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spontaneous remission??

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Ulcerative Colitis
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Posted 5/24/2010 4:36 AM (GMT 0)
Does it ever happen? I've read about how sometimes IBD can just go into remission for no known reason. ever happened to any of you or anyone you've known?? Is it possible...or a 1 in a million?
Posted 5/24/2010 8:47 AM (GMT 0)
Yes, some people's UC can go up and down, flare and remission with no meds...

The is a huge gap regarding misdiagnosis....and rmember that "colitis" doesn't mean UC....and that are other bowel inflammatory conditions that can mimic UC.

q
Posted 5/24/2010 1:08 PM (GMT 0)
I sort of went into spontaneous remission of a sort. I was doing poorly, on steroid enemas for a year, then placed on 6mp. The 6mp only marginally helped but I was still bleeding and still having issues. According to the tests, I just couldn't get into the therupeudic range or I risk liver toxicity. So I flared mildly for nearly 2 years and then poof! No more symptoms! I am still not in the proper range but for some reason my Uc sort of shut off for a while and I had a colonscopy and it showed no sign of it.

So mine went into remission but with the use of medication. But my hubby has a second cousin who has Uc and she goes into remission for years and years with no medication. It still acts up on occasion for her but for the most part, it's just a nuisance then anything (lucky duck!).
Posted 5/24/2010 1:47 PM (GMT 0)

Pushingforward said...
Does it ever happen? I've read about how sometimes IBD can just go into remission for no known reason. ever happened to any of you or anyone you've known?? Is it possible...or a 1 in a million?

My sister, who was diagnosed with UC back in the early '90's, has been med free and symptom free since having a hysterectomy about about a decade ago.  This tends to support a possible connection between hormones and UC flares like the monthly mini-flares reported by some women with UC. 

Funny that when I started mentioning this to my GI ten years ago he would look at me like I was a little crazy.  Last time I mentioned it (09/09/09) he said I should talk to my PCP about it. 

Maybe there's some validity to the hormone theory. 

Posted 5/24/2010 2:06 PM (GMT 0)
I was sort of in a mini-flare before my hip surgery in April (4/5 times a day, not well-formed, some blood) and sicne the surgery, I've been goin 1/2 times a day, well-formed, no blood. Is this "spontaneous" or somehow the meds I'm always on kicking in, in a different way....? Who knows, but I'll take it!
Posted 5/24/2010 5:47 PM (GMT 0)
Yes, I went into spontaneous remission. I will never know for sure why, but I credit it to LOTS of rest, low residue diet, vast reduction in stress (I retired from the workforce), and no alcohol for several months.
Posted 5/24/2010 9:01 PM (GMT 0)
It really is nice to hear it can happen...fingers crossed that we all can have some of that ;)

Enjoy your summer everyone - it's getting hot out !

Posted 5/24/2010 9:58 PM (GMT 0)
It happened for me! My first and worst flare lasted for a year. Was just about as bad as you can get, then literally over a weekend my symptoms went away - med free. There is hope! :-)
Posted 5/24/2010 10:24 PM (GMT 0)
     I went to a colorectal surgeon following my last hospitalization two years ago.  He was very reluctant to perform surgery on me.  As a matter of fact, he really scared the living daylights out of me of ever having surgery...said my condition may be worse than I was experiencing at the time.  I was very sick too, the bleeding had stopped but I still had urgency and going 4 - 5 times a day with pain.  He said that I would be going more than that, probably 6 - 8 times a day, and the surgery was very risky...yada, yada, yada.  He was the one who told me that UC sometimes just "burns itself out".  Unfortunately, for me, that didn't happen and now, with much trepidation, am heading for surgery on June 28th.  Not with that surgeon though..lol.
Posted 5/25/2010 3:32 AM (GMT 0)
What conditions "mimic" UC?  I thought that once you had a biopsy that confirmed what you had.  Thanks.
Posted 5/26/2010 4:40 AM (GMT 0)
Infections of viral, fungal, bacterial, herpes or infestation of parasites can mimic UC, as well can early stages CD of the colon, microscopic colitis, ischemic colitis...etc.

UC is ofttimes concluded upon once others have been eliminated in conjunction with blood tests, biopsies,....but not to say it can be in conjunction with something else.

q
Posted 3/18/2018 4:05 AM (GMT 0)

songlady said...
I was sort of in a mini-flare before my hip surgery in April (4/5 times a day, not well-formed, some blood) and sicne the surgery, I've been goin 1/2 times a day, well-formed, no blood. Is this "spontaneous" or somehow the meds I'm always on kicking in, in a different way....? Who knows, but I'll take it!

So is 4/5 times a day a mini-flare? Really? Then maybe my diagnosys is messed up.
Posted 3/18/2018 4:43 AM (GMT 0)
I wouldn't call it a mini......maybe milder depending on the extent location.

This is 2010 thread...

q
Posted 3/18/2018 5:14 AM (GMT 0)

quincy said...
I wouldn't call it a mini......mmaybe milder depending on the extent location.

This is 2010 thread...

q

2010... and there's almost 100 years since UC was discovered and not much more was discovered since. So it doesn't get old. Still. Milder? For me 4/5 is a disaster. Would a pancolitis regress and become a left colitis?
Posted 3/18/2018 5:42 AM (GMT 0)
As you heal....UC flares upwards from in the rectum, heals downwards to in the rectum. Mine is pretty much limited in lower rectum now, originally at diagnosis was into the sigmoid.

q
Posted 3/18/2018 5:55 AM (GMT 0)

quincy said...
As you heal....UC flares upwards from in the rectum, heals downwards to in the rectum. Mine is pretty much limited in lower rectum now, originally at diagnosis was into the sigmoid.

q

Microcopicaly? So there's actually a cure. Just not by meds. It could heal the rectum too. Then you'd be clean.
Posted 3/18/2018 6:23 AM (GMT 0)
No cure....my last scope was all good. Not cured.
You seem to have high expectations.

q
Posted 3/18/2018 10:57 AM (GMT 0)
Marcell I suggest you continue reading about UC and learn as much as you can. UC comes and goes... sometimes it is active and then goes into remission. Remission does not mean "cured," just inactive. One person can stay in remission for years while another never achieves remission. # Of bowel movements is just one indicator of disease activity. Once again, everyone is different. Some people even get constipated when flaring.
Posted 3/18/2018 3:22 PM (GMT 0)

quincy said...
No cure....my last scope was all good. Not cured.
You seem to have high expectations.

q

Well, what did your biopsy show?
Posted 3/18/2018 5:05 PM (GMT 0)
^^Semantics and perspective can skew reality.
q
Posted 3/18/2018 7:20 PM (GMT 0)

quincy said...
^^Semantics and perspective can skew reality.
q

Again, what did your biopsy show?
Posted 3/18/2018 7:28 PM (GMT 0)

Uniform Charlie said...
Marcell I suggest you continue reading about UC and learn as much as you can. UC comes and goes... sometimes it is active and then goes into remission. Remission does not mean "cured," just inactive. One person can stay in remission for years while another never achieves remission. # Of bowel movements is just one indicator of disease activity. Once again, everyone is different. Some people even get constipated when flaring.

That's what I'm trying to do. As even science doesn't know much about it, we are the ones who need to worry about ourselves. Well I see, everyone is different. My biopsies show I have active pancolitis. But I don't have any flares and there are no ulcers or scars. Actually, last week I had a small crysis. I lost my parking ticket in a way that's so imbecile that I got very stressed (I couldn't believe that happened). Then I felt abdominal pain for around 20 minutes. But no urgency to visit the toilet. Later, gooey stol and a bit of diarrhea came. I don't know. It's not very specific. The biopsies show something active. Still, my flares are stress crysis when there's no stress and no sugar, there's no flares.
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