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DEEP VEIN THROMBOSIS and UC

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Ulcerative Colitis
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Posted 2/3/2010 7:57 PM (GMT 0)
I just was diagnosed with a blood clot in leg, and my UC is active. Its ironic because 25 yrs ago I had a clot when my UC was active. I am stuck with NO treatment because of the bleeding associated with UC, and they cannot give me blood thinners due to a risk of increased bleeding. Has anyone had or know someone with UC and DVT?

THX
Posted 2/3/2010 7:58 PM (GMT 0)
No, I've not experienced it. How awful for it to happen to you.

Please let us know what the treatment they do for you.

q
Posted 2/3/2010 8:15 PM (GMT 0)
Yes, I had an pulmonary embolism 2 1/2 years ago after a fall and a broken hip.  I was on Heparin and Lovenox in the hospital and then on Coumadin for one year afterwards.  Initially I had some blood transfusions because my Colitis was so severe and my blood was too thin - over 10 (10 is the highest number on the scale).  When I got home from the hospital, I was in a severe flare, but still had to be on Coumadin for 1 year.  I had to wear a medic alert bracelet and I felt terrible.  I could barely work and looked terrible.  I continued to receive Remicade infusions but during that time is when I started to experience reactions during the infusion.  I maintained my Asacol and all my other meds.  I have been off of Coumadin for a year and a half. 

Posted 2/3/2010 8:47 PM (GMT 0)
So it sounds like they still can put people on a blood thinner even if you already are bleeding from UC? Emergency room was going to admit me and put be on thinner but decided against this, since I have UC. I have to see my Dr tomorrow, to see what he will do. Maybe outcome will be , either they give me a thinner and i bleed to death, or they leave clot alone and It travels to by heart and kills me. I CANT WIN!!!!
Posted 2/3/2010 9:13 PM (GMT 0)
Yes, I knew of one other person who had both and she decided to have surgery to put an end to the UC. This decision was made also because her UC warranted surgery, not that the DVT warranted her getting rid of her colon.

Sue
Posted 2/3/2010 9:28 PM (GMT 0)
my brother has uc and this year they found pulmonary embolism with many many clots in the lungs. His respirologist was totally uninterested i his UC and insisted on coumudin, which he is on now. It hasn't caused a UC flare and it's been a couple of months. He has mild UC.
Posted 2/4/2010 12:51 AM (GMT 0)
I had DVT on my left leg due to dehydration during a UC flare in February 2008. I went to ER and the doctor there put me on heparin shots for 5 days. After that, I took Warfarin (blood thinner) everyday for 10 months. Blood works were done weekly/bi-weekly. My family doctor monitored the results and adjusted the dosage of the Warfarin.
My GI doctor didn't say I couldn't take Warfarin, though it's the doctor in the ER who decided that I needed it.
Since then I have been wearing compression stockings everyday during the daytime. The hematologist I saw said I would need to wear them forever.

By the way, before I take any long-haul flight, I give myself a heparin shot. And because of my DVT history, during my hospitalization last November, I was given heparin shots morning and night in the hospital for 2 weeks until the doctor was sure that I was okay.
Posted 2/4/2010 1:51 AM (GMT 0)
I had a PVT when I was severely anemic and flaring pretty good. They put me on heparin while in the hospital when they found the clot followed by 6 wks of warfarin. They did a d-dimer (sp?) test which indicated that the clot was gone after 6 weeks and I was able to stop the warfarin. However, because I had it, I had a bunch of blood tests to ensure that my stellar ability to clot wasn't caused by a disease/disorder that would lead me to need to be on coumadin for life. They determined that it wasn't but I still have to take fragmin (heparin) shots following surgery for 2 weeks or until I am sufficiently mobile per the hematologist. They also indicated to me that the chronic inflammation from UC was likely the cause of my PVT as it was very near my colon. They did tell me that there was an alternative of having surgery to put a filter in your vein (I think in the jugular) that would catch any clots that came loose as your blood moved through before they hit your brain and caused a stroke but didn't see a need for it. I also had to stop taking my birth control pills due to the dvt. My ob/gyn said if you've had one you shouldn't take an estrogen based birth control. Now that I don't have a colon I'm going to see if I can go back on them or if this is a lifetime situation.

So - short and sweet - yes - they will give you a blood thinner while you are flaring w/ uc.
Posted 2/4/2010 2:13 AM (GMT 0)
I dont know why my ER Dr did not just admit me and put me on thinners, especially since i don't have a severe case of UC? He said after consulting with Hemotoligsts they suggested that i should not go on it. I have a feeling my Dr. will put me on it but hopefully I wont have to go into hospital. Just amazing that UC can cause all these other troubles that none of us needs!!
Posted 2/4/2010 4:02 AM (GMT 0)
I think my brother's respirologist felt that his clots were way more dangerous than a potential UC flare. He has also had brain surgery - they were more concerned with the interaction of the blood thinners with the tegratol but again, they gave it to him anyway. He wasn't hospitalized and it was never suggested he should be.
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