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fangocur ! , has anybody heard of or tried this ?

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Ulcerative Colitis
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Posted 9/2/2009 6:06 PM (GMT 0)
my husband saw an advert on ebay for this stuff after we came home from the hospital today (groan) more steroids , thought i had maybe seen the last of them , has anyone ever heard of the product "fangocur" , he is convinced it is a new miricale breakthrough treatment for u/c !bless him. 
Posted 9/2/2009 6:21 PM (GMT 0)
Well, I was mighty skeptical of a medical sort of product being sold on ebay, so I did a quick google search and found this:

http://www.food.gov.uk/news/newsarchive/2009/jan/fangocur
Agency warns against Fangocur mineral drink
Friday 16 January 2009

The Food Standards Agency (FSA) is today warning consumers not to drink Fangocur mineral supplement drink following test results that show dangerous levels of arsenic.

The Austrian product is only sold to individuals over the Internet and claims to be a 'comprehensive inflammatory bowel disease treatment'. Food supplements are, by law, not allowed to make claims about preventing, treating or curing illnesses – only medicines that have approved evidence that they do what they say they do and are rigorously tested can do this.

The FSA has been told of two reported illnesses in the Cheshire area thought to be linked to this drink, with symptoms including dizziness, heart palpitations and stomach cramps.

You should not drink this product. If you have consumed this product and feel ill as a result, contact NHS Direct on 0845 4647 or speak to your doctor.

The FSA has notified other countries in the European Union about the test results
Posted 9/2/2009 6:54 PM (GMT 0)
Many thanks fruitgirl i have not ordered any and will not be i think my husband is just worried as i am now on 6mp as well and have a draw full of even more tablets now and knows that roid rage is imminent lol as re starting pred.
Posted 9/4/2009 4:20 PM (GMT 0)
The Mineral Drink works well – it's been proven effective in university research conducted in Austria (but not the UK, thus the FSA comment). The number and quality of the testimonials is impressive.

The FSA assessment is nonsense. The product is intended to be a home remedy and should not be evaluated as a foodstuff. Many medications, if tested in such a way, would also prove to be dangerous. Additionally, the reports of illness come from the same place. There seems to be some confusion about correlation and causation – it's amazing that a government agency would post such claims without looking into them further.

Finally, the scepticism about eBay availability is unwarranted. The fangocur products being sold on eBay are being sold by private parties; i.e. they likely received a volume discount from the company/website and are trying to turn a profit. This is common and says nothing about the merit of the product.

Knee-jerk reactions aplenty. shakehead I'd recommend that your husband (edit: you) give it a go. :-)

Post Edited (Alternate) : 9/15/2009 7:20:36 AM (GMT-6)

Posted 9/4/2009 5:31 PM (GMT 0)
I guess Alternate, that you didn't read the entry from the original poster very well....it isn't her husband that has the problem. Could this be because you don't have UC? We are not very happy with spammers on this site, so please refrain from posting if it is for spam. We'll alert the administrator. Thank you Fruitgirl for finding that info for Lambkins.
Posted 9/7/2009 8:06 AM (GMT 0)

Lonie said...
I guess Alternate, that you didn't read the entry from the original poster very well....it isn't her husband that has the problem. Could this be because you don't have UC? We are not very happy with spammers on this site, so please refrain from posting if it is for spam. We'll alert the administrator. Thank you Fruitgirl for finding that info for Lambkins.

My reply is hardly spam. Yes, I misread the original post but I doubt that has anything to do with my having a disease or not. I intended to provide useful information…and did.

Post Edited (Alternate) : 9/7/2009 2:14:09 AM (GMT-6)

Posted 9/7/2009 2:50 PM (GMT 0)
Alternate, if you claim that this has been proved in university research, could you please let me  know the name of principal investigator or the article they published with these results. I would like to contact them personally and get the information from horses' mouth before writing to NHS.

Before you reply my post hastily, there is not a single article on pubmed with "fangocur" as a keyword.

Posted 9/14/2009 2:11 PM (GMT 0)
Alternate had 7 days to respond to my query and there hasn't been response so to me his/her replies are SPAM and I am going with NHS guidelines. May be OP would like to post her view too.
Posted 9/15/2009 1:19 PM (GMT 0)
No one suggested giving up your normal treatment protocol.

It looks like PubMed is very English-language oriented. As 'fangocur' is a brand, you might try searching for 'peloid' 'peloid clay', 'fango' or 'heilerde'.

My intention was to offer useful advice -- hardly spamming. Also, it's good to keep in mind that (sadly) research is often focused on profit and so the efficacy of such natural remedies can easily be neglected/ignored.

I was just trying to help…as was the husband of the originator of this thread, lambkins. Did he SPAM her? :-)
Posted 9/15/2009 2:08 PM (GMT 0)
This thread is verging on an unsupportive arguement. The information has been shared both ways, and everyone can now make their own decisions.

Let's move on now.
Posted 1/3/2013 4:08 PM (GMT 0)
May I just say that I had UC for several years and have cured it through drastically modifying my diet and
taking supplements - I too tried Fangocur (no probs) and have some left and may take it again for high cholestrol. UC was so bad at one point I was told I would be hospitalised and given drugs intravenously - have been down the steroid route also (hallucinations)! On the other hand my sibling has had UC for 20 years and even after my success still prefers(maybe not prefers but relies on drug therapy). Just for the record I had a bowel check whereby minute traces of blood is supposed to be always present in people who have had UC - mine was clear. It was a tough road - but there is hope for people who prefer to try an alternative to drugs.
Posted 1/3/2013 4:18 PM (GMT 0)
Pepee,

what supplements did you take and how did you modify your diet?
Posted 1/3/2013 6:47 PM (GMT 0)
Unfortunately, there are no magic bullets.
Posted 1/3/2013 9:55 PM (GMT 0)
Yeah Pepee, I'd like to know too - pretty please :-)
Posted 1/3/2013 10:36 PM (GMT 0)
Pepee93 said...
I would just like to post this info to help people who have been diagnosed with ulcerative colitis. I have been healed (withut meds) of this condition. In as much a very recently I chose to take part in a screening where (I am told) there would always be evidence of colitis - as (I am told) you can never be completely cured even if it appears to be in remission. Well, my test came back completely clear. I have been down the route of Asacol, Steroids etc. and one doctor even said I would have to be admitted and given drugs intraveneusly. Well for 2 years I have not had a trace of this problem. The cure was rather extreme, insomuch as I went on a very strict diet - cut out ALL SUGAR (even fruit and certain root veg were limited).I used goats milk, cheese and butter. Only bread without yeast/sugar.No alcohol ouch! Its not a diet I would like to stay on for a very long time, as I lost a lot of weight. I also took various supplements to protect and support the bowel. I fell 'off the wagon' once as the diet was tough. I also did relaxation, because I think one's mental state has a lot to do with the problem. Basically you can help yourself a lot by following a diet designed to cure candida - be patient - it takes a while for these problems to occur and a while to get rid of them. This regime is not for everyone, my sister has had this problem for 20 years and relies on all the meds. It can heal you, but you have to believe in what you are doing - here is the mental thing again! I am now working on lowering my cholestrol (without meds) will keep you posted!
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