Any other options?? PLEASE HELP

Using hydrocortisone enema. Been having some trouble sleeping so I was only ableto hold my 3rd enema for barely 3 hours.

I guess I'll have to patient. Still having D with a little blood. Blood seems to be more at night. It is also very bright red. Scary. I have told husband to make sure he's getting medicine on rectum.

Maybe go to the hospital if you're distressed. Better than waiting and worrying more.

I would have thought the doc would put you on the 5ASA, not steroid enemas.

Did you just lower the dosage of pred lately?

Keep us posted as to what's happening.

q

lild
so sorry to hear of your hospitalization. hope you feel better soon.

Hi lild,
Haven't posted for a while but browsed the topics every now and again. Came across your post and wanted to see how you are!!??
Im currently in my 13th week of pregnancy so i think we may be near enough the same?? Hope your feeling better!!
I had a bit of a rocky start with all the scare stories, and a few issues. So hoping for the best, not in remission but my UC is moderate at the moment, hoping it will get better now i've entered the second trimester!!
Thought it would be nice to be in contact with you since we both have this darn disease and going through pregnancy! :)
Hope all is well.xx

Sorry to hear that, its good to hear your better then you was and i hopefully that will continue to remission!!
I too have D, and tired!lol I think being a lil anemic and they found im a low on vitamin D hasnt helped. So im trying to up those and see how i go. Im suffering from morning sickness which is a pain!!!! As im worried abt baby not getting enought nutrients and vitamins along with my constant D :(
You just have to pray and hope for the best!!x
It is amazing! I had my 12 week scan last week, and it really brought tears to my eyes! Cant wait for my 20 week scan where i hope again everything is progressing normally and get to find out the sex! :)
Im not sure about the straining hurting baby, i've never asked about it, i may ask my OB when i see him, as i strain often too!!
Im doing ok just trying to stay positive and get through it!lol counting down as i go along really! Just under 6 months to go. How far along are you now?
I stupidly reduced my dose at the begining of pregnancy as i was worried about the drugs during the first trimester! As the registrar that filled in for my rhumetologist sent me in a frenzy when i asked about the safety of sulphasalazine! Then i was told i had high platelets which meant i was in high risk of DVT in pregnancy! They way they combat this is with blood thinner which are injected daily. But the side effect of prolonged use (which would have been 9 months) would mean bone loss. I already have osteopenia from pred use so this worried me further. So i had a tough few weeks of worry!! Untill i was seen by a high risk OB who i am under now, and i feel assured by his knowledge and the reputation the hospital has in fetal care. Long story short i dont need the injections now and im on baby aspirin to thin my blood. But they also think my low iron has caused a rise in platelets so im trying to tackle that at the mo. And the OB said the sulphasalazine is fine! He did recommend i go on pred if get worse. But i upped my dose after i saw him and things started to improve. However the past week or so i've been going alot more, but i'l see how it goes!

xx

Hi Girls! lild, I didn't realize you had been hospitalized!? I really hope you start to get some real relief. I worried a lot about the straining, and constant D, but throughout the horrible flare I had during the first trimester, and the beginning of the second, my GI and OB constantly told me that the baby would take what it needs...and they were right! :) It's amazing how terrible you can feel, and that little peanut is doing just fine! I know it's so much easier said that done, but try not to worry about it too much, and just get LOTS of rest. I'm thinking of you and Mia both! :)

Thank you for your support bbc and UCMomma!
Most ladies feel better in the second trimester when hormones are settling a little. I hope this is the case for both you and I. Im praying i can just hit remission soon, otherwise il have to attempt a course of pred.
I agree family is SO important, i dont know what id do without my mum, theres been points where i didnt have energy to cook or eat and bless shes always been there while hubby is at work.
Your now seeing a improvement and hopefully this will continue, try and stay positive and trust your OB. Are you seeing a high risk obstetrician?
If they re happy with you on the meds and have recommended them then everything will be fine.xx

Aww lild, I sympathise with you greatly!! I too suffered frm insomnia from abt 4 wks for abt a month & 1/2!! It was awful as I was exhausted bt my brain wouldn't switch to allow me to rest. I literally wud sleep for 30mins & b up again I went with NO sleep. Mainly I think due to stress & worry! :( I did ask about anything I could try, & the doc said lavender drops on my pillow, warm bath& drink b4 bed & to try magnesium supplements. Sleeping tablets I've been told are nt safe. I'm sleeping better now, I still wake up twice to use the loo bt compared to how I was I'm alot better.
Try those natural methods & c hw u go. I knw pred causes insomnia so you may need a different approach. Defo talk to you OB, big hug!! Hope you get some rest soon! Xx

Aye! Let's just say if I had military secrets...I'd be talking! Hopefullybthos unpleasantness will let up soon.