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Posted 11/15/2009 4:44 AM (GMT 0)
Have had accident issues in my 20's, 30's and now my 40's, so no, you're definitely not alone.

:)
Posted 11/15/2009 5:12 AM (GMT 0)
Wow, reading this post reminded me of the time I had an accident in the dentists' office! I was real lucky in a way, not that I went on myself but that nobody knew, it was while I was waiting for the dentist to come in and I was sitting in the chair, and the urge came on. So I had to get up and ask someone in the next room where the bathroom was, and right as I got into the bathroom and closed the door, there I went! I was able to ditch the underwear in the trash, and clean up to where nobody knew when I came back to the room, except whoever unfortunately had to empty the trash that day! Why I couldn't wait for a few more seconds is frustrating, but it's happened a couple times so I got used to it after a while. I'm mostly in remission right now, so the urgency is much better, but I do empathize with those who have dealt with that traumatizing experience, that's something you never forget.
Posted 11/15/2009 5:26 AM (GMT 0)
Once I stopped behind a church and went beside the AC unit. I heard a car drive up so I quickly wiped and left the underwear. As I walked around the corner I passed two AC repairmen...ha ha ha...I got out of there fast.
Posted 11/15/2009 8:15 PM (GMT 0)
You are not alone. I was diagnosed with UC in 1990 (college sophomore). Before seeing a gastroenterologist, my family doctor did a flexible sigmoidscopy (without pain medication; never again!!) and diagnosed me, but gave me Librax. This didn't help.

At the time, I was taking summer school classes at a local university; it was within walking distance of my parents' house. I didn't have a car, so I would walk to and from class. No lie, I had so many accidents walking home from class; it was awful. FINALLY, my mom insisted that I see a specialist. Thank G-d! He did another flexible -- this time he gave me something to relax me, and I don't remember a thing -- and diagnosed me with UC. He also prescribed me sulfasalazine along with folic acid supplement. I've been on the same medication since then. This medication has been a life saver for me (and stopped the accidents (touch wood!)).
Posted 11/16/2009 7:19 PM (GMT 0)
Uuuuuugghhhh, I can't tell you how many times I've had to ditch underwear. It's the worst! Once when I was in college and walking around campus, the urgency was so bad. There was no time to get inside a building and to a restroom, so it was the old squat behind a tree situation. Luckily it was night and dark out, so no one saw me! Lesson learned. Ever since then I carry some toilet paper/change of clothes just in case!
Posted 11/16/2009 7:57 PM (GMT 0)
     Right now I am in a severe flare....get my first Remicade treatment this Wed...yippeee.  I have NO control.  As soon as I feel the urge, out it comes.  I am wearing Kotex pads to protect my underwear.  The extra long ones work great. 
Posted 11/16/2009 10:04 PM (GMT 0)

Oh Christine - so happy you are going to start Remicade soon.   Please let us know how it goes.  You know I was told I was too old and too much risk for me if I ever need it.  I would do it before surgery for sure!  Good luck for FAST relief!

ElaineNY

Posted 11/16/2009 10:45 PM (GMT 0)
You're not alone, sweetheart. I have had three accidents already in the past 4 months. Someone mentioned Kegel excercises. Those will actually help try to prevent you from having an accident but it is not full-proof. My sphincter muscle can crack coconuts right now, but I still get those those times where it is like a tidal wave. I am pretty stupid because I don't keep the kits that people talk about. I remember trying to use a gatorade bottle. I frantically tried cutting the top off and all my efforts were for nill. I know where every bathroom is on my way to work in Manhattan. I recall curling up in a ball on Madison and 34th trying to prevent another disaster. Thank god there was a McDonald's. It was disgusting in there, but I didn't give a flying sh**. Stay well, and know that you are def not alone.
Posted 11/16/2009 11:03 PM (GMT 0)
And we will flat out destroy the inside of a toilet bowl, my friend. On the rim, under the seat, even the walls aren't safe if there's a gap with any size to it.
Posted 11/16/2009 11:50 PM (GMT 0)
I am also a member of the SYP club (I'm not spelling it out for you! :-) ). I had it happen at
work a few times, but I work in a factory so the smell wasn't very noticeable. I still carry
toilet paper in every vehicle I own , eventhough I have been in remission for a while.
My opinion only, but having to explain why you're wearing Depends is a little easier than
explaining you just had an accident and have to go home and change. I'm sure this could
easily become one of the longest threads on this forum. Good luck and always remember
you are not alone in this.


Later...
Posted 11/17/2009 12:10 AM (GMT 0)
Adding to this long thread.  I was telling my husband who is 74 about some of this thread and WHERE some had "accidents" or had to choose where to "go".  It is hard for him to understand since he does not have the problem or never did except for that once after surgery - oh well!

Anyway, he does not truly understand why those people who KNOW they may have an accident don't wear at least pads or Depends or ?  He would if he had to.  I would also - but so far only came close to an accident a couple times in 3 years since diagnosis!

ElaineNY

Posted 11/17/2009 12:13 AM (GMT 0)
I dunno, Elaine!
I had accidents a couple of times, but only at home. It seemed like my colon always behaved when I was out and about, which wasn't much other than driving to and from home, my son's daycare, and work. I went a lot at work, sure, but I never had to pull over and sprint for the woods or ask to use the toilet at daycare. If I'd messed my pants more than a couple of times when I was away from home, I probably would have bought a pack.
Posted 11/17/2009 12:53 AM (GMT 0)

Schotz217 said...
My most traumatizing experience was the other night at a concert. I didn't make it to the bathroom and had to clean myself up and return to the show. I could smell myself all night and kept hoping that no one would notice. My husband told me to stay really close to him and that people would think it was him farting.... MORTIFYING!

This one made me laugh right out loud.  I have only had accidents at home - knock wood - but since remission I have issues with gas.  Sometimes I just cannot keep it in, it just seeps out no matter how hard I try.  The problem is my gas now is so vile, it even makes me gag.  If it happens when I am with my husband, he always fumes because he says people will assume it's him!  I have to say I hope that is the case!  Why do we always assume it's the man farting, not the woman??  I admit I would assume the same thing. 
Posted 11/17/2009 12:59 AM (GMT 0)
about wearing the Depends versus having an accident...It's not practical to wear diapers everyday when you only have an accident once or twice a year. I'll go three years with no accidents and may have two in one year so when would I wear them? Also, when I was younger and in college I did not even consider wearing them for the mere embarrassment it would cause if discovered. I can just see taking a chick back to my place with a diaper on (talk about spoiling the mood). People act as "healthy" as they can and sometimes that means, for me, pushing the envelope. I have a pack of Depends in my closet. My wife bought them for me. I wore them once and they felt terrible (you can even hear them!). I'd rather risk crapping my pants then have my wife and kids know that I have to wear a diaper...no way, no how. From getting undressed at the gym to visiting my inlaws at the river, I just would rather not be known to wear diapers. But, hey, you'all go right ahead and wear them...there's nothing wrong with it.
Posted 11/17/2009 3:14 AM (GMT 0)

There is where age makes a difference.  They always joke about the elderly wearing Depends.  Well, it is true and you would be surprised how many have to.  In your case, I am sure I would not either but was really talking about those who often have accidents, etc.

Now that I am considered "elderly" it is ok - LOL!

ElaineNY

Posted 11/17/2009 8:33 PM (GMT 0)
to the OP....please consider rectal meds before you go on pred.

q
Posted 11/17/2009 8:50 PM (GMT 0)
I agree that it probably wouldn't be practical to wear Depends if you only have the rare accident, but also there's nothing wrong with wearing them if you want to.

In the end, if it makes you feel more comfortable or self-assured about being able to lead a more normal life, then go for it.

Maybe I should finally put my business degree to good use and create a more wearable version of Depends -- the type that someone can wear on a date and not feel concerned about stripping down to. Instead of 'Depends' they would be 'Must Haves' (...obviously I'm just kidding, but really, the manufacturers should make something more practical and regular looking, instead of the over-sized diaper look).
Posted 11/17/2009 10:42 PM (GMT 0)
Burli, I love your comment about "destroying the toilet".  Everytime we visit friends for a weekend, before we leave, I have to do the toilet check.  I don't want anyone else to have to clean that up!
Posted 11/17/2009 10:50 PM (GMT 0)
I am jealous of those of you who can change your underwear or wear a pad and be ok. Unfortunately, my accidents are so bad that I could never get away with that. I need a shower and new pants
Posted 11/17/2009 11:55 PM (GMT 0)
Reminds me about the time I stopped off the highway, ran in the woods and squatted down just in time. I was so glad to be in an isolated area near Lake Tahoa (quiet, beautiful, snow covered forest) except I hit down the back of my ankle and my shoe. errrrr! My socks stayed behind to enjoy the scenery.
Posted 11/18/2009 1:22 AM (GMT 0)
Yes me too. Just look at my handle name.
Posted 11/18/2009 1:38 AM (GMT 0)
[img]/community/emoticons/smile.gif[/img] I am so very glad I started this thread!!! What can I say misery loves company. Ha. Thank you all for your stories, suggestions and just plain being just like me! Its truly made me feel better. I've checked this site everyday since I've joined and I'm finding it very helpful.


I started Prednisone on Sunday and I've had two full days of it and I actually do feel better. I was able to leave work and stop at a store and shop for a bit before coming home from work. It was only an hour but it was like heaven. No urges, no bathroom stops. Nothing. How crazy is that that I'm thrilled about being able to stop at a store on my way home from work to do some shopping. What can I say its the little things.



I also ordered some psyllium seed powder. I figured I'd give it a go and see if my stools get "bulked" up. I figure what's the worse that can happen it just doesn't work?



P.S. Burli - I loved your story about stopping in Lake Tahoe and leaving your socks to enjoy the scenery - I laughed out loud at that one my friend!
Posted 11/18/2009 1:50 AM (GMT 0)
Crazycolitis...you can't be serious about someone just pulling their pants down in a grocery aisle...or are you?...trying to avoid an accident doesn't give someone the right to excrete on other people's property (and in full view of the public)!...
Posted 11/18/2009 3:03 AM (GMT 0)
My daughter works at the cosmetics counter at sears (right at the front of the store) and apparently a man was walking into her store (through the mall doors) and making his way to the mens washroom all the while throwing up and having D comming out of him...apparently he made quite a mess of a trail to the washrooms and more of a mess in the can as well...don't know what was up with the poor fellow, could have been an IBD issue or a bad gut bug but my daughter had nothing but sympathy for him (since she knows what a horrible thing it is to have an IBD with me being her mom, and she's been having some of her own gut issues) while everyone else in the store was making rude remarks about this poor fellow. My daughter (so proud of her) quickly spoke up and said you never know if it might happen to you guys some day, obviously the guy isn't feeling well so how can you say such shameful things...then one of the girls spoke up and said "he should have stayed at home then", my daughter snapped at her saying "maybe he was feeling okay before he left home, you never know when an attack like that is going to hit you".

Some people eh!

:)
Posted 11/18/2009 5:27 AM (GMT 0)

burli said...
And we will flat out destroy the inside of a toilet bowl, my friend. On the rim, under the seat, even the walls aren't safe if there's a gap with any size to it.

omg LOL! this describes my toilet and any toilet i come in contact with. hahahahaha.
i feel bad for our cleaning lady. when she does the bathrooms, i hide! or blame the hubby!

i should have 150% had an accident by now. ive had so many close calls its incredible. but for some reason i (almost) always make it that extra few steps or extra mile home. its hair raising for sure. i get the goose bumbs and the chills and if im in the car im so clenched im not even sitting on the seat anymore. howling and moaning to hurry up. of course you drop the keys while trying to unlock the door!

but one time it was close. i was at a restaurant and omg, grumble grumble... oh god.. gotta go the bathroom. oh god, i cant stand up or its over. oh god oh god what am i gonna do. get up and do the slow pinched penguin waddle as quick as possible with your hand holding ur bum just knowing that everyone is watching and thinking " poor girl ain't gonna make it"... well... i didn't. i ran into the first bathroom door i saw (which happened to be the mens >_<) threw open the door, went into first stall, didnt even have time to close and look the stall door, pulled pants down, bent over and SPLAT! i sprayed copious amounts of liquid crap all over the back of the toilet, the whole wall and part of the sides of wall. OMG!
i couldnt even proceed to sit down for all the crap on the seat. i got wads of toilet paper, wiped up as quick as possible, pulled up the pants and ran outta there as fast as i could. went to the ladies room and finished.

at least my undies made it outta there clean! LOL
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