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Ulcerative Colitis
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Posted 3/29/2010 2:45 AM (GMT 0)
  

   My 14 year old daughter has recently diagnosed with uc . She was in the hospital 14 days home doing well .  No problems for a little over a month, now she has started bleeding and going to the bathroom a lot is this what they call a flare up and if so what causes this.  Is it something she had eaten.   Also how long does this last if it is

 

Posted 3/29/2010 2:48 AM (GMT 0)
It sounds like a flare up. It doesn't last any specific amount of time and you can't know for sure what would help or hurt it right now. It probably wasn't caused from eating something or caused by anything you can put your finger on. I know stress has a big involvement on my symptoms but diet doesn't seem to change my condition too much. Is she on any medication for her UC?
Posted 3/29/2010 3:11 AM (GMT 0)
She started out at 60 mg of prednisone is tapering on 20mg , lialda 2 pills 2x a day, iron pills, prilosec , florastor
Posted 3/29/2010 4:04 AM (GMT 0)
Try cabbage juice worked for me, make the cabbage juice in a juice extractor then strain the juice so the fibers won’t bother the colon. Also iron is so irritating for UC, if she keeps on taking the iron it will cause more problems. Juice spanich with the cabbage juice, spinach has iron. Wash the spinach well. You should see my post under UC remission. I was 19 when I was diagnosed.
Posted 3/29/2010 7:30 AM (GMT 0)
Hi..welcome to the forum!

What's caused a relapse (I'm assuming it's now that she's having the bleeding and frequency) is tapering the prednisone. What did you taper from to get her to the 20?

Call the doctor and tell him that she's relapsed. He'll probably put her back up to the previous dosage.

It's not what she ate.

q
Posted 3/29/2010 12:29 PM (GMT 0)
Hi, and welcome.
These relapses happen.... and we try to find something to blame them on, but really, it's not anything she ate or did, as Quincy said.

Sometimes in the tapering off prednisone the symptoms recur and we need to go back to a larger dose and then re-taper more slowly, to get the body accustomed to operating without the prednisone.
It feels very disappointing whens this happens, but it's not all that uncommon. When I was on prednisone I had to go down and back up and down up, back and forth, a number of times before I could get off it without symptoms recurring.

As Quincy asked, what did you taper from....? and how often have you been instructed to decrease the dosage?

I have a kid with UC, too, so I feel for you.
Posted 3/29/2010 12:33 PM (GMT 0)

Thank you for replying so many people are telling me differrent things I am so confused.  I thought foods triggered flare ups .

She was on 25mg been tapering since February only five a week .  The doctor before her dr now wasn't worried about the blood, her blood level was so low at the hospital they thought she might need a transfusion but didn't.  I started using the enemias again because a lot of you had said they really helped.  I am calling her doctor this morning.  Thanks for all the info

Posted 3/29/2010 1:29 PM (GMT 0)
Everyone has a different opinion about whether food/diet can cause or reduce symptoms.
You need to form your own opinion.

I would prefer that people say what works for them and not "Food doesn't cause it".
People like me and deepbluesea want to help by stating what has worked for them but again you need to find out what works for you and your daughter.
Posted 3/29/2010 2:56 PM (GMT 0)
Hi and welcome.

I does sound like the taper has caused the relapse, from my limited knowledge of pred that is.

about diet, as others have said, it is individual.  My diet does not affect my UC but for some people they have noticed that different foods affect them.  It's an experiment the best I can tell for each person.

I hope she feels better soon!

Posted 3/29/2010 3:09 PM (GMT 0)
Thanks Amy,

Hopefully that is it. Waiting on her dr. to call Don't won't to do anything without the dr. okay cause she is so young and we are new to this.
When you take your do you take it all in the morning or is it divided up? example 20 in the morning and 20 at night
Posted 3/29/2010 3:36 PM (GMT 0)
Hi and welcome to HealingWell!

When I was on prednisone, my dose was split up quite a bit. At 40mg, I took 10mg at breakfast, lunch, dinner, and bedtime. At 30mg, I took 10mg at breakfast, lunch, and dinner, etc, etc. However, you should follow her doctor's orders, but you can always ask about splitting the dose.

As for diet, if she's having problems with symptoms a lot, it might be a good idea to keep a food journal to teast out what she can or cannot eat. I personally don't have any issues with food (except for MSG and artificial sweetners, which bothered me before I had UC).

You also might want to ask her doctor about rectal meds, specifically mesalamine enemas. They really help a lot of us get into and maintain remission.
Posted 3/29/2010 3:49 PM (GMT 0)
Thanks fruitgirl

I started using the enemias saturday night after reading a lot of people were using them and they helped. She was on them and then her dr. tapered her off them. since she had been on them, I didn't think it would hurt to start using them again. Now if certain foods bother her how will she know ? As soon as she eats them or the next day.
Posted 3/29/2010 3:53 PM (GMT 0)
Definitely get back on the enemas!! That's great that you can get her to use them...a lot of adults are weird about using them, and I imagine it's even harder with kids. I'd tell her doctor that you want her on them nightly until she's in a really good, solid remission (and went to every other night for two weeks, then to twice weekly, which is where I'm staying for my maintenance dose. Studies show that people who use enemas twice weekly in addition to oral meds stay in remission longer than those who only use oral meds.

As for figuring out if something bothers her, it's more about looking for a pattern. It's hard to know how quickly something will have an effect.
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