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Ulcerative Colitis
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Posted 9/24/2010 8:09 PM (GMT 0)
week 3 and so so tired, and feel so very sick, any words of encouragment or anything, please let me read the posts xx
Posted 9/24/2010 8:18 PM (GMT 0)
I've heard taking it at night helps with the sick feeling... have you tried that?
Posted 9/24/2010 9:06 PM (GMT 0)
Not too sure about how to help with how u feel, but I've always taken Imuran with food in the morning. Have u taken it with food at all? When are you scheduled for another blood work check?
Posted 9/24/2010 11:08 PM (GMT 0)
I take 6mp which is similiar to Imuran (Aza). I had a hard time in the beginning too until I started taking it before I went to bed. The fatigue though should lessen once your body gets used to it which can take a month or two. But I have to second the question that Sweetie had - it is very important to be sure to get your blood drawn frequently to be sure that your WBC is not lowering too much.
Posted 9/25/2010 12:32 AM (GMT 0)
Sorry you are feeling bad. When I started Imuran I was fine for a couple of weeks. Then I started getting tired and it got really bad with nausea and vomiting. Not to fear though... as Red_34 said, it will pass after awhile. Now I take it with or without food with no problem at all! You'll get there!!!
Posted 9/25/2010 12:37 AM (GMT 0)
I am feeling very sleepy the past week or so too. I wonder what is causing this. I don't sleep - it's probably the lack of sleep, not the drugs... I've heard a lot of people say to take Imuran before bed. I take my 6mp in the AM because it's easier for me to remember.
Posted 9/25/2010 7:25 AM (GMT 0)
what fab advice, i do so appreciate it, i tak my aza with a few biscuits in the morning, i have considered taking them in the evening, i guess i wanted confirmation from users, i have my bloods done every 2 weeks right now, im lost when it comes to all the terms for aza, and imuran, and 5 aday , or what ever the term is x
Posted 9/25/2010 11:00 AM (GMT 0)
Aza refers to azathioprine which is the same thing as Imuran. Aza is the generic form. 6mp or mercaptopurine(generic) is similiar to Imuran (Aza) except Imuran breaks down into 6mp in the liver. And 5-ASA is the general term for our maintenance medication such as Colazal, Asacol, Lialda, Pentasa, Apriso.

Yeah, it's confusing to keep them all right! :) It took me a while to get them straight too.
Posted 9/25/2010 1:17 PM (GMT 0)

maud: 

I was just waiting for an answer from you before I chimed in.  Red 34 post about clarifying the meds is a good.  I was going to post it myself but she beat me to it.  Nice job Red 34.  When I prescribed Imuran(Aza) or azathioprine I was specifically told to take it at night before bedtime exactly for the reason you describe.  I have had no real problems with it.  The two week interval for your blood work is a good one to start and you will eventually go once a month then every 3 months assuming your doc is a typical one.  How have your blood tests come back?  What is your wbc count?  What about Hg?

Take it at night and see how it goes.  Aza has worked well for me.

MyUC

Posted 9/25/2010 5:05 PM (GMT 0)
thanks lovely people, tomoorow i will be takin it at night thats for sure, i am a wig consultant and i am the founder of my own charity for alopecia, so this fatigue lark is very unconvinient lol

ty for the explanation of the meds, confused .com lol

tomorrow is another day x
Posted 9/25/2010 5:10 PM (GMT 0)
apologies,
i have no idea what my counts are, i had my bloods done on fri and called back monday, they were normal. next bloods this friday, when youre pills started to help, what changes did you see about in week 3 or none? i am bleeding less for sure, and not going so much, and atlast holding my own wind,, ( never thought i would be proud to have wind naturally ) lol
my prednisalone( 11 weeks) finsihed yesterday after tappering to one a day for 3 weeks, so now im just on asacol, anti-sickness and azatiprine
Posted 9/25/2010 7:00 PM (GMT 0)

maud:

3 weeks, I saw no real change.  Very early.  You have to look at in terms of months.  Also what dosage are you on?  It's very significant.  The docs will usually start you on a low loading dose and see how you do.  I started at 50 mg, then 100 mg, then 200 mg and then tapered down to 150 mg.  Good luck with it.

MyUC

Posted 9/25/2010 7:17 PM (GMT 0)
omg i am on 50mg also, 5 day

can i wait much more? grrrrrrrrrrr
thanks for the reply x
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