not sure how much longer i'll be on this forum.

I just wanted to say that I will be having the surgery on Tues March 3rd.   I will be having the surgery to remove my colon,  and jpouch formation.   I am nervous, and going crazy with the thoughts of "what if this" or "what if that" etc etc.  I know its the best thing for me in the long run,  but I am so nervous.    The thought of being cured from UC is so wonderful,  I just hope i don't have any major complications,  or problems with the jpouch or temporary ileostomy. Alos,  dreading the LONG long recovery process.... anyways,  just wanted to check in and let ya know whats up!  Hope you all are feeling well..

Again I understand,totally where your both coning from,my GI has has arranged a scope for next thursday and a chat with the surgeon,He arranged this last friday as I am anemic again,inflamatory markers are up to from nil to 24,and like you I have a carpet of polyps so my doc is saying its a case of when I have the surgery not if,a few months ago he offered me remicade,but I refused now hIe is saying he dosent want me to try it now and that it is only for crohns patients really.The strange thing is my colitis is actually not that bad at the momment,my main problem is extreme tiredness,and gennerally feeling unwell well anyway like ,you I work my life around it,but then I was rushed into hospital a year ago and narrowly escape having an emergency op,and that time I was'nt feeling as bad as I had been the year before.I don't know what to do I admire you both I'm trying to be brave and look at the situation logically but I just can't there is a voice inside me screaming run for the hills I don't know if its just fear.
Also I can't help thinking if I hang on as long as I can some new treatment may come along,although I may not have that choice and elective surgery would probably be better than waiting for an emergency situation I just can't see myself signing up for that,also if I have probs after the op or something goes wrong I'll be always blamming myself for not listening to my inner voice.
sorry for going on,one question,for you both did neither of you try imuran,its worked quite well for me so far keeping the worst symptoms at bay.

Annelise.G said...
Again I understand,totally where your both coning from,my GI has has arranged a scope for next thursday and a chat with the surgeon,He arranged this last friday as I am anemic again,inflamatory markers are up to from nil to 24,and like you I have a carpet of polyps so my doc is saying its a case of when I have the surgery not if,a few months ago he offered me remicade,but I refused now hIe is saying he dosent want me to try it now and that it is only for crohns patients really.The strange thing is my colitis is actually not that bad at the momment,my main problem is extreme tiredness,and gennerally feeling unwell well anyway like ,you I work my life around it,but then I was rushed into hospital a year ago and narrowly escape having an emergency op,and that time I was'nt feeling as bad as I had been the year before.I don't know what to do I admire you both I'm trying to be brave and look at the situation logically but I just can't there is a voice inside me screaming run for the hills I don't know if its just fear.
Also I can't help thinking if I hang on as long as I can some new treatment may come along,although I may not have that choice and elective surgery would probably be better than waiting for an emergency situation I just can't see myself signing up for that,also if I have probs after the op or something goes wrong I'll be always blamming myself for not listening to my inner voice.
sorry for going on,one question,for you both did neither of you try imuran,its worked quite well for me so far keeping the worst symptoms at bay.

Yep,  I had tried imuran,  i couldn't tolerate it at all.  When I'd take it,  within a half an hour,  I'd vomit everything in my stomach up.   I"m glad its working for ya!!

Christie,

The recovery is long but on the positive side you will deal with it by being healthy which makes it easier!  Your surgeon is right, be prepared for a 6 week recovery after step 1 but many of us were back with activities sooner.  I went back to work at 3 weeks post surgery.  Good luck!

Sue

Good luck, good luck, GOOD LUCK!!!!! I'm happy for you.

Lots of luck with the surgery!  Keep up posted on your progress.

Best of luck!

Keep us posted on your progress! Congrats :)

     The best of luck to you!  I'll keep you in my prayers.

Oh wow!! Good luck today, I'll be thinking of you and sending healing vibes your way. Hope everything goes perfectly and you have a smooth recovery. Keep us posted when you can.

I also have surgery planned on the 23 of March - feeling apprehensive but I've read lots of good stories on this, so hopefully it should be fine...

Can someone who's had surgery recently confirm whether a bowel preparation is necessary a day before the surgery?

I've just been advised to take a liquid fast 24 hours before and nothing to eat/drink after midnight - Does that sound right?

G

I had my colon removed in September of 2009 and had to do the Fleet prep the night before.
It may depend on what surgery is being done, too.

In my case they gave me the option of keeping my rectum and re-attaching the small intestine to it.  So I take the pentasa to treat the 8 inches or so of colon material that they left in.

My surgery was because of dysplasia (pre-cancer) found in my ascending colon after long-term UC and the surgeon let me keep those few inches because the dysplasia was in my ascending colon and my rectum and sigmoid colon both appeared to be clear of the disease.  By keeping the rectum it gives me a better quality of life, I think, but I have to go in yearly for a flex sig with biopsies.  I just had my second sigmoidoscopy since the surgery today and everthing checked out ok.  I just have to wait for the biopsy report but my GI doc said everything looked great!