HI All,
Many of you know I've been to 15 different doctors in 5 years because I could not believe I had ulcertive colitis. I knew I had bloody, diarreah with urgency and yes ulcers showed up on my scopes, but I knew there was something causing this. Every NP that I went to said I had something bacterial going on, but their supplements didn't work completely. I even tried the one Doc here on the internet who says he can cure UC or IBS, I can't think of his name at the moment. He was not very nice to work with and I spent a lot of money with him.
Finally an answer, Lyme's Disease. I live in Michigan not out West where there seems to be more cases reported. But I remember going out with West with my family and my dog had engorged tick in him and I believe ,I too, at that time got bit. But deear ticks and mosquitos are everywhere, so you can get it here too in Michigan or anywhere. Lyme's can lay dormate for years and something triggers it to flare. When I was dx with UC, I was going through a lot of stress and fear! In my 20's though, I had the worst gas ever, I could clear a room! A bacterial imbalance then. I was always tired, I could sleep for 10-12 hours and still not feel refreshed. I'd take a lot naps as well. Just constantly fatigue, having on and off energy. I look back and I see so many symptoms of Lyme's, that I just marked up as to getting older. Panic attacks was a big one for me and terrible night sweats, besides all my gut/butt problems. Cold feet and hands, low blood pressure, big twitching when I was falling a sleep, trouble staying asleep, having to pee and nothing really there, bladder infections, anemia. Also I remember when I had a c-scope done and I was bleeding with urgency, they found nothing wrong, no UC or anything. Well the bacteria probably had already buried it cell into my gut wall. Along with Lyme's there are usually other viruses you may have (Lyme's is bacterial) I have herpes 1, some of you might have epstein bar, this maybe the same thing I don't know. I'm trying describe my symptoms other then UC symptoms to see if you recongize and similarities to yours. I just want to help. I've spent over, way over now $40,000 in the past five years for doctors,medication, cures and supplementation.
I started with LDN Low Dose Naltrexon and I was describing all my symptoms to some one on the LDN forum and after I had been on LDN I didn't get any better, someone said get a Lyme's test. Sounds like you have Lyme's. I waited probably another year, thinking no not me, Lyme's ,that's crazy. I worked with yet another NP costing me thousands and his last and final test , was Lyme's. Western Blot test came back with reactive bands, and he said it was chronic. At that time I had already made an appointment with my LLMD (Lyme Literate Doc) so while waiting for my LLMD appointment, I had one more very extensive and very expensive test $1,000 from Igenix and it confirmed CHRONIC Lyme's carrying the bacteria Borreliosis.
I'm a little over a month into treatment. The first 4 weeks on Doxy and Cedfinir (oral) was a nightmare, tearing up my gut and diarreah. Detoxing from my yeast issues too. Now I've switched to a injectable Bicillin and it's been only 3 days, WOW what energy I have and my stools are getting better. I'm not nearly in the bathroom as long and my gut doesn't hurt. I barely bleed. I get a shot every week in the buttocks. I feel like I'm getting my life back. Please check to see if you carry the bacteria for Lyme's that all I wanted to say. Blessing to us all. Linda