Has anyone here had a serious Remicade reaction?

Shelliesv

Regular Member

Joined : Apr 2009

Posts : 208

Posted 5/14/2009 10:02 AM (GMT 0)

I'm sitting in the hospital and panicking. They have run every test imaginable and I don't have any answers yet!

If anyone here has had a serious reaction, please let me know what it was and how it was treated.

My current symptoms are lung pain (poss pleurisy), fevers over 101, and night sweats.

Any info. you can share is greatly appreciated!

hana24

Regular Member

Joined : Dec 2007

Posts : 354

Posted 5/14/2009 4:40 PM (GMT 0)

Is it possible you have drug induced Lupus? I think that can be in your lungs. Did they decided if you have sepis?

Shelliesv

Regular Member

Joined : Apr 2009

Posts : 208

Posted 5/14/2009 10:14 PM (GMT 0)

I've not heard of Lupus, I think they ruled out sepsis. Right now I've been told I have pleurisy and its because of the Remicade. I will look up lupus to see what that is and the symptoms. Thanks!

Sweetie31105

Veteran Member

Joined : Aug 2008

Posts : 903

Posted 5/14/2009 10:36 PM (GMT 0)

I've had a HORRIBLE reaction to Remicade. But it's nowhere related to yours. I almost went into anaphalyctic shock when I was given Remicade. I had back pain, I would have to run to the bathroom and go #2, and it would just be blood. It's been 2 years since my last infusion, so I really don't remember much else. Just that it was SERIOUS.

jujub

Elite Member

Joined : Mar 2003

Posts : 10424

Posted 5/14/2009 10:58 PM (GMT 0)

I haven't had negative reactions to Remi, but that is certainly possible with any medication we take. If the med is infused directly into our circulatory system, any such reaction will usually happen faster and stronger.

Sorry you're having an adverse reaction, and I hope it's reversed and you're back to normal soon.

AnnaG

Regular Member

Joined : Apr 2008

Posts : 191

Posted 5/15/2009 7:18 AM (GMT 0)

The most common side effects of infliximab are upper respiratory tract infections, weakness and fever.
Side effects such as fever and chills may occur during or shortly after administration. These reactions could indicate an allergy to the drug. They are more common among patients who develop antibodies to infliximab
Serious infections have been reported with other drugs that block TNF- alpha, and infections have been reported during treatment with infliximab.
Before starting infliximab, persons are recommended to have tuberculosis skin testing (PPD tests for TB), because of reports of reactivation of tuberculosis in patients taking infliximab.
wishing you a speedy recovey

bookworm21

Veteran Member

Joined : Mar 2008

Posts : 1766

Posted 5/15/2009 12:37 PM (GMT 0)

Make sure your doctor has checked your blood to see how your ANA levels are. If it's too high, it could be an indication of lupus.

I hope you have a speedy recovery!

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