My results in the last 24 hours since eliminating Gluten

Hi everyone!

I decided to start a new thread regarding the whole "Gluten" thing and the only issue I wanted to bring up is the experience I've had in the last 2 weeks. As most of you know I have been on a Prednisone Taper after being on a dose of 50mg since July 09.. Then I tried Remicade one time and had to stop it due to getting neurologial side effects, which now looks like I have MS.. Geezzzzz....

Well anyway... I had gone on a gluten and dairy free diet oh..I think it was in August when I started it and didn't really notice at that time any difference in how I felt. I was on 50mg of Prednisone back then so when I started the diet, I really didn't notice a difference in how I felt and only NOW do I attribute that to the fact that if I had a problem with Gluten, the Prednisone was covering it up.. Soooo.. Now I am off PRednisone and during my last week of tapering off, I start getting this agonizing side pain.. Lower Right Quadrant burning, sharp type pain and I was so freaking out that I had appendicitis or a U/C flareup rearing it's ugly head..... So I went to my doctor after it got worse and they sent me over to the hospital for a CT scan with Contrast... Well the prodecure went well and the results showed NO problem with my appendix, so I went home feeling pretty crappy... thinking Id have to follow up with my GI and run more tests or something to figure out if I'm starting that flare that is going to end up in my colon coming out.. EEK!!!

Then it dawned on me... I had been re introducing gluten into my diet slowly since I didnt' think it was doing anything to help me get better while I was on 50mg of Steroids.... I was eating RItz crackers and Saltines for about 2-3 weeks prior to getting this pain.. BANG.. it hit me like a BULLET in the head!!! I am pretty sure I can't eat Gluten and thats what has been causing all this recent pain!

So.. I got home and got on the computer, found the thread something like (Do you have a GLUTEN problem or U/C problem?) Read some of the posts and decided to take myself to the internet and do my own research on it...

Well after reading several websites about Gluten and that it is an inflammatory food, I thought.. Geez.... I'm not going to eat any Gluten tomorrow and see if it makes a difference... So, today, I had NO gluten of any source and my pain is about 99 percent gone right now.. Im amazed.. I have been in constant pain for over a week, it was messing up my life so I couldn't do my regular things and I was feeling HORRIBLE.. And after only 1 day without Gluten, the difference in how I feel is HUGE!!!

Well, that's my own success story and by no means am I saying it will work for everyone else, Heck, it's only been one day for me, but I have a feeling it's going to improve over time even more... Its just something you might want to try and see if it can help with maybe someone feeling better, even if they are in a flare, it still might help symptoms feel better...

So that's my story and I'm stickin to it... and anyone else who tries to go Gluten Free... I wish you much success and hope it can bring at least one of you some relief of your U/C symptoms!

It seems to have really done the trick for me :)

Great for you! Hope you continue to feel a little better each day. I have become a firm believer that
whatever works to even get you just to a comfortable place w/this is worth a shot!
Good luck & please keep us posted :)

Have you been tested for Celiac disease?

OK... FORGET IT.... Bad right sided pain and burning sensation tonight.. just as bad as it was before... I don't know what the heck it could be and I'm SOOOOOOOOOOOO UPSET!!!!!! I swear, it feels like appendicitis.. but they say my appendix is FINE.... So much for the Gluten theory unless I injested some without knowing it.... I'm soooooo upset rite now.. hubby is alseep and I'm all alone in this darn house.. THis really SUCKS..

I can't deal with this crap too much longer........!!!!!!!!

Hey Subdued,

I'm not sure but I'm going to check right now because I did eat a partial can of jellied cranberry sauce today and I read the ingredients of that tonight to see if it had any gluten possibility and it does contain HFCS....

OK.... Interesting.... Both Ritz AND the brand of Saltines I bought do contain HFCS.... Although it's way down on the ingredient list.. But maybe even a small amount can make a difference? I will eliminate that also from my diet and see if that helps... I swear, I was freaking out when I posted that post.. I even called my sister in Michigan who fortunately works the swing shift so she's always up really late.. She talked to me for 2 hours and now I'm feeling so much better.. the pain is still there but is almost gone and I'm calming down... I think it's when whatever I'm eating goes through the Ileum and Cecum is when I get the pain and once the offending food has passed, it calms down.. I was in pain tonight for about 5 hours... YUK...

So THANK YOU for that tip.... Hopefully I can get to the bottom of this...

Susiebuddy said...
Both Ritz AND the brand of Saltines I bought do contain HFCS.... Although it's way down on the ingredient list.. But maybe even a small amount can make a difference? I will eliminate that also from my diet and see if that helps...

Hi Susie Buddy,

For me, even I tiny, tiny bit gives me massive diarrhea. I even have to get organic ketchup. As a result, it makes going out to eat practically impossible.

I also noticed that my UC has been under control. since going gluten free

Reading labels is so much fun now ladies!! LOL...

I thought I used to be food conscience but now I'm a freak about it.
You are so right about how hard it is to find gluten free healthy alternatives.
It's hard somedays to plan meals around here w/my 3 kids...cant always cook as "fresh"
as I should so I've no choice but to have some "pre-fabed" food! I am however finding that
my local health food store (which is not the same as "whole paycheck"...oops I mean "whole
foods"!) is less expensive than the grocery store & I love being able to ask questions & always
have someone to help me.

Winter said...
I am seeing a Dr who prescribes supplements. My first visit with him, He did extensive blood work to look for vitamin & mineral deficiencies. He also tested my gluten level which he said was very high. He told me to eliminate gluten from my diet. He asked me if I noticed any bloating when I ate gluten. As the time, I didn't. Then I started eliminating gluten, I realize that I lost weight. Now when I happen to eat gluten, my abdomin bloats up. I feel better when I am gluten free but it is very hard to stick to this diet. Gluten can be in a variety of foods. I read labels all the time when I go shopping.

All doctors should do this. How were you able to find a doctor who does?

I have the same issue with fructose. My stomach bloats when I eat foods high in fructose. It's doesn't bloat anymore now that I've eliminated foods and beverages high in fructose or containing HFCS.