Rectal Pain after J Pouch Surgery

I am looking for advice from people who have undergone stage 2 J pouch surgery where the rectal region has been literally dissected and connected to the J pouch for future voiding.  I am having more rectal pain than abdominal pain post surgery and no pain meds are even elevating any of the pressure or pain I feel when standing, sitting, lying on my side or urinating. 

 

We have an anesthesiologist in the family who told me that rectal pain is one of the worst pains to treat because of all the nerve endings and how they send signals to your spinal cord then to your brain to signal pain.  I guess that is why when I was on the epidural with the numbing agent I was comfortable in the hospital. 

 

I am looking to those who have found ways to relieve the pain rather than throwing in the towel and suffering from it.  I just can't believe that pain medication does nothing for this type of pain.  Nobody except those who have undergone this type of surgery can begin to understand what this pain feels like.  That is why I trust any methods that may have worked to make your recovery easier and more bearable. 

 

I am afraid that my surgeon will do an internal exam for the third time since surgery on Monday's Post surgical exam and make it that much worse.  He already did that twice in the hospital to make sure the "J was connected to the anus".  I thought it was a sick ploy to make me suffer longer but that is just my opinion since I did not start to bleed when I stood up until after his exam. 

 

Does this get any better?  Was this worth it?  Is there a light at the end of the tunnel?  How long until I feel like I can sit on my butt without feeling like I have a wooden stick stuck up there.   Geez, UC symptoms are looking like a close tie to this pain I am feeling in my rectum.  I guess the grass is always greener on the other side.

 

Thanks for your insight!!!!

 

 

You might have an infection...get it checked out and perhaps call in another specialist for a second opinion. Hope you feel better soon.

You were all right!  After a trip to the surgeon he advised I get things checked out back at the hospital under anesthesia since I could not tolerate an in office rectal exam.  He found an abcess filled with at least a liter of fluid.  Boy what a relief I felt when he drained it.  Now I have a drain and no abcess.  He also said that part of the J seperated from the anal wall due to the size of the abcess.  He advises now that I wait 6-9 mos before the connection surgery.  I am a little bummed I have to wait that long but he wants to be sure that the separation reattaches on its own without any further intervention.   Thanks for all your advice.  This site is a godsend.  Hope everyone enjoyed their Holiday this weekend. 

I had j pouch surgery 1 on Nov 5. No rectal pain til week 2 when access diagnosed. Drain and abs meant no rectal pain. I got an upper resp infect week 5 and the pain- the rectal pain bores in and is constant. It makes me want to do anything to get rid of ir. It makes me crazy. Went on abs 5 days now and no change. Ct showed still a 2 cm by .9 cm abcess and inflammation is way down.

I still have temp ileo and my original surgeon said pouchitis. My 2nd opinion said based on ct it's inflammation and separately I have a uri.

All I know is I'm going crazy. I had to stop abs day 5.5 because they were causing excruciating pain in abdomen and back and making me very nausepus. But the pain was completely overwhelming.

Don't know what to do. Help!!!