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I go into full remission in July/August and am flared up the rest of the year. What about you?

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Ulcerative Colitis
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Posted Today 3:42 PM (GMT 0)
I live in NY. For the last two years, as the weather got warmer and come May/June/Julyish I go into a deep remission where I am almost completely normal. Then come September when the weather starts getting colder and the sun goes away, I flare up and stay flared up for most of the year.

Does anyone else experience something similar?
Posted Today 3:56 PM (GMT 0)
well i live in ireland and the weather is crop, do u take V D3, this would b what u get from the sun.gd luck
Posted Today 4:00 PM (GMT 0)
To test whether this phenomenon is due to vitamin D, I have been supplementing 7,000 IU (that's 1750% of the daily value) of vitamin D3 for over 2 months. It hasn't helped one bit.

Perhaps supplementing vitamin D3 doesn't nearly have the same effect as beng exposed to powerful sunlight directly.
Posted Today 8:03 PM (GMT 0)
What exactly do you do in the summer months of July/August? Do you have holidays? Are there less people at work? How is family situation..kids not at school..changed schedule, etc.

Life happens in any season...I don't equate any of my flares to the weather, but Christmas isn't a good time for me because of the increased distress I always feel at this time. Spring...well, again..increased distress. I usually get colds during those times as well...that in itself causes me great emotional distress, let alone physical.

i personally like winter and thw shorter days don't seem to bother me too much. But my sleep schedule is totally screwed up this season..ugh.
Could be because I'm tapering off the antidepressants...

In any event, you might want to try one of the spectrum lights. I use the Philips goLITE....for those continually cloudy days we've had so much of this year. It seems helpful in the moment to change my mood.

When did you start taking the 7000 IU D3?

q
Posted Today 8:22 PM (GMT 0)
Actually, I was working very hard both times when I went into the deep remission...so I am pretty sure that isn't a factor for this phenomenon.

I started taking the 7000 IU D3 2 months ago.

I checked out the Phillis Golite, but it says: UV-free: No UV or near UV radiation - UVB is what you need for Vitamin D3 production, so I'm not sure what this does for you?
Posted Today 8:32 PM (GMT 0)
A lot of people experience UC seasonality although it doesn't make sense to me. There are some here who subscribe to the mold/candida theory of UC. If their theory has any merit then it would help explain why flares begin in the Fall/Winter. They say that spores could be lurking in the heating ducts and spread throughout the house when the heating system is turned on. Not sure if this makes sense to me but if you think it is a possibility then it would not hurt to get your heating ducts cleaned out.

Perhaps someone who is knowledgeable about this sort of thing can provide you more information. I prefer keeping my head in the sand and being unaware and stupid when it comes to mold and candida.
Posted 11/30/2010 3:06 AM (GMT 0)
BabeintheWoods-That doesn't make a whole lot of sense because mold spores would also be pushed out in warmer months due to the air conditioning being on

I personally get more flares in winter but it does not preclude having summer flares. It may be a vitamin D issue. Not sure. Would need massive amounts of data to figure it out.
Posted 11/30/2010 3:24 AM (GMT 0)

passer said...
I live in NY. For the last two years, as the weather got warmer and come May/June/Julyish I go into a deep remission where I am almost completely normal. Then come September when the weather starts getting colder and the sun goes away, I flare up and stay flared up for most of the year.

Does anyone else experience something similar?

Exact opposite.
Posted 11/30/2010 3:56 AM (GMT 0)
I'm similar. Every year since I got UC in January of 2007, I have flared in late December. I usually can get it under control pretty quickly with enemas, but it is odd that every year at that time it happens. Crossing my fingers that it doesn't happen again this year.
Posted 11/30/2010 4:37 AM (GMT 0)
I will tell you..please have your vit D levels tested, if you are very low, it will take a LOT to get you leveled out, I was about a 12 & did 50,000 IU's a week for 18 weeks before I got to a low normal. You can overdose on vit D & since it is stored in fat cells, it's hard to undo, so getting proper testing is very important. Even after two script rounds I was feeling like ick...it took a full 3 rounds of prescriptions and adding slow release magnesium to completely correct my deficiency issues. The extra D ramps up your Magnesium absorption, very important information that is often missed by Doctors.
Posted 11/30/2010 4:43 AM (GMT 0)

passer said...
To test whether this phenomenon is due to vitamin D, I have been supplementing 7,000 IU (that's 1750% of the daily value) of vitamin D3 for over 2 months. It hasn't helped one bit.

Perhaps supplementing vitamin D3 doesn't nearly have the same effect as beng exposed to powerful sunlight directly.

 

Actually no, it is not 1750% of value, the FDA just won't budge on min daily values, your body USES 4,000IUs a day, so you are taking an extra 3,000IUs.

 

Random on why the FDA is dragging their feet on upping values, the 40's & 50's they did testing on megga dosing of D, 100,000IUs a day, it killed people at that high of a dose, they were terrified to do much more than known amts to avoid rickets, it's just been in the past couple decades the studies started back up.

Posted 11/30/2010 6:59 AM (GMT 0)
I wasn't meaning the goLITE for D3 production...I was thinking more that it would fool your body into "thinking" it was sunny and "summer"...not the D connection, however, more the mood connection.

q
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