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IBD Clinic ? What does that mean?

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Ulcerative Colitis
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Posted 5/14/2009 10:36 PM (GMT 0)
I have been trying to get to remission for awhile -  put on Remicade in October 08 - just finally finished taper off pred in March 09 and about 2 weeks prior to my Remicade in April - I started with the symptoms (won't detail - you all know :)  again -  The Doc told me to wait 2-weeks and check in - which I did today - because the symptoms are getting worse and more frequent.   They suggest going back on Pred at 30 mg for 1 week and then to taper - AND set an appointment with IBD Clinic?   Does anyone have any idea what that means?    Any info appreciated.

D.

Posted 5/14/2009 10:50 PM (GMT 0)
My understanding is that it's a medical clinic that specializes in irritable bowel disease (UC and Chron's). Are they setting this appointment up for you? I assume you're already seeing a gastroenterologist.

At any rate, I'd call them back and see exactly what they mean for you to do.
Posted 5/14/2009 10:58 PM (GMT 0)
That also depends on where you live. When I was in England, I had to get referred to an IBD clinic which basically was the IBD/GI department at a local hospital. Out-patients were only seen on certain days of the week (during out-patient clinics).
Posted 5/14/2009 11:08 PM (GMT 0)
Yes I have been working with Gastroentrologist when they set this up with the IBD Clinic -  I was surprised - so I didn't ask enough questions - they made it sound like it was some kind of specialist or something.    I will call them back - good ideas.    Thanks for the replies.  
Posted 5/16/2009 4:44 AM (GMT 0)
The question is whether your current doctor sub-specializes in IBD treatment. Probably he/she doesn't since the office where you're being treated is now referring you to an IBD clinic. It also depends on what medical personnel/facilities function in your community or nearby + what kind of health insurance you rely on to cover payment. / Old Hat (30 yrs with left-sided UC ... [etc.])
Posted 5/16/2009 1:16 PM (GMT 0)
Thanks that it - They are referring me out to someone who specializing in IBD - This whole thing is new to me I did not know that the Gastro Doc was a generalist of sorts and that you needed to go out to a special IBD clinic for the more complex cases. Thanks for all the replies - I was a little freaked out at first - but this info has been helpful.
Posted 5/16/2009 2:18 PM (GMT 0)
Keep us posted as to how your appointment goes.

Just for the record...it's Inflammatory Bowel Disease, not Irritable Bowel Disease...easy to get the words mixed up.

q
Posted 5/16/2009 3:19 PM (GMT 0)
Thanks I will - I got a little freaked out because I understood the remicade to be kind of the last stop before discussions around surgery begin - Maybe that is right -
I will let you know.
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