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Low Dose Naltrexone helps autoimmune/chrons/uc and numerous other disease

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Ulcerative Colitis
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Posted 2/18/2009 2:27 PM (GMT 0)

Dr. A, what happened with the study you were on? I'm sorry I didn't follow it all the way through.

Linda

Posted 2/18/2009 3:13 PM (GMT 0)

glamourgirl,

I have a question regarding your conversation with the pharmacist at Irmat in NY. You were trying to get some answers on how alcohol would effect you if you were taking LDN.

glamourgirl said...
 I was thinking of calling Skip's to get their take on it and just see if a few drinks would make me sick or if it would have to be A LOT of drinks..lol.  What do they mean by sick, did Dr. S. say?  Is it puking, yucky or just feeling hungover?

Like you, I'm a wine enthusiast. I'm currently taking Enbrel (for arthritis/spondyloarthritis) and I had to recently add methotrexate, for which alcohol is almost forbidden. So I'm looking into alternate therapies and LDN interests me. I've mentioned it to my rheumatologist, who said he would "look into it." We'll see...

 

So, did the pharmacist in NY give you any specifics regarding the effects of drinking alcohol?

 

Thanks,

Jan

Posted 2/18/2009 3:57 PM (GMT 0)
Jan, she said that she wasn't going to tell me it's okay but she does have patients that have a few glasses of wine and are fine. The ill effects from it if you drink in excess are nausea and vomiting. I feel like an idiot asking about being able to drink but it's just such a big part of my life. I'm not an alcoholic by any means but I do enjoy a few glasses of wine a couple of times a week. To me it's all about quality of life and if I can't enjoy the things that I like (eat the foods I want, drink the things I want to drink, go the places I want to go), then I haven't fixed the disease.

Last night was my first dose so I'm planning to wait a few weeks before I attempt to have a glass of wine. I've been feeling really crappy the last few days so I'm hoping the LDN will help soon to at least get rid of my yucky/flu like feelings. Once I'm feeling better, I'll give the wine a try.
Posted 2/18/2009 5:20 PM (GMT 0)

glamourgirl,

Your comments about wine and quality of life could have been written by me!! Thanks for replying.

I'll keep watching your progress with the LDN, although at this time, my questionably-diagnosed IBD isn't my main physical ailment; it's the spondyloarthropathy that kicks my butt! I've been following the progress of some spondy folks using LDN on some of those websites, but I haven't really seen the topic of alcohol brought up.

Good luck to you with LDN! I hope you feel better soon.

Jan

Posted 2/20/2009 12:52 AM (GMT 0)
I hade an appt with a doc who will prescribe LDN, and I got my scrip, but he also loaded me up with supplements. My goal is to be taking fewer pills, and this doc wants me taking more pills, more often throughout the day. Kinda annoying.

Regardless of the supplements, I should get my LDN in the mail in the next couple of days. I'm very excited to try this out. I'll keep y'all updated on how it is working.
Posted 2/20/2009 2:36 PM (GMT 0)

what supplements is he loading up with? Also, did he talk about testing for yeast or bacteria? LDN helps witht he symptoms it does not cure or heal UC is from what I'm told, so you still need to get to the cause of the problem. What does are you starting at also?

I'm on week 6 and now at 3mg. I have a cold which I haven't had in years! They (LDN Forum) says this is good b/c the immune system is doing a shift and getting balanced. It's not uncommon to get a cold they said. I really feel terrible right now and I'm leaving for vacation, 5 hour flight, tomorrow. I'm doing zinc and vitamin C right now.

Thanks for the post

Posted 2/20/2009 3:09 PM (GMT 0)
I hope you're feeling better for your trip, that's a bummer.

I started feeling really yucky the beginning of the week (before taking LDN), the whole chills, body aches, etc.  I know it's from the UC and not a cold or flu.  I'm feeling better each day but last night I slept 10 hours.  I thought LDN was supposed to cause insomnia. lol.  Last night was my 3rd night taking it and I could not get up this morning.  I took it at 11:00 so tonight I'm going to take it a few hours earlier in hopes that I can get my butt out of bed earlier tomorrow.  I don't know if it's the LDN or the fact that I'm not feeling well but all I want to do is sleep!  Dr. Sullivan said that any sleep issues usually resolve within a few weeks though so I'm not too worried about it.

Posted 2/20/2009 5:26 PM (GMT 0)
How long does it take to get accepted on the Yahoo group? I just signed up this morning.
Posted 5/24/2010 3:44 PM (GMT 0)
Low Dose Naltrexone

LDN

Hello, Just signed up, hope I'm in the right place.
I've had UC for 15 yrs it has been quite the adventure!
I have lived on steroids, not eaten fruits or vegetables for years, lost 30 pounds at a time, been in massive pain and bleeding (dark and bright red), not to mention all the bathroom fun.

about 2 years ago I was on 150mg 6mp, 10 Asacol, and intermittent Prednisone, still dealing with the fore mentioned symptoms. Well, I heard about pig whip worms and gave them a try. The bleeding stopped, my scared colon healed (I have the pictures), and I could eat chocolate, fruit, vegetables, I'm currently taking 50mg 6mp and 5Asacol, and my auto insurance went down (just seeing if your paying attention LOL).

TSO has changed my life for the better, I am not cured by any means but my quality of life is substantially better. Now, this stuff is very expensive but worth it to me. I know now there are ways to subdue this beast, so I keep searching.

Now to get to the point I found out about LDN on line and I have been on it now for 1 week 3.0mg, I know that it clashes with 6mp but so far so good. I want to stay at this amount for a month than go to 4.5mg and start to reduce the 6mp and get off the worms(both are immuno-suppressors).

I know it is a shot in the dark, but I can go back to the worms, 6mp,and Asacol if I melt down.

If you have any insight into this or any questions, feel free to reply!


Thanks for reading,
The Seeker

Post Edited (The Seeker) : 5/24/2010 9:51:08 AM (GMT-6)

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