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week 10 whipworm

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Ulcerative Colitis
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Posted 8/19/2010 7:57 AM (GMT 0)
Hello Everyone

Now Im on week 10 for whipworms and there is absolutely not better than when I started.

I thought I could see some improvements the first weeks but it turned out it wasnt.

Since the drugs dont work and neither the helmintic therapy and the SCD diet.


Im thinking about do the fecal transplant in Australia.

I just hate to go for my "last hope"
Posted 8/19/2010 9:56 AM (GMT 0)
That's disappointing. My experience has been a mixed bag these days, but I'm certainly better than I was a beforehand.
Posted 8/19/2010 11:10 AM (GMT 0)
That's terrible dg. I hope you find FT a miracle treatment if you go that route.

Man, seconder your comment is very disappointing also. I believe of all the heminthic therapy success stories I have read, yours was the best.
Posted 8/19/2010 2:21 PM (GMT 0)
What medical options have you tried? You don't have a signature. I would consider worm therapy, it's discouraging to hear that you guys aren't having more luck.
Posted 8/19/2010 9:02 PM (GMT 0)
Worm therapy works for some of us. I think its defenatley worth a try.

I tried Asacol, prednisone and cortison.
It took away the bleeding but gave me extreme D, loads of mucus, hair loss (came back when I stopped), sexual dysfunction.


I tried all diets.
I tried acupuncture, which actually works pretty well, but there is a cost/time. So this is my last exit.
I tried homeopathy for 6 month, no differens.

The best supplement I tried is defenatly cranberries.

Sorry for the spelling
Posted 8/19/2010 10:09 PM (GMT 0)
I would do it again; it had a very dramatic effect on my overall symptoms.

I still have some low-grade intestinal symptoms that aren't all that bothersome.  However, I have joint pain and fatigue that I just can't shake.  If I had to live the rest of my life with the intestinal symptoms I have now, I'd have no problem with that.  I can't bear the fatigue, though.  It's miserable.

 

Posted 8/19/2010 11:13 PM (GMT 0)

downgarden said...
Worm therapy works for some of us. I think its defenatley worth a try.

I tried Asacol, prednisone and cortison.
It took away the bleeding but gave me extreme D, loads of mucus, hair loss (came back when I stopped), sexual dysfunction.


I tried all diets.
I tried acupuncture, which actually works pretty well, but there is a cost/time. So this is my last exit.
I tried homeopathy for 6 month, no differens.

The best supplement I tried is defenatly cranberries.

Sorry for the spelling

Did u try Ayurvedic medicine.... i tried them once and they worked but the ayurvedic doctor(in India) was not willing to give the name of his homemade medicines he gave me so i decided not to take his medicines anymore. I know just few names which were some flower powder and something with butter in it. Anyways, i have still not left hope of trying Ayurvedic meds again... i found a ayurvedic doctor who claims to have cured UC patients and doesn't even hide name of his medicines. Just check his site: http://ulcerativecolitiscure.com/cv.html .... he has testimonials, medicine info. etc on side on this side. I am planning bto give him a try...he is even willing to send medicines to US.... i was searching through old posts if anyone had taken treatment from him & 'psadelhi' had mentioned him once...but he doesn't come anymore online so i dnt know if his medicines worked for him or not.
Posted 8/20/2010 11:36 AM (GMT 0)
Downgarden, are you taking pig or human whipworm?
Posted 8/20/2010 12:53 PM (GMT 0)
Levi- I take pig whipworm. The one from biomonde thailand.
Are there any differens in how well they work?
How do the VSL#3ds do for you, any differens?

Zamba- I have taken just this ayurvedic treatment you talk about (http://ulcerativecolitiscure.com/cv.html)
It was quite expensive to order from india.
And It did not work.

I also had tons of traditional chinese medication, and it didnt work either.
Posted 8/20/2010 1:10 PM (GMT 0)
Downgarden,
We've spoken to Jasper Lawrence from AI Therapies a couple of times and he said that for UC human whipworm seem to be more effective. They didn't have much success with pig whipworm, though I believe they still do use it for CD but I'm not sure. It's a little confusing.
Posted 8/20/2010 1:13 PM (GMT 0)
DG,

I think the VSL helps. I upped it to four packs a day (3.6 trillion bacterium/day!) and I believe it helped in my first flare tremendously. I'm doing four packs currently and the verdict is still out.

From everything I have read, the human whipworm is much more effective for ulcerative colitis than the pig whipworm. Some folks were discussing a pig whipworm study recently on UC patients that was considered effective in 43% of the subjects. I believe there were only 30 in the test, so it was 13/30 as far as inducing remission. I believe the human whipworm is far more effective than this. They also have to be taken less frequently.
Posted 8/20/2010 1:22 PM (GMT 0)
Nice to hear. I hate the feeling of running out of options. Its my new last resort :)

Im gonna try the VSL#3 we dont have them in my country but I heard that there is in amsterdam and london.

peace out
Posted 8/20/2010 1:24 PM (GMT 0)
I just did some searching and a pig whipworm study on Crohn's had "major" improvment for 23 of 24 patients. Here is a concurrent study with CD and UC patients. Seems like the pig whipworm is definitely better for a Crohn's diagnosis:

http://www.eurekalert.org/pub_releases/2004-04/ns-dow040704.php

The Joel Weinstock guy quoted at the link is pretty much the pioneer and trailblazer for all helminthic research...

Looks like the link is broken but there were 100 patients each with UC and CD, with 50% success for UC and 70% for CD. I was going to post the summary but can't find the site on Google now for some reason. rolleyes

Posted 8/20/2010 4:08 PM (GMT 0)

downgarden said...


Zamba- I have taken just this ayurvedic treatment you talk about (http://ulcerativecolitiscure.com/cv.html)
It was quite expensive to order from india.
And It did not work.

I also had tons of traditional chinese medication, and it didnt work either.

I was planning to give it a try .... but i guess i will be reluctant now since it did not work for you. I will start looking for something else now shakehead
Posted 9/27/2010 4:09 PM (GMT 0)
It worked for me and put me in remission. How many whipworm did you ingest? When did you take them?
I have 35 hoorworm since April and I ingested 2500 ova of whipworm in August. It took me 12 weeks to reach remission.
Did you check your vitamin D levels? Are they at least 50ng/ml? Do you take any supplements?
Posted 9/28/2010 1:59 AM (GMT 0)

I still have some low-grade intestinal symptoms that aren't all that bothersome.  However, I have joint pain and fatigue that I just can't shake.  If I had to live the rest of my life with the intestinal symptoms I have now, I'd have no problem with that.  I can't bear the fatigue, though.  It's miserable.

 Are you sure your fatigue & joint pain are not vitamin D related? A year & a half ago, prior to my UC diagnosis, I was in horrible pain all over, fatigue isn't enough to describe how tired I was...after many different specialists, they tried to slap the fibro label on..I refused & kept digging, asked for a D test, BINGO, life changing!

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