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Ulcerative Colitis
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Posted 11/29/2009 4:16 AM (GMT 0)
i have lived with uc for 5 years, the last few have been almost constant pain and bloody diahorrea, only brief periods of remission (3 -4 weeks) after prendisolone. am currently taking mercaptopurine which makes me feel awful. can someone give me some advice on how to start altering my diet
Posted 11/29/2009 4:26 AM (GMT 0)
I wish I could help but I'm in the same boat! No meds work for me either...Doc has recommended surgery and I'm supossed to give him an answer on Monday as to what sugeon I want to be referred to...I'm not ready to lose my colon just yet.......good luck to you !
Posted 11/29/2009 7:13 AM (GMT 0)
Cut out fast-foods, processed foods/beverages, refined sugar (use honey or stevia), animal fats, caffeine, artificial sweetners...try eating what you can of whole fresh foods, fruits, veggies, chicken, fish, beef (most go easy on beef), drink lots of water, herbal teas (chamomile is an excellent herbal tea as it is a natural anti-inflammatory, but avoid it if you're allergic to ragweed)...it's not easy and not many can do it cold turkey (yum cold turkey, add that to the list LOL) but you can take each day at a time and cut back the bad stuff more and more then once you know it you're completely off the junky/un-healthy stuff.

Get on a really good probiotic too, at least 10 billion live cultures (refridgerated ones are typically best) and to make it affordable, choose one that you only need one/day...fibre (even in supplement form can be very beneficial as well, although it may cause bloating/gas that will disappear once your system adjusts, so long as you take it everyday and start with a small amount, increase slowly and only if necessary.

:)
Posted 11/29/2009 10:56 AM (GMT 0)
I have the same problems. NO medications work for me, and to be honest no diets do either. I can't eat fruit and vegetables, so my diet consists of meat and potatoes, sometimes i can eat carrots. I eat sandwiches with ham or turkey, but i do eat crisps and biscuits, because i need my calories. I tend to make cakes, and biscuits so i know what went into my food. I don't drink milk and can't eat yoghurts, as thee things tend to give me loose stools.

Not being able to eat what i want, really gets to me sometimes, but there is nothing i can do about it! I have no idea whats going to happen in my future, maybe surgery, or carry on living like i am, but i guess at some point, cancer may become an issue.
Posted 11/29/2009 2:27 PM (GMT 0)

I'm in a pretty good remission now.  I was doing lousy like you about two months ago and started three things:

1. I started taking psyllium husk powder (one tablespoon every morning in juice). It's a very pure kind that contains no additives. 

2.  I started taking probiotics.  Two capsules (4 billion organisms) every morning. It's called "Acidophilus & Probiotic Complex"  I bought it at Trader Joe's.

3.  I also started a hydrocortisone enema...but haven't been using them for several weeks now.  I'm switching to Proctofoam, but I believe my improvement was because of the husk powder or the probiotics. 

Also I try to avoid all preservatives in foods.  Also I try to breath from my diaphragm (stomach area) whenever I can.  Or just conscienciously relax my stomach area whenever I can.

Take care, and I hope you improve.

-John

Posted 11/29/2009 6:08 PM (GMT 0)
Im in remission at the moment with mostly a raw foods diet. im not a vegan though i eat fish, but not the harsher meats. i also eat eggs. but i keep this to once or twice a week at the moment.
Posted Yesterday 1:35 AM (GMT 0)
pb4 I wonder if agave nectar would also be a suitable sweetener? You don't need much at all, it's natural, no corn syrup or anything, and it tastes more like sugar so it doesn't change how your food tastes. I love it! I imagine it would also be alright.
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