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I NEED HELP PLEASE!!!!!!

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Ulcerative Colitis
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Posted 9/12/2009 12:23 AM (GMT 0)

I have been on Imuran for just over a month and It seems to help.  I don't know y I am not on Remicade but it seems to help a little.  I have been having an attack since May when I had to go on some very strong antibiotics for a chest infection.  I was on 60 mg of Prednisone and that really suck.  I am now down to 20 mg and I still hate the side effects.  I have put on soooooooooo much weight in the past 2 weeks that I look like a balloon.  I really hate it.

 

I have to take 27 pills a day just to balance out the Imuran and prednisone.  I am so sick of it.  I feel like I am going out of my mind.  I was doing iron transfusions but now  I have had an allergic reaction to it.  I don't know what to do.  Even the  Natural Path is Crazy.  She wants me to cook all my vegetables and FRUIT!  NO sugar, wheat, berries, milk, nuts, citrus, potatoes, tomatoes, corn products, meat, I can eat any wild animal I want though?! Any type of sweetener except Stevia, and no fruit or vegetables that has high carbohydrates and the best NO PROCESSESD FOOD.  Can someone out there help me.  I have no idea what to eat except steamed or baked fish and chicken.  Oh yea no spices except FRESH uncooked garlic.

 

Someone must have gone through this at some point can anyone help? or give me so ideas?  Thanks for letting me go on about it

Posted 9/12/2009 12:40 AM (GMT 0)
Remember that your Imuran probably hasn't taken full effect yet; that usually takes about three months. So you may get a lot more relief from it when it kicks in.

If you're not taking a good probiotic, you definitely should add that to your regimen, and when you have to take antibiotics increase the dose of probiotic.

Know that the Prednisone weight will leave when you get off the drug. Watch your salt intake in the meantime to help minimize fluid retention.

Sorry, I can't help you with the naturopath. I don't do that.
Posted 9/12/2009 12:42 AM (GMT 0)
You should add a probiotic. Also, if you really wanna try Remi, why not ask your doctor why you can't? And that diet seems weird...
Posted 9/12/2009 12:49 AM (GMT 0)
Hi,
Im not going to give you any recommendations (although I have lots). Ill just tell you that I've been through it maye 20 or 25 times and it's very difficult to cope with. Just hang in there. The feelings you are going through are all normal. I've gained weight many times over as well as the baloon cheeks and it will all go back to normal, although it's never soon enough.

I've tried the "natural path" you are talking about and it never gave me any results. Just hang in there.
Posted 9/12/2009 1:09 AM (GMT 0)
Thanks for all the input. It helps out a lot. I hve been taking the probiotic when I remember to take it. I have to keep it in the fridge and I never see it when I go in. I will have to see if I can keep my other pills in the fridge as well. THEN I will remember to take it. lol.
Posted 9/12/2009 2:07 AM (GMT 0)
I keep mine in the fridge right beside the liquid I use to take my meds in the morning. Then when I get a glass of juice, tea or whatever I remember to take the probiotic also.
Posted 9/12/2009 12:07 PM (GMT 0)
I'm thinking that you need to take the probiotic everyday for it to be useful and to build up the good bacteria. I actually set an alarm on my cell phone to remind me.
Posted 9/12/2009 6:07 PM (GMT 0)

Hmmmm.....I was trying to figure out your diet. It sounds similar to an antifungal diet that I experimented with, and still try to follow somewhat to keep my UC symptoms away. So, you can eat low carb/low natural sugar fruit and veggies, poultry/fish, (any red meat allowed?), no artificial sweeteners except Stevia, no milk (can you eat butter or plain yogurt?), no nuts (can you eat almonds?). I know it sounds next to impossible to abstain from processed foods and grains, but it really is not that hard once you start eliminating them from your diet. The hardest part is meal/snack preparation because now you have to do a lot more planning and it takes more time to prepare meals. I'm thinking that eventually you will be able to introduce grains/other fruits and veggies back into your diet?

For me, following such a regimen (along with natural supplements) gave me a symptom-free/med-free life. From the sounds of it, you probably have a fungal problem, having taking antibiotics for your infection. I see the reasoning behind the diet advised to you. So I would, as a friend, recommend you experiment with the diet. Within a few weeks you should be able to conclude if the diet will be able to help you. The next 2 weeks will go by whether you experiment with the diet, or not. Wouldn't you rather be on the other side of the 2 weeks being able to reflect on whether this diet will help you, or not :) Good luck to you.

Posted 9/12/2009 7:54 PM (GMT 0)
It sounds like your doc is recommending the SCD diet. Have you bought the book.it will teach you how to eat that sort of diet.
Posted 9/14/2009 12:50 AM (GMT 0)
Sorry you're having a ruff go of it. I've had some luck with Sherry Brescia "Great Taste No Pain". It has helped calm the cramping & continual urge to evacuate. Milk seems to be a big no-no. Hope you find some relief, I know what it is like to find the restrooms wherever you go. That is still one of the first things I do when going out. Stay on the meds & good luck with your diet.
Posted 9/15/2009 1:23 AM (GMT 0)
Please, please, please get a book called Self-Healing Crohns and Colitis by David Klein, Ph D. It will seem weird but several months into the program, I am 98%. I had bad UC for 2 years. I will spare you the details. This book has given me my life back. www.livingnutrition.com is also useful. Good luck.
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