Most weight you have lost during a flare

I have been going through a terrible flare and have lost 15-20 pounds.  Went from about 205 to 185-190.  Had no desire to eat much and of course the colitis itself takes so much out of you.  The good news is that since they changed around my meds the weight is coming back, i'm eating more, and my energy level is increasing.  I'm still not where i think I should be so going baclk to the Doctor to hopefull nail down a more effective series of meds.   

I lost 17 pounds with what I perceive is my first flare....but I wasn't diagnosed until almost 3 years later. 109 on a 5'8" frame is pathetic.

It's 23 years later and being middle age with controlled flares....I'm 144 (down from 158). Yes, I can afford to get down about 5 pounds. Of course, that's in my control at least.

I'm afraid to become thin again...interestingly.

Eat wisely....and well balanced. Your weight will pick up soon....I don't know how tall you are, but it seems that you're in a comfortable weight range for a 6'+ person.

q

I lost 20 in about 6 weeks during a flare. Gained back 15 in about 3 weeks post flare. It comes back quick. I also figure some of it being muscle mass. My legs kinda atrophied since I wasn't at all exercising. I looked emaciated and grossly skinny, now I look healthy and have to watch what I eat because post-flare, I just wanted to eat a lot of food. My body felt deprived of nutrients so I ate like a cow once I felt better.

Prior to DX I lost about 40lb over a period of 6 months. When you consider that my 'fighting weight' is c200lb (6'tall), it's no surprise I finished up in the hospital!

I'm not gonna let it happen again if I can help it...

I also dropped 20 for four months on my first flare. But I was really restricting my diet by excluding wheat. I've introduced wheat and still eliminate dairy, spicy, red meat, greasy, caffeine and alcohol. I just got back my 20 pounds. It's spread a little disproportionally through the middle and still have skinnier arms and legs. I had a lot of muscle wasting that's lingering in my behind. The pot belly and big boobs (yippee!) might be a result of prednisone. I'm on 5 mg. tapering... I'm also on Zyprexa, a weight gainer of a mood stabilizer. So we'll see. The thinness was such a blow psychologically. Not being able to fit in your clothes. Looking bad. I didn't feel like a woman anymore. Just a bag of bones.

12-15 lb. loss within 2 weeks during severe flare. As soon as flare comes under control I gain it back because I rarely lose my appetite. In this I've been very lucky to-date; I manage to replace the nutrients & weight that were lost before too long. / Old Hat (30 yrs with left-sided UC; presently in remission taking brandname Colazal)

I found my cynicism

I saw many people trying to lose fat. They apppear to be tortured because they just can not lose fat. Now, I just have some sympathy for those who are fat genetically. For those who are not willing to exercise or controlling their food, I do not have anything no matter how they want to lose fat ...

Between 5 and 15 pounds.  I am 5' 9" and before UC I was 130-140.  Now I'm down to 120 or so after this last flare.  I find once I get it under control and my appetite comes back I'm ravenous and eat like crazy.

From 205lb to 178lb in 3 weeks, during a flare. Its wicked when the thickest part of your arm is your elbow joint. Picked it all back up once the flare was over

It's hard for me to know, as my first (and so far, only) flare started after childbirth. I had my son in mid-October 2008, and by the end of January 2009, I was over 25 lbs below pre-pregnancy weight and I'd gained around 25 during pregnancy. Teasing out what I lost due to flaring and what I lost due to not being pregnant anymore (and breastfeeding the first 8 weeks post-partum, until I lost my supply) is impossible!

Hmm and I am finding that as I put on more weight that my tailbone actually hurts more! :) Guess I'm just an odd duck!

I'm 5'6" and have always been thin. When I was in my 20's I was lucky if I weighed 100lbs soaking wet and that was before and during Uc (I had a fast metabolism). There was only one time that I lost some weight due to Uc and I was about 120lbs and got down to 107lbs. I looked horrible...skin and bones with dark circles under my eyes, I looked like a corpse!

I lost 40 pounds in about six months. It was not good and I became very weak. Very nearly put me in the hospital as I did not really have that much to lose. Once my flare began to subside (this is actually happening right now) I quickly put 12 pounds back on. Still trying to get out of this first flare up.

I'm 40, I am very fit, I do triathlons, lots of swimming, weights, soft sand running, cycling, boxing, basically anything to keep fit.

I have about 6% body fat, and was weighing just over 200lbs.

During my last big flare up I lost 44 lbs in six weeks!!! I looked like a skeleton ... it was awful, I didn't want to leave the house,  I went from 200 lbs to 156 lbs, I'm now weigh 187lbs. 

Once the flare up ended I put the weight back on really quickly, probably within 2 months.