HealingWell
Search Close Search
☰

Update: Remission=starting flare

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 9/23/2009 12:05 AM (GMT 0)
So, I got into my GI yesterday in between his procedures...I told him blood/mucus for a little over a week, lots of gas/bloating, bm's increasing and not as formed-slender as well...was pretty straight up about not wanting to be on prednisone like in the past.  He says that he would start me out on slow dose...he said as far as the Canasa and enema's, he didn't know how far up I was inflammed because of first diagnosis July 2007 it was my entire colon and that I was a sick woman.  His solution:  Colonoscopy scheduled for Thursday 8a.m., starting prep tomorrow at noon!  I am totally NOT looking forward to this.  I did tell him you told me that I wouldn't have to come back for another 7 years, his comment, "you weren't flaring then!!!" 

Left telling him my bottom would see him on Thursday!!!!!!!

sad   sad sad sad

Posted 9/23/2009 12:37 AM (GMT 0)
Gosh, I'm so sorry! And to be told like "and tomorrow you will Prep" - argh! I always need a little time to get my head around that!
So, you see what he finds. I hope it's not too bad!!
Let us know!
Posted 9/23/2009 12:51 AM (GMT 0)
The only time I had to do prep they made me do it in like half the time and it sucked lol

UCJuly2007, the inflammation could still be low, and even if a steroid enema wouldn't reach everything (and it might at the moment) it could still help the lower part! Sucks he wants you back on pred. Good luck, hope the c-scope goes well.
Posted 9/23/2009 5:58 AM (GMT 0)
It doesn't matter how high the inflammation goes......................the rectal meds help the lower part of the colon. The oral 5ASA meds treat from the top down.

You were probably starting to flare a while ago, just didn't recognise the symptoms. That's where the rectal meds could have helped. But, it's good you got in to the doc soon.

Both ends treatment, considering UC starts at the rectum and works its way upward, it's the last part to heal, so rectal meds should be a part of your regimen anyway.

Try the rectal/oral 5ASA to see if you can do without the pred....

Hope your scope goes well....let us know.

quincy
Posted 9/23/2009 3:49 PM (GMT 0)
I agree with quicny...up the oral and rectal meds (or just start them if you're not already on a maintenance dose....sorry, I can't remember) and give them a chance to work before jumping to pred. It doesn't sound like your symptoms are horrible enough to use pred. I was going 15-20x's per day with horrible urgency, and only resorted to using pred because I had an upcoming interview I HAD to be well for. Otherwise, I would have stuck with the oral and rectal 5ASA's, because I was improving, albeit very slowly.
Posted 9/23/2009 4:07 PM (GMT 0)
I agree that you should try rectal meds first but I also have recently experienced a somewhat mild flare that is also VERY stubborn. I have been treating with the whole gamit of rectal med and Lialda since May and cannot get this flare to completely heal...still was having 2 - 5 BM's a day with blood, mucus and "d" so I finally gave in and started a coures of pred yesterday. We are trying to do a hard hitting but quick round...only planning to be on it for 25 days...so, try the rectals but don't let it go on too long, some flares are just REALLY stubborn!
Posted 9/23/2009 5:34 PM (GMT 0)
Thanks guys....I do want to stay strong to my word about not wanting to take pred again. I don' t think doc was saying not to do rectal meds, but that I was so sick before, he wanted to know where exactly I was flaring and he wasn't just going to prescribe the rectal meds without knowing. I have an old prescription. He talked again about Remicaid, and I told him I was completely satisfied with my Colazal.

Irony, I am really not bleeding like I was, but bathroom has definitely changed for the worse.

fruitgirl, my symptoms are NOT what they were in July 2007, but I think doc is thinking I went downhill fast. By the time I got to him I had C-diff, so yes, I was very sick, but not now. It took 6 months on prednisone to get me well last time...uggghh!

quincy, I did buy a probiotic yesterday at the pharmacy...per suggestion the other day...I just have been laxed about getting on one since being in remission.

I mix the solution here shortly...why do you get sooo hungry when you KNOW you can not eat anything!!!
Posted 9/23/2009 7:11 PM (GMT 0)
Hi..what prep did you get for the purge?

For many of us, the 5ASA meds are the best option for a long period of time, but it does take commitment to learn how to use them and to come to the acceptance it's for the long haul not all or nothing. I have almost 21 years of this crap and wish I didn't have to use it, but as I look back, I'm pleased with my doc's insistence of patience and use of the oral/rectal use of the meds. He also knows that I'm committed to using them, so the focus of meds is limited regarding my needs.

We're just urging you to to do the work and not do what's easiest I guess....with long-term treatment/maintenance in the picture.

You have some control over what your expectations are.....I believe this can work for me forever...denial? maybe. But, I also have a UC-related liver disease that I think can also be kept quiet if my colon is as well, hence the oral/rectal regimen rather than the other meds.

let us know how the c-scope goes. Are you wanting to stay awake and watch the monitor? Totally worth the admission fee..lol...plus you can visualise what the doc is talking about when you see him next for results of the biopsies.

Let us know how it goes.

quincy
Posted 9/23/2009 7:21 PM (GMT 0)
HalfLytely & Bisacodyl tablets...I chose the orange flavor...just started drinking. Usually the first two or three cups go down and then the others are half and half. I wish I knew of a way to not throw up!!! Awake, uhhh, I think I last a minute or two and then I go out.
Posted 9/23/2009 7:27 PM (GMT 0)
Hi...use a straw to drink the stuff as far into the mouth as you can and don't take a breath between.
Do them every 15 minutes instead of every 10.

Are you drinking it warm? Isn't it supposed to be mixed the night before and refrigerated? Maybe that's part of not being able to keep it down.

I personally don't do flavours because that's what can make me feel more nauseated. Besides, drinks/juices/soda, etc aren't really on my fluid intake normally...so doing a prep like that would be torture.

When do you do the bisacodyl tabs?

Hope it goes smoothly..lol...

quincy
Posted 9/23/2009 7:40 PM (GMT 0)
I took the 2 tablets at noon...had a bm...started drinking at 2:12. I actually mixed and put it in the fridge. My docs instructions say to mix at 1p.m. wait for the bm and then start, so no mixing the night before. I do think that when it was colder it went down smoother. I got a straw out for the second cup. 3rd cup only kept half down.
UGHHH! about to start 4th cup.
Posted 9/23/2009 7:47 PM (GMT 0)
You could split the big jug into smaller cups and stick them in the freezer, maybe.
✚ New Topic ✚ Reply