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Posted 11/24/2010 5:41 PM (GMT 0)
Dear All,
I've been having aches all over my body. Not when I'm sitting or lying down, but if I walk, the soles of my feet hurt and the knee joints etc. Also, if someone touches me with a slightly greater pressure I can feel it as pain. I play the piano a bit and the tips of my fingers hurt too.
I'm on Canasa now because I had some mucous. I still have a lot of gas and headaches virtually every day.
My GI always asks me if I have a fever (why?).
I'd appreciate any advice.
Happy Thanksgiving!
Teacher
Posted 11/24/2010 7:52 PM (GMT 0)

Somebody said...
My GI always asks me if I have a fever (why?).

Im guessing he's asking to rule out infection of some kind or the flu. There are times when I do get like that myself. I get like that when Im overdoing it. My UC makes me feel extremely worn out, for me its the worst part. When Im overdoing it and worn out I will get achy like that. I have no idea if this is the case for you tho. Also, I have recently discovered that it is essential that I live on a restricted diet. No gluten, starch or carbs of any kind, sugar is out for me too. Im not typing out an advert for the SCDiet but Ive tested it and tested it and so far its the only thing that is working for me with the nastiest symptoms that my meds wont touch.

I look forward to see what others say tho...
Posted 11/26/2010 6:15 AM (GMT 0)
I wonder if any of your aches are a reaction to caffeine. Or to cold weather? Those items tend to cause me aches in elbows, neck, and/or shoulder joints. Do you see any skin irritation on the soles of your feet? It might help them to rub in some moisturizing lotion after you shower/bathe. As we get older our skin thins and becomes more sensitive to pressure so applying lotion daily may relieve that. You can likely find a range of moisturizing body lotions at the chain drugstores in your area. / Old Hat (30 yrs with left-sided UC; presently in remission taking brandname Colazal)
Posted 11/26/2010 12:44 PM (GMT 0)
If it continues, you may want to see a rheumatologist. If it isn't arthritis related nor an infection, it sounds like it might be Fibromyalgia. Or have you recently stopped using prednisone?
Posted 11/26/2010 7:26 PM (GMT 0)
     Sherry hit the nail right on the head.  I was prednisone dependent for two years prior to my total colectomy and perm. ileostomy.  While on it, I had NO aches and pains...but a heck of a lot of other problems..lol.  Been off it since the beginning of August and I have aches and pains throughout my system.  RA runs in my family, so I wouldn't be surprised.  The doctor ordered a lot of blood work on me, so we'll see what shows up.
Posted 12/1/2010 9:10 PM (GMT 0)
The aches are mostly in response to doing something. If I walk, the soles of my feet and my knees hurt. Also, my muscles are more sensitive to pressure so a more-than-mild touch can hurt a little. I'm in my early forties but I feel and act like a very old person in bad health.
I haven't been on preds for a over 2 years.
Posted 12/6/2010 6:34 PM (GMT 0)
Along with being newly diagnosed with UP, I also suffer from Fibromyalgia. The type of pain you describe sounds very much like fibro.  The pain and sensitivity is usually triggered by touch, etc.  I have a particular area on the back of my neck that if touched by clothing, sends me into orbit.  There is a fibro site here which you may want to check out.
Posted 12/7/2010 3:20 PM (GMT 0)

The ache is more as if I had run a marathon the previous day. And I'm groggy as though I've a hangover. This is every day, although I'm in moderate remission. It is getting very tough to go thro' this day in and day out.

Best to y'all!

Teacher.

Posted 12/7/2010 7:53 PM (GMT 0)
It could be alot of things like meds for example, however in my case I was able to resolve the problem of aches and pains, excessive sweating and fatigue by doing the following:

1. Eliminate processed sugar from your diet (no sodas, cookies, etc.)
2. Religously take vitamins & minerals (have a test to see where you are deficient)
3. At least 2-3 times a week, do light cardiovascular exercise (jogging, etc.) where you sweat.
4. Go to bed early (10pm if possible)

ps.
Items 1 and 2 are the most important, but try to follow them all if you decide to; bear in mind that what works for me may not work for you.

Good luck,
NBT
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