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Ulcerative Colitis
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Posted 9/8/2010 2:40 AM (GMT 0)
Hi everyone. I am new to this site and so glad I found it!
My uc is under control right now, but I feel so alone all the time. Even when it is okay, that doesn't mean you are. I have had uc for three years now. I have no one I can talk to about having this disease. I mean, I can talk to people if I wanted I guess, but they don't understand what it feels like. I'm just looking for some people to chat with every once in a while.

Thanks!
Posted 9/8/2010 2:48 AM (GMT 0)
I can completely understand.  I recently joined this site after going through my first major flare in the beginning of August.  I had felt very much isolated and alone like I was the only one experiencing all the terrible symptoms that go along with UC.  I have found the people here very understanding and very helpful.  I hope you will feel the same.  I no longer feel like an isolated case.  Welcome to the site.
Posted 9/8/2010 3:02 AM (GMT 0)

First of all welcome.  You will never have a reason to feel alone now that you have found this site.  There are hundreds if not thousands of people here who have UC who feel very comfortable sharing their experiences.  In a way I feel I give back to the UC community by sharing what little I know so that other people can benefit in some way.  Please feel good knowing that you are by no means alone.  Share your feelings here without being ashamed about your UC and you will be surprised by the amount of emotion that people here give to you.  I know how you may be feeling.  UC is a very private disease and most people don't want to discuss it with people who don't have it because those people often have a hard time understanding the pain and anguish that we go through.  They see a completely normal people who is just wierd.

Feel at peace here.  This forum will help you feel like you have found a home. 

MyUC

Posted 9/8/2010 3:10 AM (GMT 0)
talulah7 - I know exactly how you're feeling! I was just diagnosed with UC last week and I have been suspecting I've had it for over a year. I found this forum randomly through a Google search and I must say that the information I have found here has definitely helped me feel less alone - and less depressed. It's definitely hard to talk to others about the disease who don't have the disease. I have been made fun of by family members due to the need to find a toilet in a public place ASAP. It's humiliating to say the least. I'm so glad you found this forum - there is a wealth of information to be shared and everyone is so understanding and welcoming.
Posted 9/8/2010 8:34 AM (GMT 0)
Hi..welcome to the forum!

There's no shortage of talking here...lol.
q
Posted 9/8/2010 3:39 PM (GMT 0)
Welcome! You are not alone, come to this forum to vent etc....we are all here for you!
B
Posted 9/14/2010 12:25 AM (GMT 0)
For sure you will never have to feel alone here, some as yourself are just beginning the turmoil of UC, others like myself have already suffered for many years, 15 or so. I still remember the start and going back I think I know one of the contributing factors, the use of antiinflamatories used after back surgeries, even this flare now started when my Dr. changed the type I was taking. At any rate Vent, Rant and Rave if you like it's a rotten desease that nobody deserves but everyone here has it and totally understands what you are going through.
Posted 9/14/2010 2:53 PM (GMT 0)
Talk away! I am also glad to have found this site.
Posted 9/14/2010 10:04 PM (GMT 0)
Welcome to Healing Well!

I've lived with this thing for more than 2 decades, and... right, it doesn't make great luncheon conversation. I joke - but in fact, I don't talk much about it at all, because I don't want to be viewed as "sick." I realized recently that even my wonderful husband, who has been by my side since my diagnosis, through hospitalizations and all, does tend to "glaze over" a little when I start to go into too much detail about meds, etc.
So - that's what this community is for! This is a place where folks truly understand, and have taken the entire range of meds and have tried many alternatives.
Again, Welcome!
Posted 9/15/2010 10:32 AM (GMT 0)
Welcome! I've had UC for 3 years and it's under control as well. I understand the feeling of being alone...this isn't a disease that is pleasant to talk about and it's hard to explain to people why you feel so awful if you don't want to mention bowel symptoms.
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