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Just an update/in the hospital

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Ulcerative Colitis
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Posted 2/24/2010 3:29 AM (GMT 0)

Well thanks to everyone who wrote back on my other post called "is this normal?" I put in at the bottom on this post so you don't have to go find the old post to know what I'm talking about. But I just thought I'd give you guys a quick rundown on what happened. Saturday I could barely move around in bed, when I had to use the bathroom I was in so much pain that I'd start crying before I even go to the toilet. Finally around 10 o clock, after my family and I tried everything we could possibly think of she took me to the hospital. They told me that I have a stomach infection, gave me some vicodin for home and told me to schedule a follow-up appointment with my doctor a soon as possible. The next morning the vicodin started wearing off really fast so we went to the ER where my GI works. They admitted me, did some more tests and turns out my ulcerative colitis had spread through my entire colon an my stomach infection was really bad. So they're started me on antiobiotics and are still deciding what to do about my colon. But I'm very happy that I decided to go to the hospital. I'm so much more comfortable here and getting healthier. They're starting me on TPN fluids tomorrow too because I haven't been able to eat or drink anything. So turns out I'm gonna be fine all thanks to finally just going to the hospital. =] Thanks guys for all the advice though.

Well this is only my first flare-up so I don't know what's normal and what isn't. But I can barely walk. It just feels like my insides are raw and all the muscles around my stomach and lower abdomen are just sensitive. I can't bend too quickly or it hurts so bad I could cry. I can barely do stairs right now. And there's just so much blood! It's like my rectum is peeing blood. Not solid at all. I don't like eating or drinking anything because my stomach hurts. The doctor did a biopsy and said there's inflammation in my stomach also. I'm 5'6", 116 pounds, still losing weight. I have almost no appetite. And that Ensure stuff is disgusting. Should I be in the hospital or something because I just feel like something is wrong and I'm wasting away, getting worse. I had my first Remicade yesterday and I know that takes a while to work but in the mean time I feel like I'm dying.. This can't be right.. Is it? I don't know. What do you guys think? Is this normal?

 

Posted 2/24/2010 4:04 AM (GMT 0)
Hi Meowmix2!!!

I'm so glad you are in the hospital and feeling better.. although I'm sorry to hear how your disease is effecting you... Sometimes that's what it takes.. we just don't have all the tools at our disposal at home and you can get instant relief through an IV much of the time... lol...

How nice you can use your computer there.. I use my computer at night to help pass the time once I get all my work and chores done.. lol.. Plus, you can keep in touch with us here as we are a bunch of caring people who want to support you!!!

Keep us posted on your progress and I hope you feel a bunch better tomorrow :) :)
Posted 2/24/2010 4:08 AM (GMT 0)
Hi..I agree it's better you're in the hospital. What EXACTLY is the cause of the infection in your stomach? In otherwords, what bacteria is it that you have?

I hope the remicade helps your UC symptoms so that you can finally get back to feeling better.

Thank you for keeping us updated.
quincy
Posted 2/24/2010 5:15 AM (GMT 0)
Happy to hear you are diong a little better. I hope this is the start of a long remission.
Posted 2/24/2010 9:38 AM (GMT 0)
Yeah i hope this is the start of a long remission too. This disease pretty much ruined everything I was working for this year. But to answer your question quincy, the kind of infection in my stomach is a bacteria called H Pylori. I guess that's pretty common and usually doesn't really affect people much but I had a lot of pain along with difficulty swallowing, and my food would come back up a lot if I didn't eat extremely slow.

Another update on what went on today- They tried to do a colonoscopy so they could see how badly inflamed my colon was and they were hoping to maybe even get into the small intestine too see if maybe this is actually Crohn's disease although they said they're pretty sure it's not. I'm not sure what drugs they gave me this time but I just remember wondering why I was still talking and looking around. The next thing I remember is screaming and crying and seeing some stuff on the screen so they must have had the scope in there. I tink I even remember reaching back with my arm. Then I remember a bunch of people in my face trying to calm me down. Then I remember being in the recovery room and I was just really disturbed, screaming and crying still. Which is really weird because when I got my sigmoidoscopy and my throat scope thing or whatever it's called I laughed when I got the medicine. And I remember starting to laugh when I got the drugs this time so I don't know what happened. They're not really sure why it didn't work so well either but they did say that they had some trouble on the first turn so they had to stop. So today they're gonna try it again and just completely knock me out. So hopefully after that I'll know a little more about how exactly they're going to start really treating this after the colonoscopy tomorrow.
Posted 2/24/2010 11:45 AM (GMT 0)
I'm glad you posted, MeowMix. I have been wondering how you are. I am glad you've gotten some answers but I hope you get more soon!! Hugs!!
Posted 2/24/2010 12:14 PM (GMT 0)
Wow, how scary is that?! I am glad you're starting to feel better though and yes I think the hospital is the right place to be be at the moment. Hang in there and I hope you feel even better when you're released.
Posted 2/24/2010 2:38 PM (GMT 0)
Meowmix2 I am also really glad you posted. I have been wondering about you as we have not heard from you since last week. I thought you might be in the hospital. I am glad to hear you are getting the care you need. That colonoscopy does sound frightening! I hope today goes better.
Posted 2/24/2010 10:11 PM (GMT 0)
Hi!
So pleased to see your update and that you are feeling more comfortable now.
You were right to trust your instincts - people with UC tolerate so much discomfort - but even though you really didn't want to go to ER somehow you knew the symptoms had crossed the line! It's good that your stomach infection is H Pylori because it is fairly easily treated - and once gone the pain should settle.
While they have you in hospital it is best that they are going to fully scope you to exclude crohn's - unpleasant but better to get all the tests done and know what you are up against. Also the TPN will give you back the balance of nutrition needed to start healing.
Please keep positive and keep us updated.
Sue :-)
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