Remicade Allergy?

Still waiting to start our 9 yr old on Remicade. I checked the forums here and see in the signature panels that some of you have had allergic reactions to remicade. What did they entail? Our daughter has not responded to Asacol, Lialda, Imuran, Purinethol or Apriso. Not all allergies, but definite adversely affected her to the point where the doctors said no more.

I had kind of an allergic reaction. I got this blotchy rash that migrated all over my body. It never caused any breathing problems or swelling though. The first infusion I had they gave me benedryl to prevent any severe allergic reactions. I pretty much slept through the whole thing.

I get chest pain very bad(i have since my first infusion).  I also get itchy(they have me on zyrtex for that and prilosec for the chest pain).  For the chest pain I had to have my heart checked to make sure it isn't from that and I'm fine.  They still don't know what causes it but they think it is heart burn.  I also feel fun down and sick after my infusions.  I also get joint pain(neck stiff and sorethroat).  I get tylenol when I go in there and they run me at 65 an hour(most are at 150 an hour).  I sit there from 9-2:30 every infusion.  I don't get the chest pains as bad if they run me slow.  I also get hydrocrotisone before my infusion.  I too had problems on asacol, lialda, and imuran.  Good Luck.  I think most people have luck with the remi.  I still go 4-6 times a day but it is better than 10-15 times a day with urgency.  They asked me if the side effects are bad enough for me to stop the remi I said NO.  The way I was before the remi was horrible.  I wouldn't go anywhere.  I hope your child has no side effects and they get him or her out fast.  I'm so sorry you and you child have to go through this.  I can't imagine.  I was 29 when I was diagnosed.  It is hard on me.  I can't imagine my son(he is 8) having this.  Best of Luck to you..

I have had only three infusions so far...which I am feeling great. I had no benadryl before my infusions the last two times and I did completely fine. No allergic reactions at all. Goog luck...my heart goes out to you all....no child so have to go through UC.

I am given a benadryl and a tylenol before each infusion.  The nurse monitors my blood pressure and temp throughout the treatment and so far I have had no bad reactions. 

Good luck to you and your very brave daughter!