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Likeliness of Relapse
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Ulcerative Colitis
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RobLewis
New Member
Joined : Aug 2009
Posts : 15
Posted 9/11/2009 11:28 AM (GMT 0)
I think I may be nearing the end of my first conflict with Ulcerative Colitis. Began in June 2008, and due to a misdiagnosis in December, I didn't get treatment for it until May of this year.
I know every case is different, but I was wondering, are there any general statistics of your likeliness to have a relapse? Like, people that had it when they were younger, or people that had long flare-ups, etc.
GLOVE
Regular Member
Joined : Jul 2009
Posts : 321
Posted 9/11/2009 12:19 PM (GMT 0)
Not sure on the statistics but I can say since I was diagnosed in 2002 I did have a 6 year remission. So I know it is possible to have long periods of remission!
suebear
Veteran Member
Joined : Feb 2006
Posts : 5698
Posted 9/11/2009 1:15 PM (GMT 0)
UC is a chronic disease that is characterized by periods of remission and periods of flares. I have known some UCers who have never attained remission and others who have had 25 years of remission only to flare again. It's unpredictable. The best way to stay in remission is to take your maintenance meds, get plenty of rest, and live a healthy lifestyle. Try not to worry about
what the future holds and live every day to the fullest.
Sue
jujub
Elite Member
Joined : Mar 2003
Posts : 10424
Posted 9/11/2009 1:28 PM (GMT 0)
If I recall correctly, 10% of people have one flare and then no more. So the statistical risk of another flare would be 90%. It could be in six days or six years, or even longer. We take maintenance medicine to decrease the number and severity of flares, and to help protect us from colon cancer.
fitmom00
Regular Member
Joined : Mar 2008
Posts : 113
Posted 9/11/2009 2:59 PM (GMT 0)
I've had 3 flares, each one about
one year apart (since first diagnosed 3yrs ago). My doctor told me that my likelihood of a flare within the next six months is about
75% if we don't take precautions (6MP or Remicade).
Mitzo
Veteran Member
Joined : Dec 2007
Posts : 536
Posted 9/11/2009 3:00 PM (GMT 0)
I've had this since 1986 and have had years of remission, although with irritable bowel and so on in the meantime. My early flares always went away after some months without meds. I was determined to stay off meds, and things cleared away by themselves 3 times as I "muscled through". Since 2000, however, it's been a totally different story.
Christine1946
Veteran Member
Joined : Aug 2008
Posts : 5988
Posted 9/11/2009 3:03 PM (GMT 0)
I was diagnosed in 1998 at the age of 52. Within the following four years I only experienced two flares. After that my flares occured yearly. This last flare began after only a seven month remission. So in my case I would say my flares are getting closer together and more severe, lasting longer. I have an appointment with a GI specialist on the 24th of September at the Univ of PA Hospital. My GI has referred me to him to see if he can suggest other options of treatment. I am not a candidate for Remicade. At the moment I am in remission following a three month flare.
jeanneac
Veteran Member
Joined : Feb 2009
Posts : 1930
Posted 9/11/2009 3:22 PM (GMT 0)
With IBS and colitis, I live day to day and week to week. It would be great to know you are in total remission for months at a time!! Wow! I started being better about
using the rectal meds and hope that will help. Sometimes I really don't know if it is the IBS or IBD. However, there is a pain that I get with the IBD that is unlike the IBS problems. So, if it isn't one thing, it's another.
jazzgtrl4
Regular Member
Joined : Aug 2009
Posts : 325
Posted 9/11/2009 4:13 PM (GMT 0)
i was in remission for 4 years or more, then bam im in a flare. i almost forgot how it was. Almost seemed like a bad dream, like it never happened..Then reality set in. My first flare when i was diagnosed was worse than this one. Also i think i relapsed partly in due to alcohol consumption. I read somewhere that people who ingest more alcohol have a higher rick of relapsing. Wish i could just wake up one day and it be gone....
Christine1946
Veteran Member
Joined : Aug 2008
Posts : 5988
Posted 9/11/2009 4:17 PM (GMT 0)
What amazes me is how good you feel while in remission. After awhile I throw caution to the wind...big mistake...and eat things I know I shouldn't, like red meat and pizza...then whammo...the flare begins and lasts for months. I am going to try to be good this time
jazzgtrl4
Regular Member
Joined : Aug 2009
Posts : 325
Posted 9/11/2009 4:24 PM (GMT 0)
Christine1946 said...
When im in remisson i can eat and do anything it seems like. This time around if i reach remission (hopefully). Its going to be different especially with the alcohol.
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