New to forum. Diagnosed with ulcerative colitis/proctitis

I am on apriso and hydrocortisone enemas. My symptoms have fluctuated for about a year. My symptoms will subside (while on meds) and then have a flare (while on meds). Does anyone else have these kinds of symptoms?

Welcome, it may take some time to find a protocol that works best for you; if it turns out you are ok with 5asas then I suggest you stick with those orally and rectally for maint as cortisteriods used topically/rectally on skin can cause thinning over time.

Feel well soon:)

     Yes, I had those symptoms.  I had ulcerative proctitis for twelve years.  I believe the Colazal did keep it from creeping up further into the colon but the rectum was extremely hard to treat.  I tried everything....6MP, Remicade, Humira but became prednisone dependent.  Do NOT let that happen to you.  Now I have full blown osteoporosis and suffered three spinal fractures over the past few years.  I am presently contemplating the once a year Reclast injection because I cannot tolerate Fosamax or Actonel.  They do a number on my upper gastric tract.  But, I have to do something!  At the present time I am having a lot of dental problems and those have to be resolved before starting Reclast.

     By the way, I had a total colectomy with end ileostomy on June 28th of last year.  I feel great except for the problems bestowed on me by that dreaded prednisone.

Hi chai, and welcome!
Yes, the hormonal fluctuations around periods bring on symptoms in many women. I sure found that to be the case .... menopause was a good thing in that regard.
Have you tried the Rowasa enemas? Some people find them to be even more effective than the steroid enemas, and they don't have the steroid side effects.
And, how much apriso are you taking; could a higher dose help?

And have you ever tried probiotics?

A flare won't subside...per-se...you need to also be on rectal meds bellachesca.

q