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Ulcerative Colitis
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Posted 9/13/2009 11:46 PM (GMT 0)
Hi all,

Last week I posted about being discouraged about not being in remission since I was diagnosed in Nov 07.  I really was down but the support I got from here and being able to express it sure helped.

I'm sure not going to say that I'm in remission based on one day, but this morning I woke up and felt pretty good!  Either the prednisone finally kicked in, the colazol has started working, I'm using rowasa in a more gentle way, or I'm just getting a blip on the UC radar screen, but who cares, it feels good!  What a great feeling to only visit the porcelin thrown half the amount of times! 

And that's it.  I just wanted to say I love this day and it give me and I hope everyone else hope that you just don't know what's around the corner.

Posted 9/13/2009 11:47 PM (GMT 0)
glad you are feeling better
Posted 9/14/2009 12:07 AM (GMT 0)
Yay! We need to take any good day when it comes, to remind us we CAN get there again!!!
Posted 9/14/2009 4:17 AM (GMT 0)
I'm happy you're feeling better and I hope it gets completely under control for you.


:)
Posted 9/14/2009 4:21 AM (GMT 0)
Hard to take a day at a time, but those many feeling good days can add up to a lot, sometimes making the not so good days more difficult to deal with.
But it's not an all or nothing...it's a process to feel better with ups and downs or dips or whatever word fits.


Explain what you mean the Rowasa in a more gentle way??

Hope tomorrow is a feeling well day!!

quincy
Posted 9/14/2009 6:29 AM (GMT 0)
Great News! Seems like everyone is feeling a little better today :)

I hope you continue to feel good.

Posted 9/14/2009 6:58 PM (GMT 0)
Nice to know you are feeling better. This funny disease really has a mind of its own. I was having extreme urgency last week and now I am fine with just 4-5 BMs/day. Doing Entocort enema morning and night helps me a great deal
Posted 9/14/2009 8:02 PM (GMT 0)
Yay, I'm glad I'm not the only one feeling better! 

Life is so different without the urgency.

Quincy, re: the rowasa, before, I had it in my mind that I needed to try to keep it in as long as possible, with the goal of all night, so I'd use it right before I fell asleep.  Almost if not every time, I'd wake up in the night needing to expel it plus more from my highly unhappy colon, which would take awhile to settle back down. 

So by gently, I mean use it, keep it in for 30 min., and if it works a little longer ok, and then let it go.   Then fall asleep, relaxed.   

Also, since I have to use generic rowasa, and the insertion part of the bottle is awful, I switch the top of the bottle with a shorter one that's on the generic cortenema bottles I have. 

In a week or so, I still might not be able to tolerate the rowasa, but at least I'm not feeling so compulsive on making it work and just taking a more gentle approach, hoping it just starts healing. 

Posted 9/14/2009 8:25 PM (GMT 0)
ah, makes sense.

Do try to do keigel exercises throughout the day...that will help keep the strength of the anus/rectum, hopefully, to help you retain the enemas longer.

Do try as long as you can, however, to keep them. Makes peeing in the middle of the night tricky...but it can be done, unless you have extra propulsion behind it.

q
Posted 9/14/2009 8:43 PM (GMT 0)
I disagree with you a bit here, Quincy.  Doing the kegels, etc., is actually against how I'm trying to approach this.  

I suspect that the healing from the enema comes when the colon is relaxed, not stressed from muscular tension that's used to fight the urgency.  Doing kegels and trying to keep it in longer are not helpful for staying relaxed and asleep for me.  It adds to the cramping and more D and more vicious UC cycling.

I'm just saying that maybe 1/2 an hour of relaxed time with the enema might be more healing than trying to hold it in as long as possible. 

A lot of this disease is influenced by the pressure we put on ourselves.

Just my IMO. 

Posted 9/15/2009 3:20 AM (GMT 0)
Have you tried using half of a bottle of enema instead of the whole bottle? I found that it's easier to hold half of a bottle for a longer period of time. Even if I expel it 30 minutes later I can still use the other half for the rest of the night. Chances are I can hold the second half of the bottle till the morning.
Posted 9/15/2009 6:28 AM (GMT 0)
Actually, doing Kegel (thanks for the right spelling) exercises will help to reduce spasming and help relax the muscles. It's a common method to relax spasming muscles all over the body (those specific muscles....hey, a good joke however...I relax my shoulders by doing Kegel exercises..lol).

You can do them during the day, not while with the med in.

If you do them when YOU decide, it will ultimately help rather than the rectum going into stress spasming on its own. That's as per my question to my doc and his agreement as to why they'd help.

quincy
Posted 9/15/2009 9:51 PM (GMT 0)

This is off topic, but a yoga teacher told me that as women age they can tend to become more knock kneed putting more pressure on their hips ands low backs.  She said that doing Kegels throughout the day can fight that tendency, so it's good to do them whenever we think of it.  I forgot about that, and used to do them at red lights when I drove anywhere, so this is a good reminder.  Time to start turning those red lights into exercise time!  A good reminder, Heather.

I'm think I'm having success with the Rowasa my new "easy going way"  probably using about 1/2 the amount like you suggested, burnabygirl, last night for about an hour.  This is the first time in the 5 or 6 times I've tried using it that I haven't had increased D, cramping and bleeding within a few days. I had given up on it in fact, thinking I was either allergic or just couldn't tolerate it.  I would LOVE for it to be a part of my maintenance arsenal so that's why I decided to give it one more try.  And right now, the way I'm doing it, so far so good!  Yay! 

 

    

Posted 9/16/2009 3:41 AM (GMT 0)
Congratulations....it'll be worth it in the "end"!

H ;-)
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