posted 2/16/2009 1:41 PM (GMT 0)
No by all means, go ahead and submit a story! I think that if we have enough people writing her, they might give it consideration.
Posted 2/16/2009 3:12 PM (GMT 0)
yeah...i was thinking that too actually. did you send her a letter in the mail, or an email?
Posted 2/16/2009 4:25 PM (GMT 0)
Oh, do it!!  The more people who write to her, the better!  I think I'll try it to just to add to the volume of emails.  This disease NEEDS exposure!!!

Posted 2/16/2009 4:37 PM (GMT 0)
I think I just might do it as well. I thought about it before. People need to know about this. I never did before it happened to me. I wish I would have known before hand about it. Or at least had some idea about it. And if we all started to wright about this to her than She would have to put us on the show.
Posted 2/16/2009 4:46 PM (GMT 0)
If Oprah doesn't care, there is always Maury. But then again, that might not be the best avenue to discuss our disease with the public at large.
Posted 2/16/2009 4:51 PM (GMT 0)
There is Trya Banks show, Rachel Ray show, and the boonie hunt show. Oh and dont forget about the ellen shoe.
Posted 2/16/2009 5:38 PM (GMT 0)
I usually use the online submission page when I send my story into Oprah.
Posted 2/16/2009 5:42 PM (GMT 0)
I think it's a great idea! I would be happy to share my story.
Posted 2/16/2009 5:54 PM (GMT 0)
Yeah, just don't go with Dr. Phil!! He actually did a segment on his show about IBD once and gave horrible misinformation. Saying stuff about how people do not go to the bathroom 20+ times, it's just not normal, and that blood isn't something to worry about; just ridiculous stuff like that. 

There was a message board on his website with a bunch of IBD'ers going off about how inaccurate it was. I don't know why this guy calls himself a doctor.

Posted 2/16/2009 5:59 PM (GMT 0)
I heard somewhere that he really isnt one. I have never liked his show. And to me this just gives me one more reason.
Posted 2/16/2009 6:07 PM (GMT 0)
Ok so Im on the oprahs web sit looking to wright her. If you go where it says be on the show and hit where it says health. There is one where it says Do you have an embarrassing medical problem?. Well I think UC works for one lol.
Posted 2/16/2009 6:33 PM (GMT 0)
Jerry Springer: You are not the father but you have IBD!
Posted 2/16/2009 6:44 PM (GMT 0)
lol Thats just want we need. That would be the best one. lol
Posted 2/16/2009 7:49 PM (GMT 0)
Dr. Phil is basically a fraud; he had his license revoked years ago. (check out his wikipedia page)

Is there anyway we can contact Dr. Oz as well (since he's always there on when Oprah talks about health problems)? If we keep flooding her email, maybe she'll do a show on it.
Posted 2/16/2009 7:57 PM (GMT 0)
I'm curious what exactly would you want the public to know about UC or CD?

q
Posted 2/16/2009 8:07 PM (GMT 0)
I would just want the public made aware that such a condition(s) even exists. Maybe even understand (a little) of what we have to endure every day. IBD is not a glamourized condition due to obvious reasons and many people that have it are afraid to speak out due to close mindedness of the society.
Posted 2/16/2009 8:33 PM (GMT 0)
Plus before I ever got it I had no idea that these kinds of things happen. It was the end of the world as I knew it. I really think if i had any idea about it before it all happend to me if would have been a little easier for me. Plus so that way people that do have it and they feel like they are the only ones that have it, they could see that they are not and that there are even faces to people that have it. It could be real and they could feel like there is someone like them. and they could maybe feel a little normal. I know thats what this web sit has done for me.
Posted 2/16/2009 11:01 PM (GMT 0)
Awareness - more money for a cure/better treatment - more compassion and understanding about making more public bathrooms available.
Posted 2/16/2009 11:08 PM (GMT 0)
Maybe it could be along the lines of the story in MORE magazine (although I suppose that is a competitor) this month called "Ill in a Day's Work" about what it's like trying to work when you have a chronic disease. I posted about it on a weekend a while ago, it's the issue out now with Emma Thompson on it.
Anyway, make it a little broader than just UC.
Posted 2/16/2009 11:08 PM (GMT 0)
How about that new show "The Doctors" that covers just medical topics? It's on the same time as Oprah here in Baltimore.
Posted 2/17/2009 12:04 AM (GMT 0)
I think if ALL of us started trying to get these people to do a show about it or even articles on it, it would do some good.
Posted 2/17/2009 12:06 AM (GMT 0)

FitzyK23 said...
Awareness - more money for a cure/better treatment - more compassion and understanding about making more public bathrooms available.

clean bathrooms too lol.
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