Finally changed my GI....UPDATE!! post appointment UPDATE!!

Good move!!! looking forward to the update.

q

Sounds like a plan. How long have you been on the Rowasa nightly at this point?

Did the new GI take a look-see?

All you can do is try the meds...

Happy you like your new GI...that's most important.

q

quincy said...
Sounds like a plan. How long have you been on the Rowasa nightly at this point?

Did the new GI take a look-see?

All you can do is try the meds...

Happy you like your new GI...that's most important.

q

sorry for late reply quincy! .... i have been on rowasa for nearly 9 months now....i started in january'10 after canasa was not working.
I did ask my new GI for sigmoidoscopy but he told me he will do that only if the change in medicine plus cortisone enema fail to get my flare up under control.
thanks for help!!

quincy said...
9 months nightly? and he just changed from Lialda to Asacol? please clarify since I'm a tad confused obviously..lol.

When will you see him again and go on the steroid enema?

What exactly are your symptoms that you aren't controlled yet with the oral/rectal 5ASA.

I remember now that you've struggled with this, but am not clear on the facts.

Thanks...
q

Yes that is all he changed- just Lialda to Asacol! According to him I need to start steroid enema only if my condition does not improve by changing to Asacol..... i think a month or so.

My symptoms when i met him were: blood/mucus(not a lot!) in stools for a week then 10-15 days symptom free... then again the flare would start for another week or so. A little travel, little time in sun would give me a flare up. Earlier when dx i used to have constipation but since past few months i had started running to rest room 2-3 times a day ( i guess flare was moving up my colon!)

Is it bad to take Rowasa for so long... i m worried Can it give me side affects? I have no appointment with GI .... but i can take an appointment if you suggest i need to talk with him abt rowasa.
thanks!

Post Edited (zamba) : 10/4/2010 11:01:11 AM (GMT-6)

quincy said...
Hi...no apparent problems with the Rowasa nightly...unless you're sensitive to something in the Rowasa. You should have had more improvement with being on nightly...I would think maybe adjusting and trying the cortenema or alternating it with the Rowasa.

If you are sensitive to the Rowasa, maybe the 4g is too high a dosage...or possibley something in the Rowasa such as the preservative which is metabisulfite. You can get the ones without that preservative.

Travelling can be hard on the system, especially if it causes more stress.

I think you should set up an appointment eventually for a c-scope. When was your last one?

Oh, how many asacol are you on now and how many Lialda were you on?

q

q

Thanks qunicy!
i dnt think i am sensitive to anything in Rowasa, it works fine for me. I was just worried if prolonged use can cause side effects as it has already been 9 months. I will take GIs appointment & i will ask him for scope.... will have to wait nearly for a month before i get his appointment date as he his always booked...also i will be able to have a clearer picture how the change to Asacol worked for me within a month.
I was on Lialda 4 daily tablets and now taking Asacol 3tablets 3 times (=9)daily....though he said that he should put me on 4 tab 3 times (=12) daily but he wanted to check how i work with 9 Asacol daily....and he would increase it if required.
Yes travel gets me all tensed up abt packing, itinerary etc ...and gives me a flare up.. tension is number #1reason for my flares... remember i told you we were planning a family & i was on hormonal meds to be able to concieve....my GI said exactly what you told me earlier.... hormone levels r not letting me get into remission....he was very concerned abt my hormone meds. Have postponed babymaking for some time now

Post Edited (zamba) : 10/4/2010 3:37:19 PM (GMT-6)

quincy said...
Ah, right...I remember now.

It is possible that it takes a while for all the hormone changes to level out...maybe once that happens, your flare will improve?

The other thing...maybe 4g is too much mesalamine and 2g would work better in conjunction with a rowasa suppository in the morning after your bms.

Again, are you on any fibre supplements and probiotics?

How many times a day are your bms?

Is your UC throughout or limited?

q

Hi quincy!
i will talk with my GI regarding 4g mesalamine..... i was nearing remission few days after starting Asacol but i guess that was too early...flare was back yesterday again.... will wait to see how i feel until the time i have next appointment with my GI.
No i am not on probiotics...& i m nt taking fiber but my diet consists of lots of fiber. My UC was limited but i dnt know what it is right now - my last scope was 1 &1/2 years back... earlier i used to be troubled by constipation but now it has changed to urgency. I have noticed that when ever i get a flare up my tummy makes lots of noises.... and lots of gas.