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Posted 7/26/2010 6:27 PM (GMT 0)
Hi Everyone..

I havent been on in a while..been very busy with works and general summer stuff..

Just wanted to update to see how everyone is doing and give an update on me as well..

Kweeks- how are you? Are the enemas doing their thing or did you stop???

Well..I have gone off the suppositories that I was doing..still doing the enemas every other night and 12 salofalk a day.

I dont really know at what point I can start to decrease the meds further..

I would really like to get those orals down asap...

Right now I am have formed bms, 1-3 a day usually, no blood or anything else..sometimes on the mornings after an enema things are a bit looser and thinner but i think i remember that being normal when on enemas...

I am eating pretty much everything I want..trying to keep it healthy but cheating here and there witih no issues..

I feel I am a bit better than before the last flare remission wise..the stools are more firm and larger. The qty still bothers me a but as before UC it was only 1 per day and now it varies a bit..

 

Posted 7/26/2010 8:07 PM (GMT 0)
Glad to hear your feeling better!
Posted 7/26/2010 9:54 PM (GMT 0)
Good news! Since you're eating more, you'll be putting out more.

REmember that low rectal inflammation or very mild inflammation can cause some slower bowel output...maybe that's what was going on and this is becoming your norm?

You can always cut back one pill every month.

q
Posted 7/27/2010 1:44 AM (GMT 0)
Hey Krissy,
Glad to hear yo are doing better! YAY.
I have been sooo busy. We just moved yesterday so thats stressful but we're getting things organized slowly. I think that O am stopping the enemsa for now. I was thinking of tapering but as of tonight I am just stopping cold turkey. It has been 2 or 3 nights since I last took one. Instead I am using a salofalk suppository at night. I think the enemas were irritating me more.
Today I had the most perfect BM I have had in months... we'll see. I may go back.

I am still flaring 1-2 BM's a day, some blood, looser (but this was all using the enemas so who knows what will happen now). I am also having random cramps throughout the day and sometimes nausea. I just want it to end!

Anyways, keep us posted. Check in when you can.
Posted 7/27/2010 12:40 PM (GMT 0)
fingers crossed but I havent felt this great in a loooong time..I am glad I was able to turn that flare around without steroids..I was so close to giving in and taking them.
I think I may wait till I further taper the enemas to taper the orals. I want to get to doing them twice a week before I taper the orals..so I guess I will just stay here for now..spending a lot of money though!!
Posted 7/27/2010 1:24 PM (GMT 0)
That sounds like a good idea. Well today again, no blood and more formed stools. I think the enemas were not great for me. But I am getting nauseous from the suppositories I think. Is that possible?
Posted 7/27/2010 2:10 PM (GMT 0)
Congrats on the progress. Keep it up ;)
Posted 7/27/2010 2:29 PM (GMT 0)
could be..not very likely though..are you preggo?
Posted 7/27/2010 5:18 PM (GMT 0)
That's what I thought too Krissy...lol. kweeks?
Maybe use the supps twice a day. The nausea could be from low rectal inflammation, reflux (have you tried zantac yet?), spasming (Bentylol), diet (is it after you eat?).

Hope you get it figured out soon.
q
Posted 7/27/2010 7:00 PM (GMT 0)
HAHA! No, I am not preggo. :) That's hilarious. One 9 month old is enough for me right now, especially since he is now mobile and I am constantly chasing him!!

You know, the nausea is a weird thing, it comes on after I take a nap (if I do which is rare) and maybe sometimes after I eat. I keep forgeting about the zantac quincy, I have to go to the pharmacy today to pick up my rx refills so I will pick up the zantac too. I think that might be the cause b/c I sometimes feel n ever so slight burning in the heartburn area (dont kknwo how else to describe it).

My GI is away until August 9th so I will make an appt to dicuss me and then request the anti spasmod. then.

I am sched. for an endoscopy in October...
Posted 7/28/2010 8:54 AM (GMT 0)
kweeks...Well, you'll be covered regarding tests.

If you get nauseated after laying down it could be reflux or a quickening of your digestive system (once up, it's active again)/colon, especially if you still have inflammation.

Hope you can get in with the doc soon after he arrives from holiday.

Start your list...lol.
q
Posted 7/30/2010 1:46 PM (GMT 0)
I do get nausious sometimes too but only in a flare...other than that it would have to be if Im sick with a virus or something..
I hope I can maintain this remission for a long time..fingers crossed. I do call this remission as I dont think its gonna get any better than this for me...
Or..it just might get better with more time being in this good state...
All in all I am very happy like this and my body seems to be happy with it too. I am more relaxed these days as well so I think that is helping..it was 4 years ago around this time when my symptoms first started...wow..

Q-
just a question about the pearls and Fortify you take..do you take this all with the UFCC? I dont want my body to get used to anything so I was thinking maybe to alternate..another one I might try is the BIO K..my body seems to like the UFCC..I am still doing 2 caps a day.

Also..with regards to the enema taper..next Friday will mark one month that I been doing 1 every other night. I wanted to go to three set days a week and stay there for a bit before going to two days a week..I was thinking Tuesday, Thursday, Sunday? Would that work..or is there a better schedule?
In September I will start to decrease the Salofalk till I get to 6-8 per day..probably will just stay at 8 for a while.
Posted 7/30/2010 5:57 PM (GMT 0)
Hi Krissy....you should only taper the Salofalk oral one pill every week at the very least...

How often do you take the pills...twice or thrice...what's four times..frice? lol!

Regarding the enema taper, I follow the days in a row marking it on a calendar, not following specific nights such as you mentioned. That could work better with twice a week than every second day. Twice a week could be every Tuesday and Friday or every Monday and Thursday (for example).

Probiotics...I do find the UFCC and the Fortify the best combo. The Reuteri is to throw in the mix. I take them all at once at night.

You could take the UFCC nightly (one cap) with alternating Fortify and Reuteri or whatever else you would like to try. I've taken New Roots and like it as well...but not the powder, although it did agree.

experimentation is good...unless you're doing it with no meds...then that might not be such a good idea.

Awesome to hear you stuck it out with the enemas and the meds. It's been a rough time for you in the past emotionally...it pleases me you're finally getting a break!

quincy
Posted 8/2/2010 4:39 PM (GMT 0)
I take my pills four times a day..sucks..thats when taking 12..when taking 9 i do three times a day

What is Fortify? who makes it..?

Posted 8/2/2010 6:00 PM (GMT 0)
Nature's Way makes it. It's non-refrigerated, but I keep it in the fridge anyway.

Yeah, 4x daily would suck, but you could still do it 3x.

stay well!
q
Posted 8/3/2010 1:55 PM (GMT 0)
I looked up Fortify and can not seem to tell the difference between it and the UFCC?? Looks like the same strains? Am I missing something?
Posted 8/3/2010 5:02 PM (GMT 0)
no, some are different, some are the same.

q
Posted 8/4/2010 6:15 PM (GMT 0)
you mean some strains are different? which ones?
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