is this normal?

Well this is only my first flare-up so I don't know what's normal and what isn't. But I can barely walk. It just feels like my insides are raw and all the muscles around my stomach and lower abdomen are just sensitive. I can't bend too quickly or it hurts so bad I could cry. I can barely do stairs right now. And there's just so much blood! It's like my rectum is peeing blood. Not solid at all. I don't like eating or drinking anything because my stomach hurts. The doctor did a biopsy and said there's inflammation in my stomach also. I'm 5'6", 116 pounds, still losing weight. I have almost no appetite. And that Ensure stuff is disgusting. Should I be in the hospital or something because I just feel like something is wrong and I'm wasting away, getting worse. I had my first Remicade yesterday and I know that takes a while to work but in the mean time I feel like I'm dying.. This can't be right.. Is it? I don't know. What do you guys think? Is this normal?

I agree that you should call your doctor ASAP and tell them exactly how awful you feel.

ahhhhh! the whole thing? did she have the whole thing removed?
and i'm on prednisone (20mg), Asacol 3pills 4x a day, and I just started remicade yesterday.

Please keep us up to date on what the doctor says and how you are doing. I agree with fruitgirl, no need to stress about unknowns, what-ifs, etc. just take care of yourself in the moment, now, and call your doctor.

GRRR!! My mom said she wants me to try the new medicine that she's on her way here with for a couple days first before we go to the ER. The new medicine is supposed to be for inflammation in my stomach but I can't believe that inflammation is causing all this. Something just doesn't feel right. Does anyone else have completely liquid #2? I think something else is wrong... It should be at least kind of formed right? It's like water... only it's just blood and ya know.. only it's completely liquid. And all this pain and sensitivity. I don't think this is good.

You sound like how I was when I was first diagnosed...Ifelt that way for about a month before they diagnosed me and got on some meds. I am also 5'6 and was down to about 100 lbs...it was awful and I'm so sorry you're feeling so bad. You should def call you dr. I think you should probably be on more pred with that much inflammation. I was put on 60mg when I was diagnosed. They also put me on asacol but that didn't do anything for me. If you're having pains in your stomach, asacol probably won't do much anyway because it's suppposed to start breaking down later in your digestive tract.

I was on remicade a few months after I was diagnosed as well, and that really helped, but it took about a month to see the effects...you may have to be patient on that one. In the meantime you need more immediate attention on that inflammation and bleeding. Maybe you could try some sort of steroid enema to help with the bleeding and diarrhea? If you are in too much pain/too weak/too dehydrated, you could go to the ER. I'm so sorry you're feeling so awful. Keep us posted...hugs!!!

Oh, and as for worrying about having your colon removed, don't worry about that now. Just worry about getting better. I was where you are ten years ago and I've escaped surgery so far and have enjoyed plenty of prednisone and blood-free years. You will get through this.