HealingWell
Search Close Search
☰

Oh LOrd now What !

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 11/11/2009 5:59 PM (GMT 0)
Hey All, Well I had been saying how good I have been doing for 2 weeks now on the Rowasa and Darn it 3 Days ago i just got the D. back for no darn reason? It is not severe like water or anything but DAM!! I did not change my diet there is no blood in it and not really any mucas but just when i think i am almost in remission BAM ! I was under some stress the day it started but that is over now so i am thinking WHY?? I am still doing my Rowasa could it have just stopped working over night? My tummy makes all kinds of noise and I am going back to about 4 times a day rather than 1 to 2 times. IT SUCKS! I am so scared i am going back in full flare again everytime i feel i have to go i get scared as hell then cry because it seems like i took a step backward out of nowhere. I have no clue anyone just have a med stop working overnight? Do you think I am going back into full flare or just having a few day set back any advice would help.

                                                                       Thanks, YankeeKat.

Posted 11/11/2009 6:26 PM (GMT 0)
Think positive. I get times where I have D or visible blood too for a day or two and then it magically goes away without changing anything. I try to have a "I dont give a crap" attitude when it comes to symptoms and so far its been working and I keep myself from worrying.
Posted 11/11/2009 6:27 PM (GMT 0)
It's pretty common to go back and forth with symptoms when you're working towards remission, so don't loose hope!

Just a question...what happens when you use oral meds like Asacol?
Posted 11/11/2009 6:33 PM (GMT 0)
Could it be related to your menstrual cycle? It could be a temporary blip.
Posted 11/11/2009 6:45 PM (GMT 0)
Yeah, I don't even start thinking of remission until I am symptom free for several months. There's always a few setback, just keep looking forward.
Posted 11/11/2009 7:51 PM (GMT 0)
I am trying to think possitive LOL Thanks all I know it is not my monthly just had that made it through just fine that was a shock. I had no idea it could take months before remission boy you can tell it is my first major flare. Oh Fruitgirl as for the oral meds i get sick to the tummy real easy the Asasol made me throw up tried it a few times. It is odd even the rowasa made me queezy the first few times but not throw up so stuck with it and worked wonders in a week or so i have been with rowasa for a month as of tomorrow. I just gotta try to keep non stress and don't eat anything new i imagine for the next few days. I was going to call the doc but i figure having D for a few days what is he going to do? I have a follow up with him next Fri. I just hope it is back to semi normal by then.
Thanks, YankeeKat.
Posted 11/11/2009 8:10 PM (GMT 0)
Yeah, I'm working towards a remission and my symptoms come back for a day or two, then go away again, weird. Like what you said with D and no blood. But I had one time a few days ago where blood and gurgles and all came back, then starting yesterday it magically went away again, but I also missed a few doses of the sulfasalazine I'm taking. It is frustrating but I hope I will stay symptom free for good after a while.

Also, I was listening to the overnight coast to coast radio show, the show with the wild conspiracy style or woo-woo topics, and they had Dr. Brian Weiss who deals with past life regressions. I don't necessarily believe in that kind of stuff, but it is interesting. Anyways, one of the callers said she had UC and had J-pouch surgery, and she said maybe in one of her past lives she disemboweled people or something, and that may have been why she had UC! That was quite a take on where UC comes from.
Posted 11/11/2009 8:56 PM (GMT 0)
Same thing here. im working toward remission as well. No D for a few months, no blood for 3 or 4 weeks. Tapering my Canasa, actually didnt use one for over 4 or 5 days. Solid triple AAA stools, (i like that term). Then bam on Monday some blood on the toilet paper. I try not to get bummed about it and try to have the same "dont give a crap" attitude as Doz79. lol. But seriously it happens and is part of the healing process i guess.
Posted 11/11/2009 9:54 PM (GMT 0)
I understand where you're coming from. I like to think I'm in remission too but sometimes have days where the gurgles come back and my stomach is very sensitive. I feel like the more I think about it the worse it gets. Just like everyone else said, the road to remission is bumpy but from what you have written it seems like you are on your way to remission. Focus on the positive and try to minimize your stress. I think you're gonna be just fine.
Posted 11/12/2009 1:04 AM (GMT 0)
I've been on the Rowasa for 3 weeks now and I'm like you...I'm really banking on it! I do have days where I'll be grumbly or a little gassier. The blood is mostly gone but I do see it every now and then and the next day it'll be gone.

Hang in there. It's all we can do.
Posted 11/12/2009 1:05 AM (GMT 0)
Yankeecat,

I am in agreement with Dr.-A....you are talking days and weeks? (respectfully) You might want to get a bit more realistic and start charting a course for months. 

Like the stock market, there will be daily ups and downs, but steer the course toward a great result in 4, or 6 months time.

We all do know the panic when you brcome suddenly shocked  symptomatic, but hang in there.

I've been in semi-remission, than had a bloody BM out of the blue...one of those 'oh crap moments' , than nothing abnormal for months...it happens.   And you are only on Rawassa?   I'm curious why your drug therapy hasn't been 'stepped up' for you by your GI?

very best wishes,

Iflyfish

Posted 11/12/2009 1:10 AM (GMT 0)
I know you are so right Iflyfish but I'm the same as YankeeKat. I think it's b/c it's my first flare and all that I worry about every little thing every day! I'm trying to stop and I think with more experience it'll get better. But thanks for saying it so I know to strive to that.
Posted 11/12/2009 1:16 AM (GMT 0)

Iflyfish said...



Like the stock market, there will be daily ups and downs


Perfect quote to explain the road to emission..
Posted 11/12/2009 1:24 AM (GMT 0)
Calm-on-the-outside- Great call sign! Haven't ALL of us had to act this way during flair ups!
Calm on the outside, panic on the inside...

I'm no Doctor, but the Immune Supressants do wonders. Immuron or Remicade may relieve your symptoms.

I'd speak candidly to your GI specialist about other therapies rather than just Asacol and Rowassa...which are both simp;e maintainence meds.

Kind regards,
IFLYFISH
Posted 11/12/2009 11:19 AM (GMT 0)
I do agree with many of you i think it is because it is my First flare so i am new at this so i freak when anything changes i already on so many meds for stress i did not need UC. thrown in there GRRRRRR. Some of the other meds would not be good idea on my anti depressent bcause it could cause it not to work it took me going through about 5 of them to find one i could take. I have had reactions that were really bad to alot of meds even ani biotics. I think my doc is playing it safe with rowasa only. I did try the Ascol for 2 days did not go over well at all and am afraid to try anything else after that. I have had the stress issues long before the UC. I am very very depessed right now i sleep around the clock do not go out even when i don't have the D. I am just afraid if i go out then Bam i will have to go. I overthink EVERYTHING ! always have and that mental problem on combo with the UC. just makes it worse i think. I study ever BM in the toilet and get upset if it is loose and then after getting upset i gotta ro right away again that is the stress i am pretty sure. I am So dam TIRED i just want to sleep but not sure if that is UC or depression?? Dam I am confused. This is all so new and really hard to deal with i do not want to be on more mental meds to see if it is mostly that. I am Lost on this one :(
YankeeKat.
Posted 11/12/2009 12:30 PM (GMT 0)
YankeeKat, hang in there girl! I know it's hard, believe me, I want to see improvement everyday and some days that just doesn't happen. But like some of the others said...it's about overall improvement not just day by day. I would just like to take a pill and be fixed immediately but I'm learning that this disease just doesn't work that way. So I'm really trying to just go with the flow. It's amazing to me really how much my attitude has changed since my dx just a few months ago.

I am sorry you have to take meds for other things. I think now that I have UC that I shouldn't have to deal with anything else...lol.

Just hang in there, keep us posted!

And yes, Iflyfish...calm-on-the-outside describes me perfectly :-)
Posted 11/12/2009 11:23 PM (GMT 0)
I know I think i am going through that major Why Me thing & what else is gonna go bad now ARGH!!!! If i just could get my butt moving and try to start living a normal well as close to normal life again i would feel better i have not seen sunlight or the out side of my house in ages :(
YankeeKat.
✚ New Topic ✚ Reply