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Anyone here take no meds for thier UC? or close to no meds?

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Ulcerative Colitis
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Posted 4/19/2009 4:24 PM (GMT 0)
In addition to taking Probiotics every day, I also eat spinach and will eat nuts and seeds (including sunflower nut butter) from time to time.

There is nothing better than being med free and not having Colitis symptoms. I'm sure there are more people like me. They just don't hang around and keeping reading and posting on the forum.
Posted 4/19/2009 5:20 PM (GMT 0)

Thanks everyone, Thanks zippy

Thanks for asking that question. I really want to be med free. I just bought some bee pollen. I'm not allergic to honey. dont know about bees but I will try a small amount first and see. Its worth a go. anything is.

Posted 4/19/2009 8:59 PM (GMT 0)

subdued said...
In addition to taking Probiotics every day, I also eat spinach and will eat nuts and seeds (including sunflower nut butter) from time to time.

There is nothing better than being med free and not having Colitis symptoms. I'm sure there are more people like me. They just don't hang around and keeping reading and posting on the forum.

That's a good point. Heck if I didn't have any more colitis after a while I'd probably wouldn't say much on here either unless I knew for sure what cured me and wanted others to know.
Posted 4/20/2009 1:11 PM (GMT 0)
Like Cfromutah, I also do the spinach/sunflower diet and am completely med-free (I used to take 13 pills a day that did absolutely nothing).  My diet is slightly altered to suit my IBS - sunflower butter and more carrots than spinach - but still strictly follows the diet's principles.  I never ever thought I would be med-free, so this felt like a miracle.

Posted 4/20/2009 1:57 PM (GMT 0)
That is awesome some of you guys manage to get off the drugs. Now I have a question on your diets, do you guys avoid carbohydrates and sugars as well?
Posted 4/20/2009 1:58 PM (GMT 0)
I was interested in what Christine1946 said in her post about crab cakes and bubble baths. In what way is taking a bubble bath bad for Colitis? In my case it is very relaxing and I enjoy the aromatherapy aspect of it. I'm also wondering about crab cakes. Foods with onion and spices would definitely cause me some distress but depending on the receipe and the amount of oil the crab cake is cooked in, it may affect some Colitis sufferers. Plain crab legs is something I can eat, as is the case with most plain fish. Sometimes crab cakes are made with ingredients that may not agree with everyone such as mayonnaise, seasoned breadcrumbs, onion, eggs.... Other than that, I don't think avoiding crab cakes and bubble bath are the answers to curing Colitis
Posted 4/20/2009 2:24 PM (GMT 0)

Zippy123 said...
That is awesome some of you guys manage to get off the drugs. Now I have a question on your diets, do you guys avoid carbohydrates and sugars as well?

I try to go easy on the sugar for various reasons, but I absolutely must have carbs to keep my IBS in check. 
Posted 4/20/2009 2:28 PM (GMT 0)
I follow a gluten-free, low fat, and low sugar diet. I also keep spices to a minimum.
Posted 4/20/2009 2:30 PM (GMT 0)
I'm another who's been mostly in remission for years and only take a maintenance dose of an ASA. I manage my UC through a combination of supplements to reduce inflammation, encourage gut healing and clear bad gut flora, probiotics to restore good gut flora and diet.
Posted 4/20/2009 4:40 PM (GMT 0)

I am not taking any meds right now.  My symptoms started disappearing in Jan09 before I even was diagnosed; I didn't really do anything purposefully to "fix" things since I didn't even know what was wrong.  I had my colonoscopy in Jan09 which led to my diagnosis, and my GI prescribed 2 months of Asacol.  She was surprised that my symptoms had already cleared up before taking it, so she said to just take the 2 months' prescription and then stop and see what happens.  She didn't want me taking it if it did nothing for me.  I stopped over a month ago and so far everything is fine --- except when I drink alcohol!  So although I do take various supplements, it is obvious what I need to do to help remain symptom-free.

My best guess as to how I became symptom-free and how I can help maintain it?  Rest whenever I am tired (instead of stubbornly pushing through it as I used to do) and abstain from alcohol.

I haven't been doing this for very long, and I know I am not "cured", so I expect to have a flare again sooner or later; at that point I will surely be prescribed meds again and we will see what impact they have.

Posted 4/21/2009 3:42 PM (GMT 0)
I don't take any meds between flares and my fist two flares I didn't take anything and got into remission. The third flare I did take meds and was into remission within a couple of weeks.

My GI did state it wasn't necessary to take meds between flares.
Posted 4/21/2009 8:02 PM (GMT 0)
Better living through chemistry!
Do I wish I could be well without drugs? Frankly, it doesn't bother me to have to take medicine to feel better.
Posted 4/27/2009 8:03 PM (GMT 0)
I'd like to learn more about bee propolis - and how to get it in the UK. Managed to get into remission a year ago after refusing to take any more prednisolone as it caused depression. Under a lot of pressure at the time to step up to 6mp but refused and stuck with asacol and slippery elm bark...and it worked. Flare up in past few weeks because I cut the Asacol right down to 2 a day - bad idea - now under huge pressure from clinical team again to start taking azathioprine, which really scares me. Health care professionals here don't take other treatments seriuosly, and it's really hard to get information.
Posted 4/28/2009 4:03 PM (GMT 0)
You should be able to order Bee Propolis online from the UK. I would imagine the shipping might be more though.
You can try Vitacoast, iHerb, Puritains Pride, check and see if they have international shipping.
Posted 4/28/2009 9:25 PM (GMT 0)
I don't avoid carbohydrates at all. And I do eat a lot of fruit. While flaring I didn't eat fruit though because they really messed me up. I do avoid refined sugar but always did even before I got UC.
Posted 4/28/2009 10:13 PM (GMT 0)

Cfromutah said...
I don't avoid carbohydrates at all. And I do eat a lot of fruit. While flaring I didn't eat fruit though because they really messed me up. I do avoid refined sugar but always did even before I got UC.

Hi Cfromutah,

Try bananas, berries, pineapple, and citrus fruits.

I'm fructose intolerant and can eat these.

Apples, pears, peaches, honey, HFCS give me the most problems.
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