I'm scared

Hi, My names Randall and I was diagnosed with Sever Ulcerative colitis September 09.
I haven't been able to afford medication, or GI doctor visits.
Looked for help without any luck.

I've had one colonospy and that's when I first went to the hospital and was diagnosed.
I am in dire need of another one. My stomach doesn't really hurt, hurt, but it's never settled.
At times I can just lay down and see my stomach moving from gas? or something all on it's on.
Sometimes it feels like miniature explosions all in my stomach.
I'm afraid of my life expectancy, I don't know what to do.
I'm only 22 and have a 1 year old. I'm afraid she might not get a chance to know her father.

I haven't had any bleeding or mucus sense the attack first hit me. But it just doesn't seem right.
Like my stomach's not working properly? As in, I eat food, alot, but don't know where any of it goes.

I hate to sound graphic, but I'm only producing like my a little over a quarter of stool a day.
If I take laxative though, it seems to get everything out, but after laxative, it takes like a week for my stomach to recover from it.

Anyone like this?

I cannot stress fiber enough. Took me about 11 years to figure that on out. There are too many patient assistant programs out there not to get your meds. You have to take the initiative to research it though. Already threads on it in these forums with links attached.

Here lately I've been eating things like, raimen noodles, maynoaise, tuna fish, lays plain chips, pot pies, and drinking water alot, soda's sometimes.
I've fixed my diet without things like pizza, fatty hamburgers, and things.
Are you talking about this list?
http://www.breakingtheviciouscycle.info/legal/legal_illegal_a-c.htm

Are Energy drinks a big NO?

Why I'm worried is the SEVER in the Sever Ulcerative Colitis. I was a heavy drinker for the two years I had it without any pills.
I'm worried it may of permitatly messed my stomach and colon up.

When I try to take a bowel movement, really nothing comes out, and I develop hemroid I think every time I try.
It hurts, burns, iches, for no reason.... nothing even came out, just me trying developed a hemriod.

If my colon ruptures, or it's just not working anymore how would I know? What about my stomach, what if it just doesn't work anymore, that's my life.

what about basic things like sit ups? would that be good for my stomach or upset it?

EDIT I've Tried things like drug assistant programs. I stayed in 6 hour lines for them to tell me try again next year.
I've been to defax offices, they told me no sorry they can't help. I tried insurance, their to expensive for preexisting, and hardly covers anything.

I did get pills three days ago sulfizine? but that's only for moderate UC and may not work.
and yes, I desperately need/want a colonosphy

Post Edited (Dropkicksidekick) : 3/20/2011 6:15:09 PM (GMT-6)

I'm not married, the child lives with the mother. I went to defax to ask about medicare and she said we only offer it to children.
all I've had sense I've had it is one big run around trying to get help with the meds.

Can your UC get worse, deadly, fatal, before you've even had your second flare up? It's been two years without that mind boggling pain. But it's like it doesn't function. I may even have crons. The doctor said it was to inflamed to go up into the large intestence to see.

am I in flare, remission, or just active UC? It it's just always exploding?

I'm going to Emory Hospital tomorrow. I'm tired of the waiting for help. It's the best hospital in Georgia. Maybe they'll tell me the last doctor was wrong and I just have gas.... if only the pictures they took of my colon were wrong.

Not even situps help?

What about this plan>
Sulfizine pills, cabbage juice, aloe vera pills, colon health vitamins, one a day vitamins, and try and eat a little more healty. Will my stomach get loads better? Will that put me in remission?

No one can say for sure. Cabbage bothers a lot of peoples stomachs. I've heard aloe vera is "snake oil". I haven't seen anyone here post that they have had positive benefits from using it. Colon health vitamins may be helpful - do they contain probiotics? I stopped taking all OTC supplements and I haven't noticed a difference in my condition. The only thing on your list that I see as helpful (and this is subjective) is the sulfasalazine. What dose are you taking daily?

Situps won't have any positive impact on Colitis.

If you're seeing blood, mucus, having cramping, pain, frequent urge to go to the bathroom, urgency to use the bathroom, constipation, diarrea or any combo of these symptoms you're probably flaring. Flaring and active UC mean the same thing. Just because it is active doesn't mean it will always be active. It can go into remission with medication or alternative methods and stay in remission for years (but doesn't always). It could flare up monthy, yearly, every ten years or never again. It's very unpredictable.

Goodluck at the hospital. I think it's a good idea to go and get your questions answered. it seems like you're stressed and I can completely understand that, especially when you have no idea what to expect.

sulfasalazine if a prescription medication and in my opinion has a lot more chance of helping pull you out of a flare than any OTC medication or supplement. Some people see huge impact from changing diet, I've never had such luck. You could go crazy chaanging your diet and realize that it didn't help your condition at all, that's the risk you take but it's worth it if you can control the situation with diet. The best way to eliminate things is to start with a very strict diet and gradually add one thing at a time.

Situps shouldn't have bad effects but as I said, when I am flaring, I seem to heal when I rest. Situps can be intense and strenuous.

about the last post?

Try drinking lots of water and apple juice/cider.
If you don't have a blockage, your inflammation sounds like it's at its worst low in your rectum. Maybe see about some rectal meds. I think they're cheaper too.

thank you everyone.

I went to the hospital today, I was hoping to get a colonsphy or something, but it they found out it wasn't a emergency they wouldn't take me. I filled out a charity form, and hopefully I'll get some help.

I brought a couple more vitamins today, on top of the sulfizine, so hopefully that'll help.
and I'm looking up the gluten free diet right now.