HealingWell
Search Close Search
☰

Goodness, I hope this works...

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 7/16/2010 4:32 AM (GMT 0)
      I have had UC for about 19 years, thankfully I spent most of that time in remission. These last 2 years or so have been kinda rocky, I started to flare and I had a crappy GI who didnt listen to me so I ended up with Cryptosporidiosis undiagnosed for about 3 weeks. I got better from that and promptly changed to a wonderful GI and we got things mostly straightened up, but then for some reason the mesalamines quit working and the inflammation spread from just 7 inches of colon to the entire thing. Meds probably quit from having taken them for so many years. So he started me on azathioprine 3 weeks ago and I'm just getting worse and worse. I'm so weak I cant even pick up my 4 yr old son nor the vaccuum, lol.  I have lost so much weight recently that all my friends and family are scared to death as I have until now been heavy my whole life. I called the Dr and now he added Pentasa, he also said that if this doesnt do the trick then we will need to do Remicade. I guess I dont really have a specific question, I'm just so terrified that it's getting so bad so fast. I really hope  the azathioprine works.
Posted 7/16/2010 4:37 AM (GMT 0)
Hang in there! Maybe you could try a sulfa as well if you don't have allergies? Imuran works great for me, I hope it works for you too.
Posted 7/16/2010 5:09 AM (GMT 0)
I think Azathioprine can take 3+ months to be fully effective. Try to hang in there.
Posted 7/16/2010 5:26 AM (GMT 0)
For me it took about three weeks but for some, up to three months. I'm sure you'll know when it does. =) Hopefully soon like for me. What I did was stay on my Asacol til the Imuran kicked in, even though the Asacol wasn't enough for me. When the Imuran kicked in I quit the Asacol.
Posted 7/16/2010 6:07 AM (GMT 0)
Cool, the Pentasa has both mesalamine and sulfa. I hope it helps enough to let the Imuran work. Do you really have to stay away from sick people? Does it affect us that much? And how much are we supposed to just live with? I mean like bleeding and D and searing crampy pain?
Posted 7/16/2010 10:28 AM (GMT 0)
No, the Pentasa doesn't have sulfa, although the enemas may have metabisulfite as preservative.

q
Posted 7/16/2010 1:57 PM (GMT 0)
Your story is similar to mine with the exception that drugs stopped working for me 10 years after my original diagnosis. I lost a lot of weight and looked ghastly, not to mention I felt like crap. Hopefully Remicade will work for you and get you back in remission quickly.

Sue
Posted 7/16/2010 6:43 PM (GMT 0)
Hang in there and try not to stress...it will make things worse.

Eat healthy, soft foods. Not too much sugar or fats.

Try some probiotics as well...they help alot of people here.

Yogurt, oatmeal, bananas, salmon, rice, applesauce, chicken, rice krispies, rice pasta with olive oil.

Things like that help me eat and don't bother me too much.

Good luck

Posted 7/17/2010 2:23 AM (GMT 0)

Supergirl257 said...
Cool, the Pentasa has both mesalamine and sulfa. I hope it helps enough to let the Imuran work. Do you really have to stay away from sick people? Does it affect us that much? And how much are we supposed to just live with? I mean like bleeding and D and searing crampy pain?

 It affects me a little. Before UC I rarely got sick but when I did it was really bad. Now I get sick as often as a normal person and no worse than a normal person. But I do take my vitamin C and get my flu shot.
Posted 7/17/2010 10:38 PM (GMT 0)
But as for everyday pain and D, what is a normal amount to just live with. I really don't want to go on Remicade.
Posted 7/17/2010 10:39 PM (GMT 0)
But as for everyday pain and D, what is a normal amount to just live with. I really don't want to go on Remicade.
Posted 7/19/2010 3:10 AM (GMT 0)
Remission for me is one bm a day, maybe with some cramping beforehand. Maybe kind of urgent. But remission's different for everyone.
✚ New Topic ✚ Reply