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Feels like a prednisone taper

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Ulcerative Colitis
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Posted 2/12/2010 4:08 AM (GMT 0)
Tomorrow I drop from 12 to 10 Asacols, a month off pred. I was going to go to 11 for a month, but I'm taking the big plunge and going to 10 for a month. End game is 6. Why it's as scary as my pred taper to me, I'll never know... UC is just plain scary to us newbies. Am feeling just great otherwise. I feel fortunate and all my UC peeps have been wonderful.
Posted 2/12/2010 4:16 AM (GMT 0)
Aha, i lost my nerve. I'm going to 11. (my colon will never detect the change, I'm sure)
Posted 2/12/2010 5:30 AM (GMT 0)
I went from 9 to 8 and I could start seeing symptoms. I am not sure if it was really happening or if it was in my head because I was stressing myself out. Just relax and don't try to cut down too quickly. Better off staying on a higher dose for a bit longer and not having symptoms.
Posted 2/12/2010 5:45 PM (GMT 0)
What symptoms did you see, notsosicklygirl. Did going back up to 9 stop the symptoms?

Do you think I should cut back now on CAnasa from every night to every other night? My GI calls Canasa, just icing on the cake.

Ellen
Posted 2/12/2010 9:11 PM (GMT 0)
I am watching this thread as well..I was not taking my salofalk seriously while i was on humira..taking 4 some times, sometimes 6 sometimes 8 all over the place but now for 2 weeks solid i have been taking at least 8 a day and just the other day started to take 9 I am going to stay there..but do these pills actually work? like does taking one or two less make a diff?
Posted 2/12/2010 9:14 PM (GMT 0)
No Ellen...stay on the Canasa...taper the Asacol one per every two weeks at the very least considering you're recently off pred.


But, do what you want and see the results...learn from your experience.

Those of us who understand how the meds work don't try to hurry things along.



q
Posted 2/12/2010 9:37 PM (GMT 0)
Go slow...I just tried to drop my lialda dose and now I'm back in a flare! It sucks!
Posted 2/12/2010 10:18 PM (GMT 0)
You should all be GI's. Mine is so blase about this. Just assumes I can jump from 12 to 6 and never run into trouble.
Posted 2/12/2010 10:23 PM (GMT 0)
The only thing rushing me is my hair loss, thinking that it will come back at half the dose of Asacol (6). But that's a temptation -- not worth it.
Posted 2/13/2010 4:21 AM (GMT 0)
I get the hairloss too. It's hard to get off of all the drugs, but there is a light at the end of the tunnel! Over the course of 2 years, I have dropped down to 2 pills a once a day... total! Was on 12 in a bad flare. When I got out, I started doing 4 2x daily. When I was in good remission, doc said I could try and drop it some more. Went to 3 2xdaily. Did fine, went for 2. It was a really bumpy road and took many many tries... but now I am officialy on 2 2xdaily, but actually only take 2/day total. I forgot to take my morning dose for a couple of days and just went from there. I'm about 2 months in and I'm doing pretty good still. Even on such a low dose I still have hair loss, though. It comes, it goes.
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