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Ulcerative Colitis
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Posted 9/25/2009 10:14 PM (GMT 0)
Hey there everyone

   It's me again...  Just wanting to cry my eyes out... I'm so sick of being on Steroids, (tried to taper to 35mg 2 days ago and flaring right back up).. I still haven't heard from my insurance company about the Humira.. I was really hoping I'd hear something before today.. I'm bleeding a little, but now I'm getting some intestinal cramps and feeling just plain crappy... I'm worried that if I don't up the Pred, I'll go into a full-blown flare and end up in the ER again... I have a call in to my GI and am waiting for him to call me back. I'm depressed and feeling like I don't want to do a darn thing.

   Plus, Hubby has a BAD cold so I'm staying CLEAR of him.. I swear, if it weren't for my animals.. I'd be going crazy....  Sometimes it feels like they are the only thing that keeps me going..

 

Posted 9/25/2009 10:22 PM (GMT 0)
     I'm so sorry you are so ill cry .   Know how you feel.  I had a major flare last year.  I was hospitalized from May 3 thru the 13th.  Hubby had to take me to the ER right on our 39th wedding anniversary and the day our grandson made his first Holy Communion.  I even missed that!!  I was on prednisone for seven months.  Enjoyed a seven month remission and then flared again this past May.  Doctor tried holding off on the prednisone, I already have osteoporosis, but I kept getting worse, so prednisone started June 11th along with the Cort enemas, Canasa and increased 6MP to 100 mgm.  The high dose of 6MP sent my white count plummeting so doc cut it to 50 mgm and my white count is now 3.5.  Not normal but that is about as high as the doctor wants it.

     For the past two years my GI doctor has been after me to start Remicade but now he agrees with me that I am not a candidate for it.  Not sure if my insurance would pay for Humira either.  Have you tried Imuran or 6MP?

Posted 9/25/2009 10:29 PM (GMT 0)
Hi Christine

No, I haven't tried Imuran or 6MP, but if all they do is act like a steroid without the side effects, then I don't know if they'd work since the actual Steroids don't even seem to be doing the trick now.. I think that's why my Dr. is willing to skip that class of meds and go straight to Humira..

I was also thinking, I just started Wellbutrin XR yesterday, 150mg. for depression so maybe that's not helping with the way I feel right now either.... I know anti depressants take some time to start working, but I do feel like maybe they can make you feel "Weird" right away until your body get's used to it..

I just feel like a mess... thank goodness my husband and stepdaughter are here....
Posted 9/25/2009 10:37 PM (GMT 0)
Imuran and 6MP knock your white blood cells down so that hopefully your immune system backs off your colon. Steroids decrease the inflammation. They are two different drugs all together. Would be interested to find out why your MD is skipping them. Sorry, you are feeling so crummy. It is hard not to get depressed and stay up beat when your whole life seems to be put on hold. I am right there with you because I am also in a major flare since end of May and nothing seems to be working. I am so tired of my toilet being my best friend. Yes, antidepressants can make you feel weird when you start them and it takes about 2 weeks to really get the effect starting. Nothing I can say can make you feel better but know that I am thinking of you and your situation and hope you get a turn around soon.
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