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GLOVE

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Ulcerative Colitis
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Posted 1/6/2010 11:26 PM (GMT 0)
     I haven't noticed you posting lately GLOVE.  Could it be that you are feeling well?  I sure hope so.  How many infusions have you had so far of the Remicade?  My third one was on the 31st of Dec.  Right now I have some kind of bug....achiness, low grade fever and congestion.  Just feel overall yucky...but my UC is under control!!! LOL!  Let me know how you are doing.
Posted 1/7/2010 2:14 AM (GMT 0)
Christine,


So sorry to hear you are not well....hope you get better soon. I felt under the weather after my second infusion(not sure what it was) but now I am doing great. Uc seems to be gone!!!! I am going for my third infusion next week. Please, please, please take care of yourself and make sure you get lots of rest. Thank goodness your UC is under control :)
Posted 1/7/2010 2:41 PM (GMT 0)
Glad to hear you are doing well. I took Coricidin HBP yesterday and some Tylenol. I don't like taking Tylenol since they said it could cause liver damage and so could the Remicade but it did help me rest better. I slept well last night, a full nine hours! Our daughter had some kind of bug during the holidays. Even with my spraying the house with Lysol and wiping counters down, phones etc., I guess the darn thing was airborne.
Good luck with your third infusion. Do they give you Benedryl before the Remicade? I think the nurse gave me too high of a dose...50 mgm. Next time I am going to remind her to give me only half that. Why do they give it anyways?
Posted 1/7/2010 3:35 PM (GMT 0)
Good that you slept well...you probably needed it. Are you feeling better today???

I don't get benadryl before my infusion. I told them I didn't want it unless I have a reaction. I am driving myself to the infusions because I don't want my husband to use his PTO unless he absolutley has to. Plus I don't like the way benadryl makes me feel. I do think the The Remicade makes me feel a little like I am getting the flu but it only lasts for about three days after. I get aches and I feel really tired. I would rather feel like that for a few days than have UC. I hope the Remi works for a long time...I am scared to do surgery.

I also got a really bad cold last week...it only lasted about four days and I was better. I didn't take any meds I just suffered through.

I guess we have to do what we have to do when it comes to UC we don't get to choose how our body is going to behave or react.

It sucks that the Remicade lowers our immune system :(
Posted 1/7/2010 5:33 PM (GMT 0)
Hey ladies, mind if I pop in? Glad to hear you are doing well Glove! Sorry to hear you are not feeling well Christine...Try Zicam when you feel like you are coming down with something; it's worked wonders for me. I get the chewables. Also might want to try a neti-pot with some saline solution for the cold or when you are coming down with something. On the note of Benedryl, they give it to prevent a reaction to the Remicade. I found that Claritin (or my OTC Loratadine) does the same job and I don't get drowsy at all. Take care, and hope you are both feeling well again...soon! ;-)

Posted 1/7/2010 5:36 PM (GMT 0)
I never heard of a neti-pot. Is that the name of it? Do you purchase it at the pharmacy?
Posted 1/7/2010 5:43 PM (GMT 0)
A neti pot is something that looks like a teapot, and you fill it with warm water and the solution. You then tip your head over the sink and pour the solution in one nostil and let it drain out the other side; then do the same on the other side. I actually have an automatic one (kind of like a water pick with a nasal attachment) but it works wonders in getting all the junk out of your nose. I know some people that swear by them. You probably can get them at your pharmacy as they are getting pretty popular. Also Whole Foods carries them or any health food store.

Posted 1/7/2010 6:15 PM (GMT 0)
Where did you get your automatic netipot?

Posted 1/7/2010 6:28 PM (GMT 0)
Oh Yeah!!! I forgot about the neti pot...someone told me about that once before...thanks!!!
Posted 1/7/2010 6:40 PM (GMT 0)

Here's a link to where I bought the nasal irrigator (as they call it!) I've actually bought two from them; and my cousin also swears by this.

http://www.hydromedonline.com/billcart/item.php?item=hpx

Posted 1/7/2010 8:55 PM (GMT 0)
Thanks for the link Lonie and Christine...I said I didn't take any meds when I had my cold...I forgot...I did take Nyquil one night :) I am ordering the nasal irrigator for sure!
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