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So nice 2 B in remission part 2

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Ulcerative Colitis
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Posted 8/16/2010 11:43 AM (GMT 0)
Hi all yet again.  I just got back from a 16 day trip to Englgand to visit my wife's family.  As we all know traveling can be one of the worst things to happen to a UC'er.  I have to admit that I was also worried although I considered myself in remission.  Well, after 20 hours of planes, 50 subway rides, 15 hours of country driving, cable cars, walking (about 10 miles worth), drinking various European beers and eating anything that came my way I can safely say I had not one problem with my UC.  I just wanted to share.  It's still once a day, no urgency, and formed.  The Imuran has really helped me.  I have a colonscopy coming up this Oct. and my doc and I expect to see a completely normal colon. 

I just wanted to share a positive experience.  My UC was really bad back in the day.  I am so happy to have gotten it under control for now.  Again, the future may change things but right now it's good.

Good to be back with you all, I will try to contribute.

MyUC

Posted 8/16/2010 12:40 PM (GMT 0)
THanks, I love these stories. As you know you tend to hear people w/ only problems on these forums (for good reason) Please keep contributing these good things and I am so glad you had a great trip and no UC issues!!!
B
Posted 8/16/2010 2:19 PM (GMT 0)
It's great to hear your report! Please do post once in a while - I think stories of hope are so necessary!
I am so glad the Imuran has "done it" for you and that you have been able to live without thinking about UC all the time!
Posted 8/16/2010 4:48 PM (GMT 0)
Great to hear!!!!

Welcome back,
q
Posted 8/16/2010 5:09 PM (GMT 0)
Thanks again for the positive response thus far.  I realize there are some people here having a very difficult time with their colitis but this post was meant for them.  Not to lose hope.  I always realize things may change for me in the future and I will be the one looking for a positive thread to help me cope.

So far so good.

MyUC

Posted 8/17/2010 12:24 AM (GMT 0)
Great. I'm glad it's working so well for you and hope it continues to do so for many years (by which time there will be a cure of course)!
Posted 8/18/2010 1:50 AM (GMT 0)
Hi there - yours is great news. So are you saying that you are able to eat anything now and not flare? That's incredible. My last scope in Dec showed no sign of UC and a completely healed colon but now I'm flaring. I don't know how I went from no sign of UC to where I am now. Is it emotional, physical..is it diet or environment or hereditary? Congrats to you. It's so nice you were able to fully enjoy your holiday.
Posted 8/18/2010 12:51 PM (GMT 0)
UniG:

Yes, I am albe to eat anything and everything and I feel like I don't even have UC.  It's like the pre-UC days.  Please keep in mind it hasn't always been like this.  For about 10-15 years I suffered really bad with UC with a lot of blood, pus, mucus and urgency.  Basically the GI I was seeing was letting my UC spread throughout my colon and just get worse.  It's only when I went to a different GI doc that I was put onto the Imuran and my colon healed.  It's been a little over a year now with being in remission.  It just feels great to not constantly think about my ass and where are the bathrooms, etc... 

As far what causes it I have my ideas.  I agree with most GI docs in that it's not caused by food, or something external.  It primarily has to do with a hypersensitivity in one's owns immune system.  Like an allergy.  Yes, changes in ones gut flora through antibiotics and stress can aggravate it it but the cause is very mysterious, autoimmune is like that.

Thanks for the positive reply. 

MyUC

Posted 8/20/2010 9:15 PM (GMT 0)
how much time did it take to imuran to have effect, and how did it was your journey to remission?
Posted 8/20/2010 9:44 PM (GMT 0)
Hi MyUC, thanks for your reply. My GI told me that sometimes people outgrow this disease. However, I'm not completely happy with him and have booked an app with anther GI at a well known IBD clinic at our most "celebrated" hospital. Fingers crossed!
Is it true that UC can spread if not under control? When first diagnosed i was flared 9" from bottom, a year later of not enough meds and I was 17" and last year he said there was no sign of UC - that all looked normal ( while on meds that is). I love the idea of my colon healing like yours did - gives me hope. I'll have another 'scope in June - when I'm done school. I'm making a career change and am returning to university for a year.

best,
UniG
Posted 8/20/2010 11:09 PM (GMT 0)
asrubale:

The imuran worked on me very quickly, I would say about 2 months.  We were taking weeking CBC's and my bloodwork showed the wbc dropping rather quickly. 

UniG:

Yes UC is known to travel and spread throughout the colon.  It usually starts in the lower portion, the sigmoid, the rectum and then, if unchecked, will travel up the descending, transverse and then the ascending.  That is exactly what my path reports showed from my 7 colonscopies.  Once on the imuran it was 90% normal, we expect to be 100% normal this Oct.  My thread was meant to give people hope.  I had to switch to another GI doc like 3-4 times before I found "the one."  I am very happy now.

Keep the posts coming.  Continue to be hopeful, sometimes that's all we have.

MyUC

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