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Ulcerative Colitis
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Posted 1/27/2010 9:07 AM (GMT 0)

I got diagnosed with Total Ulcerative Colitis a year and a half ago just after my baby was born.  Just before the diagnosis I was in hospital twice with severe flare-ups.  Prednisone sorted out the flare-ups and ever since I have been on 2x400g of Asacol 3x daily and in remission for just over a year.  My husband and I am thinking about trying for another baby.  I have discussed my med's with my gastroenterologist and he wants me to continue taking them as usual while trying to conceive and during the pregnancy&breastfeeding.  I still feel apprehensive about it.  Anyone who's been pregnant whilst on Asacol and who can share their experience with me?

Posted 1/27/2010 12:12 PM (GMT 0)
My kids are now 16 and 20 - but I ws on azulphidine with the first kid and asacol with the second, from pre-conception through breastfeeding (which I did for more than a year with each kid.)

I was in remission the whole time and had easy, healthy pregnancies.

Good luck!
Posted 1/27/2010 1:17 PM (GMT 0)
I was on Asacol the entire pregnancy, 6MP for the first trimester and Prednisone on and off.  I had a healthy baby girl via scheduled c section at 39 weeks. 

Posted 1/27/2010 4:35 PM (GMT 0)
I am on Lialda (which is similar to asacol).  I am currently almost 9 weeks pregnant.  My GI suggested I stop taking the Lialda during the first trimester which turned out to be very bad advice.  I was in remission when I got pregnant but went into a terrible flare at about 6 weeks pregnant.  I was so worried about the baby and about my health because the flare came on quickly (one day I was fine and the next SICK).  I thought I was going to end up in the hospital I felt so bad and was so dehydrated.  My Ob/GYN and my primary care doctor both told me to go back on my Lialda.  My GI still did not want me to take it...even though I was have 10-12 watery and bloody BM's a day!  My OB/GYN and Primary doctors said a bad flare can be more harmful to the baby and the mother when pregnant than the medication.  I am actually changing GI's due to his lack of knowledge concerning pregnancy and UC.  SO - from my experience, I would suggest following your GI's recommendation and staying on the Asacol. 


Posted 1/28/2010 6:27 AM (GMT 0)
Thank you for all the positive replies!  I'll follow your advice and stay on my meds.  Wish us luck with TTC...

Posted 1/28/2010 8:03 AM (GMT 0)
im on the aussie version of asacol (salofalk mesalazine) and im 25 weeks pregnant (and flaring) its much better to be on it than off when you have UC.
and its okay for breastfeeding. GI and OB/GYN both say benefits outweigh the risks.

and i have heard from tons of ladies that took it throughout pregnancy with perfectly healthy babies.
Posted 1/28/2010 9:09 PM (GMT 0)
I was diagnosed while pregnant with my last child who is now 4 and was on Asacol as well as prednisone until after I delivered. It had no effects on him and he is completely healthy to this day. I say stay on your meds. Y ou are lucky that you can stay in remission on just this. Good Luck
Posted 1/28/2010 9:41 PM (GMT 0)
It's always a matter of the benefits are greater than any possible risks. YOU need to stay healthy for your baby. A flaring mommy on no meds would be much worse than taking your meds. When I was pregnant I was on 12 asacol a day. I flared when I was maybe 4 months along and they put me on Entocort (baby Prednisone, good drug if used short term). I nursed while on each drug too. My daughter is three now..so far, nothing is wrong.
Posted 1/30/2010 5:51 PM (GMT 0)
I was on Asacol from about 4 months pregnant until I had my son and some of the time I was breastfeeding him. I was also on Prednisone. I also did Remicade while breastfeeding. He had no effects from the drugs and is perfectly healthy.
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