HealingWell
Search Close Search
☰

UC without bleeding?

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 7/21/2009 4:54 PM (GMT 0)
So I had several days of bad D, went to a doc and got put on lialda and a prednisone (40,40,30,30,20,20,10,10). It helped, but did not stop the D completely.

I only had small amounts of blood show up on 2 occasions.

I finally got into the GI docs office yesterday, but I was kind of shocked by his diagnosis... or lack there of. I have a family history of UC and my Dad made it sound like that was what I had, but the doc was not so sure. He said that if I had UC I would see blood more often and have less of a good day/bad day trend and more of a bad all the time trend.

So my question is, are there many people who have been diagnosed with UC that do not have much blood?

I have a scope scheduled in August, but I'm antsy and curious what others think.
Posted 7/21/2009 5:06 PM (GMT 0)
Did you doctor tell you why you were bleeding then if he didn't think it was UC? Could be an anal fissure or hemmie bleeding I guess. I'm sorry, I don't know the answer to your question. I bleed a lot with my flares, but I think some other people here don't bleed much. Hopefully, they'll chime in. How are you feeling now? I know my doctors did not want to give a diagnosis until they scoped me. I understand how hard it is to wait. Hope you feel better soon.
Posted 7/21/2009 5:26 PM (GMT 0)
He didnt really give much insight into why I might be bleeding, he just said typically UC stats at the rectum and works up, so bleeding is usually very evident, so he wasn't sure why I would be seeing only a small amount of blood.

He left it very wide open... I'm guessing thats why I am getting an EGD and colonoscopy, so he can rule out everything but Small intestine problems.

I'm 27 so its nice to see people my age having the same issues. Everyone seems to think it's an "old Man" disease :-P
Posted 7/21/2009 6:53 PM (GMT 0)
I may bleed a smalll amount once maybe twice a week, mucus is my problem.
Posted 7/21/2009 7:05 PM (GMT 0)
I believe it would depend on how fragile the mucosal layer is and how much inflammation. As well...you're on an antiinflammatory medication, which could account for some of the confusing symptoms.

UC does come in progression of inflammation, and many of us don't seek professional care until symptoms are quite obvious.

You should make sure you request rectal meds in conjunction with the Lialda after your scope...maybe that will help keep you off pred in the future (which is a good thing).

quincy
Posted 7/21/2009 7:12 PM (GMT 0)
I had about 6 weeks of diarrhea with no bleeding. I assumed it was giardia but no, it was my UC. You can have a flare without bleeding.

Sue
Posted 7/21/2009 7:55 PM (GMT 0)
I flared for over a year and never saw blood.
Posted 7/21/2009 10:45 PM (GMT 0)
I didn't have much blood at all during my first (and so far only) flare. Just when I was at my absolute worst of 15-20+ BMs/day. And even then it wasn't super bad.
Posted 7/22/2009 2:09 AM (GMT 0)
I hardly ever bleed when I have a flare...I just usually have a lot of mucus and urgency.
Posted 8/13/2009 12:23 PM (GMT 0)

badguts2009 said...
So my question is, are there many people who have been diagnosed with UC that do not have much blood?

I was initially misdiagnosed with IBS, and didn't receive a UC diagnosis until 6 years later, largely because I wasn't passing blood & no occult blood was found on a 3-day stool sample. I had severe D, 10-15+ bm's per day, but still no blood except on a handful of times where I really strained.

If you haven't had your scope already, make sure you do. You should also have blood tests to see if there are markers of inflammation in your blood - this helps to establish a UC diagnosis, although the colonoscopy is more definitive.
Posted 8/13/2009 2:50 PM (GMT 0)
I don't show obvious blood either...I have a clotting problem and harldy bleed for anything. It has not been obvious that I was bleeding but when they did a fecal ocult test I was positive. The ER initally diagosed me as giradia as well and those test ended up negative. My UC was diagnosed by scope....
Posted 8/13/2009 2:57 PM (GMT 0)
Old man disease! Ha! I was 17, my friend was 13, and a daughter of one of my dad's coworkers was 11 or 12 when the UC was diagnosed...don't feel old..

I haven't been bleeding since right before a steroid increase, but I still have the D anywhere from 2x on a good to 5-6 on a not so good day..but I'm on 40mg prednisone

Hope your scope goes well! I just had my 2nd one and it wasn't bad at all. Ask for moviprep, its so much better than other preps. Oh, and I had an EDG last year w/my first colonoscopy and I was able to eat pizza like 30 min later lol
✚ New Topic ✚ Reply